{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T20:34:25Z","timestamp":1788640465347,"version":"build-2803163510"},"reference-count":56,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2024,7,1]],"date-time":"2024-07-01T00:00:00Z","timestamp":1719792000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior"],"published-print":{"date-parts":[[2024,7]]},"DOI":"10.1016\/j.yebeh.2024.109790","type":"journal-article","created":{"date-parts":[[2024,4,30]],"date-time":"2024-04-30T15:58:08Z","timestamp":1714492688000},"page":"109790","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":13,"special_numbering":"C","title":["Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study"],"prefix":"10.1016","volume":"156","author":[{"given":"Josefin","family":"Soto Jansson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bj\u00f6rn","family":"Bjurulf","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michaela","family":"Dellenmark Blom","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tove","family":"Hallb\u00f6\u00f6k","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Colin","family":"Reilly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"4","key":"10.1016\/j.yebeh.2024.109790_b0005","doi-asserted-by":"crossref","first-page":"512","DOI":"10.1111\/epi.13709","article-title":"ILAE classification of the epilepsies: Position paper of the ILAE Commission for Classification and Terminology","volume":"58","author":"Scheffer","year":"2017","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2024.109790_b0010","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1016\/j.ejpn.2019.12.023","article-title":"Deciphering the concepts behind \u201cEpileptic encephalopathy\u201d and \u201cDevelopmental and epileptic encephalopathy\u201d","volume":"24","author":"Scheffer","year":"2020","journal-title":"Eur J Paediatr Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0015","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1016\/j.yebeh.2017.12.020","article-title":"Symptoms of depression, anxiety, and stress in parents of young children with epilepsy: A case controlled population-based study","volume":"80","author":"Reilly","year":"2018","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0020","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108324","article-title":"Impact of developmental and epileptic encephalopathies on caregivers: A literature review","volume":"124","author":"Gallop","year":"2021","journal-title":"Epilepsy Behav"},{"issue":"6","key":"10.1016\/j.yebeh.2024.109790_b0025","doi-asserted-by":"crossref","first-page":"1349","DOI":"10.1111\/epi.17239","article-title":"ILAE classification and definition of epilepsy syndromes with onset in neonates and infants: Position statement by the ILAE Task Force on Nosology and Definitions","volume":"63","author":"Zuberi","year":"2022","journal-title":"Epilepsia"},{"issue":"3","key":"10.1016\/j.yebeh.2024.109790_b0030","doi-asserted-by":"crossref","first-page":"392","DOI":"10.1016\/j.ejpn.2019.02.014","article-title":"Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: A prospective, multicenter study from Germany","volume":"23","author":"Strzelczyk","year":"2019","journal-title":"Eur J Paediatr Neurol"},{"issue":"1","key":"10.1016\/j.yebeh.2024.109790_b0035","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s13023-023-02697-3","article-title":"Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany","volume":"18","author":"Maltseva","year":"2023","journal-title":"Orphanet J Rare Dis"},{"key":"10.1016\/j.yebeh.2024.109790_b0040","doi-asserted-by":"crossref","DOI":"10.1002\/epi4.12832","article-title":"Dravet syndrome: A systematic literature review of the illness burden","author":"Strzelczyk","year":"2023","journal-title":"Epilepsia Open"},{"key":"10.1016\/j.yebeh.2024.109790_b0045","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107079","article-title":"Intellectual functioning and behavior in Dravet syndrome: A systematic review","volume":"108","author":"Jansson","year":"2020","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0050","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107319","article-title":"Cognitive, behavioral, and social functioning in children and adults with Dravet syndrome","volume":"112","author":"Brown","year":"2020","journal-title":"Epilepsy Behav"},{"issue":"3","key":"10.1016\/j.yebeh.2024.109790_b0055","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1016\/j.ejpn.2019.03.003","article-title":"Gait deviations in patients with dravet syndrome: A systematic review","volume":"23","author":"Wyers","year":"2019","journal-title":"Eur J