{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T08:04:12Z","timestamp":1780301052631,"version":"3.54.0"},"reference-count":77,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,11,1]],"date-time":"2025-11-01T00:00:00Z","timestamp":1761955200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,11,1]],"date-time":"2025-11-01T00:00:00Z","timestamp":1761955200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,9,23]],"date-time":"2025-09-23T00:00:00Z","timestamp":1758585600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000266","name":"Engineering and Physical Sciences Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000266","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000269","name":"Economic and Social Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100022544","name":"Samsung Biomedical Research Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100022544","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior"],"published-print":{"date-parts":[[2025,11]]},"DOI":"10.1016\/j.yebeh.2025.110697","type":"journal-article","created":{"date-parts":[[2025,9,5]],"date-time":"2025-09-05T19:26:18Z","timestamp":1757100378000},"page":"110697","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["\u201cEpilepsy, it\u2019s just not sexy, is it?\u201d: A qualitative exploration into health and social care professionals\u2019 perspectives of people with intellectual disabilities and epilepsy, in social care"],"prefix":"10.1016","volume":"172","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-9294-076X","authenticated-orcid":false,"given":"Jay","family":"Price","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0946-5088","authenticated-orcid":false,"given":"Paraskevi","family":"Triantafyllopoulou","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7413-4579","authenticated-orcid":false,"given":"Ceridwen","family":"Evans","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1183-6933","authenticated-orcid":false,"given":"Rohit","family":"Shankar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2025.110697_b0005","unstructured":"ICD 11, 2024 - https:\/\/icd.who.int\/browse\/2024-01\/mms\/en#605267007."},{"issue":"S1","key":"10.1016\/j.yebeh.2025.110697_b0010","doi-asserted-by":"crossref","first-page":"S23","DOI":"10.21037\/tp.2020.02.02","article-title":"A clinical primer on intellectual disability","volume":"9","author":"Patel","year":"2020","journal-title":"Transl Pediatr"},{"issue":"1","key":"10.1016\/j.yebeh.2025.110697_b0015","article-title":"Prevalence estimation of intellectual disability using national administrative and household survey data: The importance of survey question specificity. International Journal of Population","volume":"6","author":"McBride","year":"2021","journal-title":"Data Sci"},{"key":"10.1016\/j.yebeh.2025.110697_b0020","article-title":"Support for people with a learning disability","author":"Parkin","year":"2021","journal-title":"House of Commons Library"},{"key":"10.1016\/j.yebeh.2025.110697_b0025","unstructured":"Park, N. (2022). Population estimates for the UK, England, Wales, Scotland and Northern Ireland: mid-2021. Census 2021. https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity\/populationandmigration\/populationestimates\/bulletins\/annualmidyearpopulationestimates\/mid2021."},{"key":"10.1016\/j.yebeh.2025.110697_b0030","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1016\/j.seizure.2022.07.012","article-title":"Mortality rate, risk factors, and causes of death in people with epilepsy and intellectual disability","volume":"101","author":"Liao","year":"2022","journal-title":"Seizure"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0035","doi-asserted-by":"crossref","first-page":"296","DOI":"10.1212\/WNL.0000000000003509","article-title":"Prevalence and incidence of epilepsy: A systematic review and meta-analysis of international studies","volume":"88","author":"Fiest","year":"2017","journal-title":"Neurology"},{"issue":"1","key":"10.1016\/j.yebeh.2025.110697_b0040","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1111\/jar.12228","article-title":"Service responses to people with intellectual disabilities and epilepsy: A systematic review","volume":"30","author":"Robertson","year":"2015","journal-title":"J Appl Res Intellect Disabil"},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0045","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1016\/j.seizure.2010.10.030","article-title":"The misdiagnosis of epilepsy in people with intellectual disabilities: A systematic review","volume":"20","author":"Chapman","year":"2011","journal-title":"Seizure"},{"issue":"1","key":"10.1016\/j.yebeh.2025.110697_b0050","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1684\/epd.2021.1366","article-title":"Epilepsy