{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,21]],"date-time":"2025-08-21T18:23:41Z","timestamp":1755800621291},"reference-count":45,"publisher":"Elsevier BV","issue":"3-4","license":[{"start":{"date-parts":[[2005,9,1]],"date-time":"2005-09-01T00:00:00Z","timestamp":1125532800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Preventive Medicine"],"published-print":{"date-parts":[[2005,9]]},"DOI":"10.1016\/j.ypmed.2005.04.001","type":"journal-article","created":{"date-parts":[[2005,6,6]],"date-time":"2005-06-06T20:56:10Z","timestamp":1118091370000},"page":"720-727","source":"Crossref","is-referenced-by-count":14,"title":["Factors affecting participation in a breast cancer risk reduction telephone survey among women from four racial\/ethnic groups"],"prefix":"10.1016","volume":"41","author":[{"given":"Genevieve","family":"Des Jarlais","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Celia Patricia","family":"Kaplan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer S.","family":"Haas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Steven E.","family":"Gregorich","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eliseo J.","family":"P\u00e9rez-Stable","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karla","family":"Kerlikowske","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.ypmed.2005.04.001_bib25","doi-asserted-by":"crossref","first-page":"1499","DOI":"10.1002\/cncr.11213","article-title":"Barriers to the participation of African-American patients with cancer in clinical trials: a pilot study","volume":"97","author":"Advani","year":"2003","journal-title":"Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib16","doi-asserted-by":"crossref","first-page":"S61","DOI":"10.1016\/S1047-2797(00)00198-8","article-title":"Representation of Asian Americans in clinical cancer trials","volume":"10","author":"Alexander","year":"2000","journal-title":"Ann. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib27","doi-asserted-by":"crossref","first-page":"1001","DOI":"10.2214\/ajr.169.4.9308451","article-title":"Breast Cancer Surveillance Consortium: a national mammography screening and outcomes database","volume":"169","author":"Ballard-Barbash","year":"1997","journal-title":"AJR Am. J. Roentgenol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib38","doi-asserted-by":"crossref","first-page":"62","DOI":"10.1093\/geront\/43.1.62","article-title":"Willingness to participate in clinical treatment research among older African Americans and Whites","volume":"43","author":"Brown","year":"2003","journal-title":"Gerontologist"},{"key":"10.1016\/j.ypmed.2005.04.001_bib20","doi-asserted-by":"crossref","first-page":"2681","DOI":"10.1002\/cncr.10536","article-title":"Clinical trial participation among patients enrolled in the Glioma Outcomes Project","volume":"94","author":"Chang","year":"2002","journal-title":"Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib12","doi-asserted-by":"crossref","first-page":"2458","DOI":"10.1001\/archinte.162.21.2458","article-title":"Distrust, race, and research","volume":"162","author":"Corbie-Smith","year":"2002","journal-title":"Arch. Intern. Med."},{"key":"10.1016\/j.ypmed.2005.04.001_bib18","doi-asserted-by":"crossref","first-page":"416","DOI":"10.1016\/S0895-4356(03)00031-3","article-title":"Adequacy of reporting race\/ethnicity in clinical trials in areas of health disparities","volume":"56","author":"Corbie-Smith","year":"2003","journal-title":"J. Clin. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib19","doi-asserted-by":"crossref","first-page":"304","DOI":"10.1016\/S0895-4356(03)00046-5","article-title":"Influence of race, clinical, and other socio-demographic features on trial participation","volume":"56","author":"Corbie-Smith","year":"2003","journal-title":"J. Clin. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib6","doi-asserted-by":"crossref","first-page":"S221","DOI":"10.1093\/geronb\/57.4.S221","article-title":"Gender and ethnic\/racial disparities in health care utilization among older adults","volume":"57","author":"Dunlop","year":"2002","journal-title":"J. Gerontol. B Psychol. Sci. Soc. Sci."},{"key":"10.1016\/j.ypmed.2005.04.001_bib39","doi-asserted-by":"crossref","first-page":"3554","DOI":"10.1200\/JCO.2001.19.15.3554","article-title":"Randomized clinical trials in oncology: understanding and attitudes predict willingness to participate","volume":"19","author":"Ellis","year":"2001","journal-title":"J. Clin. Oncol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib30","doi-asserted-by":"crossref","first-page":"1371","DOI":"10.1093\/jnci\/90.18.1371","article-title":"Tamoxifen for prevention of breast cancer: report of the National Surgical Adjuvant Breast and Bowel Project P-1 Study","volume":"90","author":"Fisher","year":"1998","journal-title":"J. Natl. Cancer Inst."