Paediatr Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0060","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2023.109560","article-title":"Caregiver reported behavior, sleep and quality of life in children with Dravet syndrome: A population-based study","volume":"150","author":"Bjurulf","year":"2024","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0065","doi-asserted-by":"crossref","first-page":"1037","DOI":"10.1212\/WNL.0000000000003716","article-title":"Clinical and genetic factors predicting Dravet syndrome in infants with SCN1A mutations","volume":"88","author":"Cetica","year":"2017","journal-title":"Neurology"},{"issue":"9","key":"10.1016\/j.yebeh.2024.109790_b0070","doi-asserted-by":"crossref","first-page":"2879","DOI":"10.1093\/brain\/awab162","article-title":"Early childhood epilepsies: epidemiology, classification, aetiology, and socio-economic determinants","volume":"144","author":"Symonds","year":"2021","journal-title":"Brain"},{"key":"10.1016\/j.yebeh.2024.109790_b0075","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1016\/j.yebeh.2018.01.003","article-title":"Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey","volume":"80","author":"Campbell","year":"2018","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0080","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1016\/j.yebeh.2017.02.003","article-title":"The humanistic and economic burden of Dravet syndrome on caregivers and families: implications for future research","volume":"70","author":"Jensen","year":"2017","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0085","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108206","article-title":"Dravet syndrome: Effects on informal caregivers\u2019 mental health and quality of life\u2013A systematic review","volume":"122","author":"Gon\u00e7alves","year":"2021","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0090","article-title":"Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and needs","volume":"151","author":"Jansson","year":"2024","journal-title":"Epilepsy Behav"},{"issue":"7","key":"10.1016\/j.yebeh.2024.109790_b0095","doi-asserted-by":"crossref","first-page":"628","DOI":"10.1111\/dmcn.12709","article-title":"Dravet syndrome in Sweden: a population-based study","volume":"57","author":"Rosander","year":"2015","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0100","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1750-1172-8-176","article-title":"Encephalopathy in children with Dravet syndrome is not a pure consequence of epilepsy","volume":"8","author":"Nabbout","year":"2013","journal-title":"Orphanet J Rare Dis"},{"issue":"2","key":"10.1016\/j.yebeh.2024.109790_b0105","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psychol"},{"key":"10.1016\/j.yebeh.2024.109790_b0110","doi-asserted-by":"crossref","unstructured":"Braun, V., & Clarke, V. (2021). Thematic analysis: a practical guide [eBook version]. SAGE moradi H, vaezi A. lessons learned from Korea: COVID-19 pandemic, 41, 873-4.","DOI":"10.1017\/ice.2020.104"},{"issue":"10","key":"10.1016\/j.yebeh.2024.109790_b0115","doi-asserted-by":"crossref","first-page":"1229","DOI":"10.1111\/dmcn.14186","article-title":"Perception of impact of Dravet syndrome on children and caregivers in multiple countries: looking beyond seizures","volume":"61","author":"Nabbout","year":"2019","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0120","doi-asserted-by":"crossref","first-page":"232","DOI":"10.1016\/j.yebeh.2017.08.029","article-title":"Development and content validation of a preliminary core set of patient-and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet syndrome","volume":"78","author":"Nabbout","year":"2018","journal-title":"Epilepsy Behav"},{"issue":"1","key":"10.1016\/j.yebeh.2024.109790_b0125","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1111\/dmcn.13591","article-title":"Quality of life and comorbidities associated with Dravet syndrome severity: a multinational cohort survey","volume":"60","author":"Lagae","year":"2018","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0130","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qualitative Res Sport Exerc Health"},{"key":"10.1016\/j.yebeh.2024.109790_b0135","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1080\/2159676X.2019.1704846","article-title":"To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales","volume":"13","author":"Braun","year":"2021","journal-title":"Qualitative Res Sport Exerc Health"},{"key":"10.1016\/j.yebeh.2024.109790_b0140","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2023.109560","article-title":"Caregiver reported behavior, sleep and quality of life in children with Dravet syndrome: A population-based