in adults with neurodevelopmental disability \u2013 what every neurologist should know","volume":"24","author":"Watkins","year":"2022","journal-title":"Epileptic Disord"},{"key":"10.1016\/j.yebeh.2025.110697_b0055","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1016\/j.seizure.2023.03.002","article-title":"Who cares? A scoping review on intellectual disability, epilepsy and social care","volume":"107","author":"Newman","year":"2023","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2025.110697_b0060","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108355","article-title":"People with epilepsy and intellectual disability: More than a sum of two conditions","volume":"124","author":"Snoeijen-Schouwenaars","year":"2021","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0065","article-title":"Step together integrating care for people with epilepsy and a learning disability","author":"Shankar","year":"2020","journal-title":"Step Together."},{"issue":"1","key":"10.1016\/j.yebeh.2025.110697_b0070","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1111\/ene.12603","article-title":"More than seizures: Improving the lives of people with refractory epilepsy","volume":"22","author":"Mula","year":"2014","journal-title":"Eur J Neurol"},{"key":"10.1016\/j.yebeh.2025.110697_b0075","unstructured":"Shankar, R., & Eyeoyibo, M. (2017). Management of epilepsy in adults with intellectual disability. Royal College of Psychiatrists [College Report 203]. https:\/\/www.rcpsych.ac.uk\/docs\/default-source\/improving-care\/better-mh-policy\/college-reports\/college-report-cr203.pdf?sfvrsn=c534ff08_2."},{"key":"10.1016\/j.yebeh.2025.110697_b0080","article-title":"Learning from lives and deaths \u2013 People with a learning disability and autistic people (LeDeR) report for 2022","author":"White","year":"2023","journal-title":"Kings College London."},{"key":"10.1016\/j.yebeh.2025.110697_b0085","unstructured":"Heslop, P., Byrne, V., Calkin, R., Pollard, J., Sullivan, B., LeDeR Team at University of Bristol, et al. (2021). The Learning Disabilities Mortality Review (LeDeR) Programme: Annual report 2020. University of Bristol. https:\/\/leder.nhs.uk\/images\/annual_reports\/LeDeR-bristol-annual-report-2020.pdf."},{"issue":"6","key":"10.1016\/j.yebeh.2025.110697_b0090","doi-asserted-by":"crossref","first-page":"508","DOI":"10.1111\/jir.12047","article-title":"Mortality from sudden unexpected death in epilepsy (SUDEP) in a cohort of adults with intellectual disability","volume":"58","author":"Kiani","year":"2013","journal-title":"J Intellect Disabil Res"},{"key":"10.1016\/j.yebeh.2025.110697_b0095","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1016\/j.seizure.2014.10.001","article-title":"Does intellectual disability increase sudden unexpected death in epilepsy (SUDEP) risk?","volume":"25","author":"Young","year":"2015","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2025.110697_b0100","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1016\/j.seizure.2020.05.004","article-title":"Seizure and sudden unexpected death in epilepsy (SUDEP) characteristics in an urban UK intellectual disability service","volume":"80","author":"Sun","year":"2020","journal-title":"Seizure"},{"issue":"5","key":"10.1016\/j.yebeh.2025.110697_b0105","doi-asserted-by":"crossref","first-page":"2750","DOI":"10.1007\/s00415-021-10938-3","article-title":"Epilepsy related multimorbidity, polypharmacy and risks in adults with intellectual disabilities: A national study","volume":"269","author":"Sun","year":"2022","journal-title":"J Neurol"},{"issue":"16","key":"10.1016\/j.yebeh.2025.110697_b0110","first-page":"e1508","article-title":"Nocturnal supervision and SUDEP risk at different epilepsy care settings","volume":"91","author":"van der Lunde","year":"2018","journal-title":"Neurology"},{"key":"10.1016\/j.yebeh.2025.110697_b0115","series-title":"A joint report of the International League Against Epilepsy task force on intellectual disabilities and the International Bureau for Epilepsy. International League Against Epilepsy","article-title":"Listening for a change: The medical and social needs of people with epilepsy and intellectual disability","author":"Kerr","year":"2013"},{"key":"10.1016\/j.yebeh.2025.110697_b0120","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1186\/s12875-015-0329-3","article-title":"Multiple physical and mental health comorbidity in adults with intellectual disabilities: Population-based cross-sectional analysis","volume":"16","author":"Cooper","year":"2015","journal-title":"BMC Fam Pract"},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0125","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1111\/jar.12654","article-title":"Prevalence