{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T04:05:33Z","timestamp":1780545933330,"version":"3.54.1"},"reference-count":53,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy &amp; Behavior"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.yebeh.2026.111132","type":"journal-article","created":{"date-parts":[[2026,5,28]],"date-time":"2026-05-28T16:14:24Z","timestamp":1779984864000},"page":"111132","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Health-related quality of life among transgender and gender diverse adults with epilepsy: Florida behavioral risk factor surveillance system 2017\u20132019"],"prefix":"10.1016","volume":"182","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2820-3884","authenticated-orcid":false,"given":"Karina N.","family":"Tassiopoulos","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2986-2216","authenticated-orcid":false,"given":"Codie","family":"Primeau","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Esther","family":"Bui","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Johnson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2026.111132_b0005","unstructured":"World Health Organization. Epilepsy. Published online June 2019. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/epilepsy."},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0010","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1186\/s42466-023-00265-5","article-title":"Determinants of quality of life in adults with epilepsy: a multicenter, cross-sectional study from Germany","volume":"5","author":"Siebenbrodt","year":"2023","journal-title":"Neurol Res Pract"},{"key":"10.1016\/j.yebeh.2026.111132_b0015","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1016\/j.yebeh.2008.10.013","article-title":"Comorbidity, health screening, and quality of life among persons with a history of epilepsy","volume":"14","author":"Elliott","year":"2008","journal-title":"Epilepsy Behav"},{"issue":"7","key":"10.1016\/j.yebeh.2026.111132_b0020","doi-asserted-by":"crossref","first-page":"1282","DOI":"10.1111\/epi.14444","article-title":"Psychological treatments for adults and children with epilepsy: Evidence-based recommendations by the International League against Epilepsy Psychology Task Force","volume":"59","author":"Michaelis","year":"2018","journal-title":"Epilepsia"},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0025","doi-asserted-by":"crossref","first-page":"117","DOI":"10.3138\/ptc-2021-0107-gee","article-title":"A need for greater emphasis on 2SLGBTQIA+ health among physiotherapists in Canada","volume":"74","author":"Primeau","year":"2022","journal-title":"Physiother Can"},{"issue":"5","key":"10.1016\/j.yebeh.2026.111132_b0030","doi-asserted-by":"crossref","first-page":"857","DOI":"10.1080\/00918369.2021.1892406","article-title":"A comparison of health-related quality of life among transgender adults in the United States","volume":"69","author":"Henderson","year":"2022","journal-title":"J Homosex"},{"issue":"9","key":"10.1016\/j.yebeh.2026.111132_b0035","doi-asserted-by":"crossref","first-page":"2695","DOI":"10.1007\/s11136-022-03134-x","article-title":"Understanding factors that affect wellbeing in trans people \u201clater\u201d in transition: a qualitative study","volume":"31","author":"Aldridge","year":"2022","journal-title":"Qual Life Res"},{"key":"10.1016\/j.yebeh.2026.111132_b0040","doi-asserted-by":"crossref","unstructured":"Johnson EL, Bui E, Tassiopoulos K, et al. Prevalence of Epilepsy in People of Sexual and Gender Minoritized Groups. JAMA Neurol. Published online July 22, 2024. doi:10.1001\/jamaneurol.2024.2243.","DOI":"10.1001\/jamaneurol.2024.2243"},{"issue":"10","key":"10.1016\/j.yebeh.2026.111132_b0045","doi-asserted-by":"crossref","first-page":"1667","DOI":"10.1111\/epi.13864","article-title":"Caring for transgender patients with epilepsy","volume":"58","author":"Johnson","year":"2017","journal-title":"Epilepsia"},{"issue":"7624","key":"10.1016\/j.yebeh.2026.111132_b0050","doi-asserted-by":"crossref","first-page":"806","DOI":"10.1136\/bmj.39335.541782.AD","article-title":"Strengthening the reporting of observational studies in epidemiology (STROBE) statement: guidelines for reporting observational studies","volume":"335","author":"von Elm","year":"2007","journal-title":"BMJ"},{"key":"10.1016\/j.yebeh.2026.111132_b0055","unstructured":"Centers for Disease Control and Prevention (CDC). Behavioral Risk Factor Surveillance System Survey Data. Published online 2017."},{"key":"10.1016\/j.yebeh.2026.111132_b0060","unstructured":"Centers for Disease Control and Prevention (CDC). The Behavioral Risk Factor Surveillance System (BRFSS) Overview 2018. U.S. Department of Health and Human Services, Centers for Disease Control and Prevention; 2019. https:\/\/www.cdc.gov\/brfss\/annual_data\/2018\/pdf\/overview-2018-508.pdf."