study","volume":"150","author":"Bjurulf","year":"2024","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0145","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1016\/j.yebeh.2018.11.029","article-title":"Behavior problems and health-related quality of life in Dravet syndrome","volume":"90","author":"Sinoo","year":"2019","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0150","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2022.108978","article-title":"Challenging behavior in children and adolescents with Dravet syndrome: Exploring the lived experiences of parents","volume":"138","author":"Postma","year":"2023","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0155","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1016\/j.yebeh.2018.01.003","article-title":"Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey","volume":"80","author":"Campbell","year":"2018","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0160","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2023.109193","article-title":"Emotional experiences of family caregivers of children with Dravet syndrome","volume":"142","author":"Domaradzki","year":"2023","journal-title":"Epilepsy Behav"},{"issue":"8","key":"10.1016\/j.yebeh.2024.109790_b0165","doi-asserted-by":"crossref","first-page":"1410","DOI":"10.3390\/children10081410","article-title":"Caring for children with Dravet syndrome: exploring the daily challenges of family caregivers","volume":"10","author":"Domaradzki","year":"2023","journal-title":"Children"},{"key":"10.1016\/j.yebeh.2024.109790_b0170","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1016\/j.yebeh.2017.06.031","article-title":"Dravet syndrome: characteristics, comorbidities, and caregiver concerns","volume":"74","author":"Villas","year":"2017","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0175","doi-asserted-by":"crossref","unstructured":"Aledo-Serrano, \u00c1., Mingorance, A., Villanueva, V., Garc\u00eda-Pe\u00f1as, J. J., Gil-Nagel, A., Boronat, S., ... & S\u00e1nchez-Carpintero, R. (2022). The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study. Frontiers in Neurology, 1989.","DOI":"10.3389\/fneur.2022.975034"},{"key":"10.1016\/j.yebeh.2024.109790_b0180","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107094","article-title":"Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers","volume":"108","author":"Nabbout","year":"2020","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2024.109790_b0185","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1016\/j.yebeh.2017.12.034","article-title":"The direct and indirect costs of Dravet syndrome","volume":"80","author":"Whittington","year":"2018","journal-title":"Epilepsy Behav"},{"issue":"3","key":"10.1016\/j.yebeh.2024.109790_b0190","doi-asserted-by":"crossref","first-page":"392","DOI":"10.1016\/j.ejpn.2019.02.014","article-title":"Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: a prospective, multicenter study from Germany","volume":"23","author":"Strzelczyk","year":"2019","journal-title":"Eur J Paediatr Neurol"},{"issue":"1","key":"10.1016\/j.yebeh.2024.109790_b0195","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/j.ejpn.2018.09.012","article-title":"More daytime sleepiness and worse quality of sleep in patients with Dravet Syndrome compared to other epilepsy patients","volume":"23","author":"Schoonjans","year":"2019","journal-title":"Eur J Paediatr Neurol"},{"issue":"2","key":"10.1016\/j.yebeh.2024.109790_b0200","doi-asserted-by":"crossref","first-page":"192","DOI":"10.1111\/dmcn.13601","article-title":"Sleep problems in Dravet syndrome: a modifiable comorbidity","volume":"60","author":"Licheni","year":"2018","journal-title":"Dev Med Child Neurol"},{"issue":"5","key":"10.1016\/j.yebeh.2024.109790_b0205","doi-asserted-by":"crossref","first-page":"842","DOI":"10.1111\/cch.12993","article-title":"Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience","volume":"48","author":"Krantz","year":"2022","journal-title":"Child Care Health Dev"},{"issue":"2","key":"10.1016\/j.yebeh.2024.109790_b0210","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1111\/j.1468-3148.2010.00575.x","article-title":"Williams syndrome: daily challenges and positive impact on the family","volume":"24","author":"Scallan","year":"2011","journal-title":"J Appl Res Intellect Disabil"},{"issue":"4","key":"10.1016\/j.yebeh.2024.109790_b0215","doi-asserted-by":"crossref","first-page":"586","DOI":"10.1080\/09638288.2019.1615563","article-title":"Impact of growing up with a sibling with a neurodevelopmental disorder on the quality of life of an unaffected sibling: a scoping review","volume":"43","author":"Lamsal","year":"2021","journal-title":"Disabil Rehabil"},{"issue":"3","key":"10.1016\/j.yebeh.2024.109790_b0220","doi-asserted-by":"crossref","first-page":"461","DOI":"10.1046\/j.1365-2516.2002.00642.x","article-title":"The impact of chronic disease on the family","volume":"8","author":"Goldstein","year":"2002","journal-title":"Haemophilia"},{"key":"10.1016\/j.yebeh.2024.109790_b0225","doi-asserted-by":"crossref","unstructured":"Zurynski, Y., Deverell, M., Dalkeith, T., Johnson, S., Christodoulou, J., Leonard, H., ... & APSU Rare Diseases Impacts on Families Study group. (2017). Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays. Orphanet Journal of Rare Diseases, 12, 1-9.","DOI":"10.1186\/s13023-017-0622-4"},{"key":"10.1016\/j.yebeh.2024.109790_b0230","doi-asserted-by":"crossref","first-page":"S9","DOI":"10.1016\/j.ejpn.2012.04.008","article-title":"Helping families cope with the devastation of Dravet syndrome","volume":"16","author":"Camfield","year":"2012","journal-title":"Eur J Paediatr Neurol"},{"issue":"1","key":"10.1016\/j.yebeh.2024.109790_b0235","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1111\/jar.12221","article-title":"Tolerating uncertainty: perceptions of the future for ageing parent carers and their adult children with intellectual disabilities","volume":"30","author":"Pryce","year":"2017","journal-title":"J Appl Res Intellect Disabil"},{"issue":"3","key":"10.1016\/j.yebeh.2024.109790_b0240","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1177\/1744629512456465","article-title":"Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability","volume":"16","author":"Taggart","year":"2012","journal-title":"J Intellect Disabil"},{"key":"10.1016\/j.yebeh.2024.109790_b0245","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1016\/j.yebeh.2016.09.007","article-title":"Mortality in Dravet syndrome: A review","volume":"64","author":"Shmuely","year":"2016","journal-title":"Epilepsy Behav"},{"issue":"4","key":"10.1016\/j.yebeh.2024.109790_b0250","doi-asserted-by":"crossref","first-page":"e72","DOI":"10.1192\/bjo.2020.58","article-title":"Double stigma in mental health: Epilepsy and mental illness","volume":"6","author":"Mula","year":"2020","journal-title":"BJPsych Open"},{"issue":"10216","key":"10.1016\/j.yebeh.2024.109790_b0255","doi-asserted-by":"crossref","first-page":"2243","DOI":"10.1016\/S0140-6736(19)32500-0","article-title":"Fenfluramine hydrochloride for the treatment of seizures in Dravet syndrome: a randomised, double-blind, placebo-controlled trial","volume":"394","author":"Lagae","year":"2019","journal-title":"Lancet"},{"issue":"21","key":"10.1016\/j.yebeh.2024.109790_b0260","doi-asserted-by":"crossref","first-page":"2011","DOI":"10.1056\/NEJMoa1611618","article-title":"Trial of cannabidiol for drug-resistant seizures in the Dravet syndrome","volume":"376","author":"Devinsky","year":"2017","journal-title":"N Engl J Med"},{"issue":"1","key":"10.1016\/j.yebeh.2024.109790_b0265","doi-asserted-by":"crossref","first-page":"fcae004","DOI":"10.1093\/braincomms\/fcae004","article-title":"Long-term predictors of developmental outcome and disease burden in SCN1A-positive Dravet syndrome","volume":"6","author":"Feng","year":"2024","journal-title":"Brain Commun"},{"issue":"6","key":"10.1016\/j.yebeh.2024.109790_b0270","doi-asserted-by":"crossref","first-page":"732","DOI":"10.1177\/10738584221088244","article-title":"Targeted molecular strategies for genetic neurodevelopmental disorders: Emerging lessons from dravet syndrome","volume":"29","author":"Lersch","year":"2023","journal-title":"Neuroscientist"},{"key":"10.1016\/j.yebeh.2024.109790_b0275","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1016\/j.ejpn.2022.01.022","article-title":"Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy","volume":"37","author":"Nevin","year":"2022","journal-title":"Eur J Paediatr Neurol"},{"key":"10.1016\/j.yebeh.2024.109790_b0280","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108022","article-title":"Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy","volume":"121","author":"McKeon","year":"2021","journal-title":"Epilepsy Behav"}],"container-title":["Epilepsy & Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505024001719?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505024001719?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T20:22:56Z","timestamp":1738441376000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505024001719"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7]]},"references-count":56,"alternative-id":["S1525505024001719"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2024.109790","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2024,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2024.109790","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"109790"}}