of co-occurring psychiatric disorders in adults and adolescents with intellectual disability: A systematic review and meta-analysis","volume":"33","author":"Mazza","year":"2019","journal-title":"J Appl Res Intellect Disabil"},{"issue":"1","key":"10.1016\/j.yebeh.2025.110697_b0130","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1111\/bld.12304","article-title":"Mental and physical health conditions in people with intellectual disabilities: Comparing national and local data","volume":"48","author":"Perera","year":"2019","journal-title":"Br J Learn Disabil"},{"issue":"5","key":"10.1016\/j.yebeh.2025.110697_b0135","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1177\/00048674251324824","article-title":"Prevalence of psychiatric conditions in people with intellectual disability: A record linkage study in New South Wales, Australia","volume":"59","author":"Arnold","year":"2025","journal-title":"Australian & New Zealand Journal of Psychiatry"},{"key":"10.1016\/j.yebeh.2025.110697_b0140","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1016\/j.yebeh.2018.06.028","article-title":"Challenging behavior in adults with epilepsy and intellectual disability: An analysis of epilepsy characteristics","volume":"86","author":"van Ool","year":"2018","journal-title":"Epilepsy Behav"},{"issue":"7","key":"10.1016\/j.yebeh.2025.110697_b0145","doi-asserted-by":"crossref","first-page":"1223","DOI":"10.1111\/j.1528-1167.2011.03044.x","article-title":"A prospective case control study of psychiatric disorders in adults with epilepsy and intellectual disability","volume":"52","author":"Turky","year":"2011","journal-title":"Epilepsia"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0150","doi-asserted-by":"crossref","first-page":"e95","DOI":"10.1192\/bjo.2021.55","article-title":"Association between epilepsy and psychiatric disorders in adults with intellectual disabilities: Systematic review and meta-analysis","volume":"7","author":"Brizard","year":"2021","journal-title":"BJPsych Open"},{"issue":"6","key":"10.1016\/j.yebeh.2025.110697_b0155","doi-asserted-by":"crossref","first-page":"393","DOI":"10.1192\/bja.2022.28","article-title":"Behaviours that challenge in adults with intellectual disability: Overview of assessment and management","volume":"28","author":"Hassiotis","year":"2022","journal-title":"BJPsych Advances"},{"key":"10.1016\/j.yebeh.2025.110697_b0160","unstructured":"Royal College of Psychiatrists, British Psychological Society, & Royal College of Speech and Language Therapists. (2007). Challenging behaviour \u2013 A unified approach [College Report CR144]. https:\/\/www.rcpsych.ac.uk\/docs\/default-source\/improving-care\/better-mh-policy\/college-reports\/college-report-cr144.pdf."},{"key":"10.1016\/j.yebeh.2025.110697_b0165","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108191","article-title":"The relationship between antiepileptic drug load and challenging behaviours in older adults with intellectual disability and epilepsy","volume":"122","author":"Monaghan","year":"2021","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0170","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1007\/s40489-016-0069-x","article-title":"Prevalence of stereotypy in individuals with developmental disabilities: A systematic review","volume":"3","author":"Chebli","year":"2016","journal-title":"Rev J Autism Dev Disord"},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0175","doi-asserted-by":"crossref","first-page":"173","DOI":"10.1080\/14656566.2019.1695780","article-title":"Quality improvement in the management of people with epilepsy and intellectual disability: The development of clinical guidance","volume":"21","author":"Watkins","year":"2019","journal-title":"Expert Opin Pharmacother"},{"key":"10.1016\/j.yebeh.2025.110697_b0180","first-page":"127","article-title":"Poo matters! A scoping review of the impact of constipation on epilepsy. Seizure: European","volume":"108","author":"Gabrielsson","year":"2023","journal-title":"J Epilepsy"},{"issue":"5","key":"10.1016\/j.yebeh.2025.110697_b0185","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1192\/bja.2022.64","article-title":"Epilepsy, intellectual disability and the epilepsy care pathway: Improving outcomes","volume":"29","author":"Kerr","year":"2023","journal-title":"BJPsych Advances"},{"key":"10.1016\/j.yebeh.2025.110697_b0190","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2023.109296","article-title":"Awareness of social care needs in people with epilepsy and intellectual disability","volume":"145","author":"Gabrielsson","year":"2023","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0195","article-title":"People with learning disabilities in England 2011: Services & supports","author":"Emerson","year":"2012","journal-title":"Improving Health & Lives: Learning Disabilities Observatory."