},{"key":"10.1016\/j.yebeh.2026.111132_b0065","unstructured":"Centers for Disease Control and Prevention (CDC). The Behavioral Risk Factor Surveillance System (BRFSS) Overview 2019. U.S. Department of Health and Human Services, Centers for Disease Control and Prevention; 2019. https:\/\/www.cdc.gov\/brfss\/annual_data\/2019\/pdf\/overview-2019-508.pdf."},{"key":"10.1016\/j.yebeh.2026.111132_b0070","unstructured":"Badgett MVL, Baker KE, Conron KJ, et al. Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys (GenIUSS). The Williams Institute, UCLA; 20Accessed December 19, 2024. https:\/\/williamsinstitute.law.ucla.edu\/publications\/geniuss-trans-pop-based-survey\/."},{"key":"10.1016\/j.yebeh.2026.111132_b0075","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1186\/1477-7525-1-37","article-title":"The centers for disease control and prevention\u2019s healthy days measures \u2013 population tracking of perceived physical and mental health over time","volume":"1","author":"Moriarty","year":"2003","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.yebeh.2026.111132_b0080","unstructured":"Centers for Disease Control and Prevention (CDC). Health-related quality of life among persons with epilepsy--Texas, 1998. MMWR Morb Mortal Wkly Rep. 2001;50(2):24-26, 35."},{"key":"10.1016\/j.yebeh.2026.111132_b0085","unstructured":"Stata Corp. Stata Statistical Software. Published online 2021."},{"issue":"3","key":"10.1016\/j.yebeh.2026.111132_b0090","doi-asserted-by":"crossref","first-page":"199","DOI":"10.1007\/s11154-018-9459-y","article-title":"Quality of life of treatment-seeking transgender adults: a systematic review and meta-analysis","volume":"19","author":"Nobili","year":"2018","journal-title":"Rev Endocr Metab Disord"},{"key":"10.1016\/j.yebeh.2026.111132_b0095","doi-asserted-by":"crossref","unstructured":"Institute of Medicine (US) Committee on Lesbian, Gay. Bisexual. and Transgender Health ISsues and Research Gaps and Opportunities. The Health of Lesbian, Gay, Bisexual, and Transgender People. National Academies Press (US); 2011. doi:10.17226\/13128.","DOI":"10.17226\/13128"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0100","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1093\/epirev\/mxad010","article-title":"\u201cWe adjusted for race\u201d: now what? a systematic review of utilization and reporting of race in American Journal of Epidemiology and Epidemiology, 2020\u20132021","volume":"45","author":"Swilley-Martinez","year":"2023","journal-title":"Epidemiol Rev"},{"key":"10.1016\/j.yebeh.2026.111132_b0105","unstructured":"Nguyen M. Imputation (Missing Data). In: Advanced Modeling and Data Challenges. Vol 3. Springer Cham; 2025. Accessed December 16, 2025. https:\/\/link.springer.com\/book\/9783032017185."},{"issue":"3","key":"10.1016\/j.yebeh.2026.111132_b0110","doi-asserted-by":"crossref","first-page":"841","DOI":"10.1177\/17456916211017860","article-title":"Dismissing \u201cdon\u2019t know\u201d responses to perceived risk survey items threatens the validity of theoretical and empirical behavior-change research","volume":"17","author":"Waters","year":"2022","journal-title":"Perspect Psychol Sci"},{"key":"10.1016\/j.yebeh.2026.111132_b0115","doi-asserted-by":"crossref","unstructured":"Kobau R, Luncheon C, Greenlund K. Active epilepsy prevalence among U.S. adults is 1.1% and differs by educational level-National Health Interview Survey, United States, 2021. Epilepsy Behav EB. 2023;142:109180. doi:10.1016\/j.yebeh.2023.109180.","DOI":"10.1016\/j.yebeh.2023.109180"},{"key":"10.1016\/j.yebeh.2026.111132_b0120","article-title":"Health, economic and social disparities among transgender women, transgender men and transgender nonbinary adults: results from a population-based study","volume":"156","author":"Goldsen","year":"2022","journal-title":"Prev Med"},{"issue":"12","key":"10.1016\/j.yebeh.2026.111132_b0125","doi-asserted-by":"crossref","first-page":"2168","DOI":"10.1111\/j.1528-1167.2011.03213.x","article-title":"Predictors of health-related quality of life and costs in adults with epilepsy: a systematic review","volume":"52","author":"Taylor","year":"2011","journal-title":"Epilepsia"},{"issue":"9","key":"10.1016\/j.yebeh.2026.111132_b0130","doi-asserted-by":"crossref","DOI":"10.1001\/jamahealthforum.2024.3176","article-title":"Inequities in self-reported social risk factors by sexual orientation and gender identity","volume":"5","author":"Nguyen","year":"2024","journal-title":"JAMA Health Forum"},{"key":"10.1016\/j.yebeh.2026.111132_b0135","doi-asserted-by":"crossref","DOI":"10.1155\/2018\/4140508","article-title":"The perceived social stigma of people with epilepsy with regard to the question of employability","volume":"2018","author":"de Souza","year":"2018","journal-title":"Neurol Res Int"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0140","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1159\/000510696","article-title":"Allostatic load and its impact on health: a systematic review","volume":"90","author":"Guidi","year":"2020","journal-title":"Psychother Psychosom"},{"key":"10.1016\/j.yebeh.2026.111132_b0145","article-title":"Minority stress theory: application, critique, and continued relevance","volume":"51","author":"Frost","year":"2023","journal-title":"Curr Opin Psychol"},{"issue":"3\u20134","key":"10.1016\/j.yebeh.2026.111132_b0150","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1177\/08982643221116762","article-title":"Sexual orientation and gender identity-related state-level policies and perceived health among lesbian, gay, bisexual, and transgender (LGBT) older adults in the United States","volume":"35","author":"Nelson","year":"2023","journal-title":"J Aging Health"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0155","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.yebeh.2004.11.003","article-title":"Which seizure-precipitating factors do patients with epilepsy most frequently report?","volume":"6","author":"Nakken","year":"2005","journal-title":"Epilepsy Behav"},{"issue":"6","key":"10.1016\/j.yebeh.2026.111132_b0160","doi-asserted-by":"crossref","first-page":"1037","DOI":"10.1111\/epi.13741","article-title":"Stress is associated with an increased risk of recurrent seizures in adults","volume":"58","author":"Baldin","year":"2017","journal-title":"Epilepsia"},{"issue":"5","key":"10.1016\/j.yebeh.2026.111132_b0165","doi-asserted-by":"crossref","first-page":"674","DOI":"10.1037\/0033-2909.129.5.674","article-title":"Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: conceptual issues and research evidence","volume":"129","author":"Meyer","year":"2003","journal-title":"Psychol Bull"},{"key":"10.1016\/j.yebeh.2026.111132_b0170","doi-asserted-by":"crossref","unstructured":"Shimizu H, Morimoto Y, Yamamoto N, Tayama T, Ozawa H, Imamura A. Overlap Between Epilepsy and Neurodevelopmental Disorders: Insights from Clinical and Genetic Studies. In: Czuczwar SJ, ed. Epilepsy. Exon Publications; 2022. Accessed September 15, 2025. http:\/\/www.ncbi.nlm.nih.gov\/books\/NBK580619\/.","DOI":"10.36255\/exon-publications-epilepsy-neurodevelopmental-disorders"},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0175","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1016\/S1474-4422(08)70018-8","article-title":"The neurobehavioural comorbidities of epilepsy: can a natural history be developed?","volume":"7","author":"Hermann","year":"2008","journal-title":"Lancet Neurol"},{"issue":"9848","key":"10.1016\/j.yebeh.2026.111132_b0180","doi-asserted-by":"crossref","first-page":"1180","DOI":"10.1016\/S0140-6736(12)61455-X","article-title":"Uncovering the neurobehavioural comorbidities of epilepsy over the lifespan","volume":"380","author":"Lin","year":"2012","journal-title":"Lancet"},{"key":"10.1016\/j.yebeh.2026.111132_b0185","doi-asserted-by":"crossref","first-page":"3959","DOI":"10.1038\/s41467-020-17794-1","article-title":"Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals","volume":"11","author":"Warrier","year":"2020","journal-title":"Nat Commun"},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0190","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1089\/aut.2023.0042","article-title":"The intersection of autism and transgender and nonbinary identities: community and academic dialogue on research and advocacy","volume":"5","author":"Gratton","year":"2023","journal-title":"Autism Adulthood Chall Manag"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0195","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1080\/26924951.2025.2598565","article-title":"The neurospicy queer experience: insights into the lived experiences & counseling needs of transgender and gender expansive adults with ADHD","volume":"20","author":"Gorski","year":"2026","journal-title":"J LGBTQ Issues Couns"},{"key":"10.1016\/j.yebeh.2026.111132_b0200","unstructured":"Navarro J, Hallarn J, Liang B, et al. Health and Well-Being Among Disabled Trans and Non-Binary People. Trans PULSE Canada; 2024."