},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0200","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1016\/j.seizure.2011.12.012","article-title":"Factors influencing the costs of epilepsy in adults with an intellectual disability","volume":"21","author":"Pennington","year":"2012","journal-title":"Seizure"},{"issue":"6","key":"10.1016\/j.yebeh.2025.110697_b0205","doi-asserted-by":"crossref","first-page":"e186","DOI":"10.1192\/bjo.2024.749","article-title":"Evidencing the challenges of care delivery for people with intellectual disability and epilepsy in England by using the Step Together toolkit","volume":"10","author":"Shillito","year":"2024","journal-title":"BJPsych Open"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0210","doi-asserted-by":"crossref","first-page":"e94","DOI":"10.1192\/bjo.2024.45","article-title":"The relationship between clinical presentation and the nature of care in adults with intellectual disability and epilepsy \u2013 National comparative cohort study","volume":"10","author":"Badger","year":"2024","journal-title":"BJPsych Open"},{"key":"10.1016\/j.yebeh.2025.110697_b0215","unstructured":"NHS Digital. (2020). Adult social care activity and finance report \u2013 England \u2013 2019-20. https:\/\/digital.nhs.uk\/data-and-information\/publications\/statistical\/adult-social-care-activity-and-finance-report\/2019-20."},{"key":"10.1016\/j.yebeh.2025.110697_b0220","unstructured":"NHS Digital. (2023). Long term care. Adult social care activity and finance report, England, 2022-23. https:\/\/digital.nhs.uk\/data-and-information\/publications\/statistical\/adult-social-care-activity-and-finance-report\/2022-23\/long-term-care."},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0225","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1111\/jar.12652","article-title":"Managing demand for social care among adults with intellectual disabilities: A systematic scoping review","volume":"33","author":"Rojas-Garcia","year":"2020","journal-title":"J Appl Res Intellect Disabil"},{"key":"10.1016\/j.yebeh.2025.110697_b0230","article-title":"An international comparison of care for people with intellectual disabilities: An exploration","author":"Woittiez","year":"2018","journal-title":"The Netherlands Institute for Social Research"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0235","doi-asserted-by":"crossref","first-page":"379","DOI":"10.1016\/j.yebeh.2013.05.024","article-title":"A qualitative study of carers\u2019 and professionals\u2019 views on the management of people with intellectual disability and epilepsy: A neglected population","volume":"28","author":"Thompson","year":"2013","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0240","doi-asserted-by":"crossref","unstructured":"Mengoni, S. E., Gates, B., Parkes, G., Wellsted, D., Barton, G., Ring, H. et al. (2016). \u201cSometimes, it just stops me from doing anything\u201d: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers. Epilepsy & Behavior, 64(Part A), 133\u201339. doi: 10.1016\/j.yebeh.2016.09.029.","DOI":"10.1016\/j.yebeh.2016.09.029"},{"key":"10.1016\/j.yebeh.2025.110697_b0245","doi-asserted-by":"crossref","unstructured":"Thompson, R., & Laxhman, N. (2016). Impact of epilepsy and intellectual disabilities on family life. In V. Prasher & M. Kerr (Eds.), Epilepsy and intellectual disabilities (2nd ed., pp 317 \u2013 328).","DOI":"10.1007\/978-3-319-39144-1_15"},{"issue":"6","key":"10.1016\/j.yebeh.2025.110697_b0250","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2019-030470","article-title":"The specification, acceptability and effectiveness of respite care and short breaks for young adults with complex healthcare needs: Protocol for a mixed-methods systematic review","volume":"9","author":"Pilkington","year":"2019","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.yebeh.2025.110697_b0255","doi-asserted-by":"crossref","first-page":"296","DOI":"10.1080\/20473869.2019.1665773","article-title":"Staff and family views of alternative respite services for adults with intellectual disabilities \u2013 Aims, outcomes and experiences","volume":"67","author":"Guerin","year":"2019","journal-title":"International Journal of Developmental Disabilities"},{"issue":"10","key":"10.1016\/j.yebeh.2025.110697_b0260","doi-asserted-by":"crossref","first-page":"856","DOI":"10.1016\/j.seizure.2014.07.005","article-title":"Caring for a family member with intellectual disability and epilepsy: Practical, social and emotional perspectives","volume":"23","author":"Thompson","year":"2014","journal-title":"Seizure"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0265","doi-asserted-by":"crossref","first-page":"328","DOI":"10.1080\/14780887.2020.1769238","article-title":"One