},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0205","doi-asserted-by":"crossref","first-page":"130","DOI":"10.1037\/1099-9809.8.2.130","article-title":"Could you hold the door for me? Including disability in diversity","volume":"8","author":"Olkin","year":"2002","journal-title":"Cultur Divers Ethnic Minor Psychol"},{"key":"10.1016\/j.yebeh.2026.111132_b0210","doi-asserted-by":"crossref","first-page":"339","DOI":"10.1007\/s11673-012-9380-0","article-title":"The case for conserving disability","volume":"9","author":"Garland-Thomson","year":"2012","journal-title":"J Bioethical Inq"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0215","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/13557850701803031","article-title":"\u201cWhat really annoys me is people take it like it\u2019s a disability\u201d, epilepsy, disability and identity among people of Pakistani origin living in the UK","volume":"13","author":"Rhodes","year":"2008","journal-title":"Ethn Health"},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0220","doi-asserted-by":"crossref","first-page":"113","DOI":"10.7870\/cjcmh-2011-0020","article-title":"Depression in male-to-female transgender ontarians: results from the trans PULSE project","volume":"30","author":"Rotondi","year":"2011","journal-title":"Can J Commun Ment Health"},{"issue":"1","key":"10.1016\/j.yebeh.2026.111132_b0225","doi-asserted-by":"crossref","first-page":"176","DOI":"10.1002\/jclp.22865","article-title":"Coping with discrimination: the insidious effects of gender minority stigma on depression and anxiety in transgender individuals","volume":"76","author":"Puckett","year":"2020","journal-title":"J Clin Psychol"},{"key":"10.1016\/j.yebeh.2026.111132_b0230","doi-asserted-by":"crossref","first-page":"93","DOI":"10.1016\/j.cpr.2018.06.009","article-title":"Correlates of suicide ideation and behaviors among transgender people: a systematic review guided by ideation-to-action theory","volume":"63","author":"Wolford-Clevenger","year":"2018","journal-title":"Clin Psychol Rev"},{"issue":"2","key":"10.1016\/j.yebeh.2026.111132_b0235","doi-asserted-by":"crossref","DOI":"10.1001\/jamanetworkopen.2022.0978","article-title":"Mental health outcomes in transgender and nonbinary youths receiving gender-affirming care","volume":"5","author":"Tordoff","year":"2022","journal-title":"JAMA Netw Open"},{"key":"10.1016\/j.yebeh.2026.111132_b0240","unstructured":"Herman J, O\u2019Neill KK. Suicide Risk and Prevention for Transgender People: Summary of Research Findings. The Williams Institute, UCLA; 2021. Accessed December 16, 2025. https:\/\/williamsinstitute.law.ucla.edu\/publications\/trans-suicide-risk-prevent-summary\/."},{"issue":"6","key":"10.1016\/j.yebeh.2026.111132_b0245","doi-asserted-by":"crossref","first-page":"1241","DOI":"10.2307\/1229039","article-title":"Mapping the margins: intersectionality, identity politics, and violence against women of color","volume":"43","author":"Crenshaw","year":"1991","journal-title":"Stanford Law Rev"},{"key":"10.1016\/j.yebeh.2026.111132_b0250","article-title":"Intersectionality in quantitative research: a systematic review of its emergence and applications of theory and methods","volume":"14","author":"Bauer","year":"2021","journal-title":"SSM \u2013 Popul Health"},{"key":"10.1016\/j.yebeh.2026.111132_b0255","unstructured":"James SE, Herman JL, Rankin S, Keisling M, Mottet L, Anafi M. The Report of the 2015 U.S. Transgender Survey. National Center for Transgender Equality; 2016. https:\/\/transequality.org\/sites\/default\/files\/docs\/usts\/USTS-Full-Report-Dec17.pdf."},{"key":"10.1016\/j.yebeh.2026.111132_b0260","unstructured":"The Trans PULSE Canada Team. Trans PULSE Canada QuickStat #2 - Primary Care and Unmet Health Care Needs. 2020. Accessed November 14, 2025. https:\/\/transpulsecanada.ca\/results\/quickstat-2-primary-care-and-unmet-health-care-needs\/."},{"issue":"21","key":"10.1016\/j.yebeh.2026.111132_b0265","doi-asserted-by":"crossref","first-page":"2189","DOI":"10.1056\/NEJMsr077003","article-title":"Statistics in medicine \u2014 reporting of subgroup analyses in clinical trials","volume":"357","author":"Wang","year":"2007","journal-title":"N Engl J Med"}],"container-title":["Epilepsy &amp; Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505026002532?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505026002532?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T03:40:32Z","timestamp":1780544432000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505026002532"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":53,"alternative-id":["S1525505026002532"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2026.111132","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Health-related quality of life among transgender and gender diverse adults with epilepsy: Florida behavioral risk factor surveillance system 2017\u20132019","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2026.111132","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}],"article-number":"111132"}}