size fits all? What counts as quality practice in (reflexive) thematic analysis?","volume":"18","author":"Braun","year":"2020","journal-title":"Qual Res Psychol"},{"key":"10.1016\/j.yebeh.2025.110697_b0270","doi-asserted-by":"crossref","unstructured":"Hassiotis, A., & Shankar, R. (2024). Inequalities in epilepsy in the UK: Action is needed now. The Lancet Public Health, 9(8), Article e536\u201337. doi: 10.1016\/S2468-2667(24)00164-6.","DOI":"10.1016\/S2468-2667(24)00164-6"},{"issue":"5","key":"10.1016\/j.yebeh.2025.110697_b0275","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1192\/bja.2023.19","article-title":"Managing epilepsy in people with intellectual disabilities \u2013 Creating capable communities","volume":"29","author":"Shankar","year":"2023","journal-title":"BJPsych Advances"},{"issue":"12","key":"10.1016\/j.yebeh.2025.110697_b0280","doi-asserted-by":"crossref","first-page":"1245","DOI":"10.1136\/jnnp-2020-324660","article-title":"Epilepsy, an orphan disorder within the neurodevelopmental family","volume":"91","author":"Shankar","year":"2020","journal-title":"J Neurol Neurosurg Psychiatry"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0285","doi-asserted-by":"crossref","first-page":"758","DOI":"10.1177\/17446295211016182","article-title":"Experiences of mental health professionals providing services to adults with intellectual disabilities and mental health problems: A systematic review and meta-synthesis of qualitative research studies","volume":"26","author":"Ee","year":"2021","journal-title":"J Intellect Disabil"},{"key":"10.1016\/j.yebeh.2025.110697_b0290","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2023.109179","article-title":"The impact of epilepsy on quality of life: Findings from a European survey","volume":"142","author":"Strzelczyk","year":"2023","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0295","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2024.109984","article-title":"Using a picture-based book to support epilepsy care in clinical consultations for people with intellectual disabilities","volume":"159","author":"Mengoni","year":"2024","journal-title":"Epilepsy Behav"},{"issue":"11","key":"10.1016\/j.yebeh.2025.110697_b0300","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-012993","article-title":"Wordless intervention for people with epilepsy and learning disabilities (WIELD): A randomised controlled feasibility trial","volume":"6","author":"Mengoni","year":"2019","journal-title":"BMJ Open"},{"key":"10.1016\/j.yebeh.2025.110697_b0305","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1186\/s40900-022-00403-4","article-title":"\u2018Getting our voices heard in research: A review of peer researcher\u2019s roles and experiences on a qualitative study of adult safeguarding policy","volume":"8","author":"Montgomery","year":"2022","journal-title":"Research Involvement and Engagement"},{"key":"10.1016\/j.yebeh.2025.110697_b0310","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1016\/j.seizure.2024.12.008","article-title":"Top ten epilepsy research priorities: A UK priority setting partnership","volume":"125","author":"Norton","year":"2025","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2025.110697_b0315","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108180","article-title":"UK framework for basic epilepsy training and oromucosal midazolam administration","volume":"122","author":"Tittensor","year":"2021","journal-title":"Epilepsy Behav"},{"issue":"A","key":"10.1016\/j.yebeh.2025.110697_b0320","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1016\/j.yebeh.2017.03.010","article-title":"Epilepsy awareness and emergency rescue training: Ignorance is bliss!","volume":"70","author":"Shankar","year":"2017","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2025.110697_b0325","unstructured":"Epilepsy Specialist Nurses Association. (2024). Interim best practice guidelines for training professional carers in the administration of buccal (oromucosal) midazolam for the treatment of prolonged and\/or clusters of epileptic seizures in the community. https:\/\/esna-online.org\/wp-content\/uploads\/2024\/01\/Midazolam-interim-guidelines-MI_12454014_21.12.23_V_3.pdf."},{"issue":"11","key":"10.1016\/j.yebeh.2025.110697_b0330","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2024-088509","article-title":"Online health literacy resources for people with intellectual disability: Protocol for grey-literature scoping review","volume":"14","author":"Yeap","year":"2024","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.yebeh.2025.110697_b0335","article-title":"Health support of people with intellectual disability and the crucial role of support workers","volume":"24","author":"Nijhof","year":"2024","journal-title":"BMC Health Serv Res"},{"key":"10.1016\/j.yebeh.2025.110697_b0340","doi-asserted-by":"crossref","first-page":"136","DOI":"10.1016\/j.seizure.2020.01.013","article-title":"Keep safe: The when, why and how of epilepsy risk communication","volume":"78","author":"Smart","year":"2020","journal-title":"Seizure"},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0345","doi-asserted-by":"crossref","first-page":"232","DOI":"10.1111\/jar.12657","article-title":"An empirical examination of the use of easy read health information in health consultations involving patients with intellectual disabilities","volume":"33","author":"Chinn","year":"2019","journal-title":"J Appl Res Intellect Disabil"},{"issue":"e004606","key":"10.1016\/j.yebeh.2025.110697_b0350","article-title":"The barriers to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: Evidence from a mixed-methods study","volume":"4","author":"Tuffrey-Wijne","year":"2014","journal-title":"BMJ Open"},{"key":"10.1016\/j.yebeh.2025.110697_b0355","article-title":"Barriers and facilitators to primary health care for people with intellectual disabilities and\/or autism: An integrative review","volume":"4(3).doi","author":"Doherty","year":"2019","journal-title":"BJGP"},{"issue":"2","key":"10.1016\/j.yebeh.2025.110697_b0360","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1111\/jar.12117","article-title":"Identifying training needs for mainstream healthcare professionals, to prepare them for working with individuals with intellectual disabilities: A systematic review","volume":"28","author":"Hemm","year":"2014","journal-title":"J Appl Res Intellect Disabil"},{"issue":"4","key":"10.1016\/j.yebeh.2025.110697_b0365","doi-asserted-by":"crossref","first-page":"467","DOI":"10.1111\/bld.12401","article-title":"A systematic review of the knowledge, attitudes and perceptions of health and social care professionals towards people with learning disabilities and mental health problems","volume":"50","author":"Ee","year":"2022","journal-title":"Br J Learn Disabil"},{"key":"10.1016\/j.yebeh.2025.110697_b0370","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1016\/j.seizure.2021.11.021","article-title":"Experiences of stigma in people with epilepsy: A meta-synthesis of qualitative evidence","volume":"94","author":"Mayor","year":"2022","journal-title":"Seizure"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0375","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1111\/epi.17135","article-title":"Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes toward persons living with epilepsy \u2013 Report from the International League Against Epilepsy Task Force on stigma in epilepsy","volume":"63","author":"Kwon","year":"2022","journal-title":"Epilepsia"},{"issue":"3","key":"10.1016\/j.yebeh.2025.110697_b0380","doi-asserted-by":"crossref","first-page":"168","DOI":"10.1080\/20473869.2019.1616990","article-title":"Stigma research in the field of intellectual disabilities: A scoping review on the perspective of care providers","volume":"67","author":"Pelleboer-Gunninck","year":"2019","journal-title":"Int J Dev Disabilities"},{"key":"10.1016\/j.yebeh.2025.110697_b0385","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1186\/s12939-021-01612-1","article-title":"Systemic safety inequities for people with learning disabilities: A qualitative integrative analysis of the experiences of English health and social care for people with learning disabilities, their families and carers","volume":"21","author":"Ramsay","year":"2022","journal-title":"Int J Equity Health"}],"container-title":["Epilepsy & Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505025004378?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505025004378?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T07:34:33Z","timestamp":1780299273000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505025004378"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11]]},"references-count":77,"alternative-id":["S1525505025004378"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2025.110697","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2025,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u201cEpilepsy, it\u2019s just not sexy, is it?\u201d: A qualitative exploration into health and social care professionals\u2019 perspectives of people with intellectual disabilities and epilepsy, in social care","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2025.110697","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Authors. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}],"article-number":"110697"}}