},{"key":"10.1016\/j.ypmed.2005.04.001_bib29","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1093\/jnci\/86.8.573","article-title":"Validation studies on a model for breast cancer risk","volume":"86","author":"Gail","year":"1994","journal-title":"J. Natl. Cancer Inst."},{"key":"10.1016\/j.ypmed.2005.04.001_bib28","doi-asserted-by":"crossref","first-page":"1879","DOI":"10.1093\/jnci\/81.24.1879","article-title":"Projecting individualized probabilities of developing breast cancer for white females who are being examined annually","volume":"81","author":"Gail","year":"1989","journal-title":"J. Natl. Cancer Inst."},{"key":"10.1016\/j.ypmed.2005.04.001_bib36","unstructured":"Geographical mobility March 1999 to March 2000, 2001. United States Census: U.S. Bureau of the Census."},{"key":"10.1016\/j.ypmed.2005.04.001_bib33","doi-asserted-by":"crossref","first-page":"475","DOI":"10.1093\/oxfordjournals.aje.a009673","article-title":"Use of census-based aggregate variables to proxy for socioeconomic group: evidence from national samples","volume":"148","author":"Geronimus","year":"1998","journal-title":"Am. J. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib7","doi-asserted-by":"crossref","first-page":"S22","DOI":"10.1016\/S1047-2797(00)00195-2","article-title":"Participation of minorities in cancer research: the influence of structural, cultural, and linguistic factors","volume":"10","author":"Giuliano","year":"2000","journal-title":"Ann. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib5","first-page":"853","article-title":"Racial and ethnic differences in access to medical care in managed care plans","volume":"36","author":"Hargraves","year":"2001","journal-title":"Health Serv. Res."},{"key":"10.1016\/j.ypmed.2005.04.001_bib10","first-page":"630","article-title":"Why African Americans may not be participating in clinical trials","volume":"88","author":"Harris","year":"1996","journal-title":"J. Natl. Med. Assoc."},{"key":"10.1016\/j.ypmed.2005.04.001_bib26","doi-asserted-by":"crossref","first-page":"1117","DOI":"10.1016\/S0895-4356(97)00096-6","article-title":"Correlates and effect of non-response in a postpartum survey of obstetrical care quality","volume":"50","author":"Holt","year":"1997","journal-title":"J. Clin. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib41","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1177\/14034948020300011101","article-title":"Lifestyle factors and choice of hormone replacement therapy among Danish nurses","volume":"30","author":"Hundrup","year":"2002","journal-title":"Scand. J. Public Health"},{"key":"10.1016\/j.ypmed.2005.04.001_bib3","doi-asserted-by":"crossref","first-page":"1061","DOI":"10.1089\/152460900445974","article-title":"Involving minority and underrepresented women in clinical trials: the National Centers of Excellence in Women's Health","volume":"9","author":"Killien","year":"2000","journal-title":"J. Womens Health Gend. Based Med."},{"key":"10.1016\/j.ypmed.2005.04.001_bib37","doi-asserted-by":"crossref","first-page":"68","DOI":"10.1093\/aje\/kwf010","article-title":"Using a telephone survey to acquire genetic and behavioral data related to cigarette smoking in \u201cmade-anonymous\u201d and \u201cregistry\u201d samples","volume":"156","author":"Kozlowski","year":"2002","journal-title":"Am. J. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib43","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1007\/s007370200019","article-title":"Description of women's personality traits and psychological vulnerability prior to choosing hormone replacement therapy","volume":"5","author":"Loekkegaard","year":"2002","journal-title":"Arch. Women Ment. Health"},{"key":"10.1016\/j.ypmed.2005.04.001_bib2","doi-asserted-by":"crossref","first-page":"695","DOI":"10.1097\/00001888-199409000-00002","article-title":"Historical background of clinical trials involving women and minorities","volume":"69","author":"McCarthy","year":"1994","journal-title":"Acad. Med."},{"key":"10.1016\/j.ypmed.2005.04.001_bib35","doi-asserted-by":"crossref","first-page":"188","DOI":"10.1016\/S1047-2797(98)00057-X","article-title":"Participation rates in a case-control study: the impact of age, race, and race of interviewer","volume":"9","author":"Moorman","year":"1999","journal-title":"Ann. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib32","unstructured":"NCI Breast Cancer Risk Assessment Tool: http:\/\/bcra.nci.nih.gov\/brc\/; 2000."},{"key":"10.1016\/j.ypmed.2005.04.001_bib17","doi-asserted-by":"crossref","first-page":"472","DOI":"10.1016\/S1047-2797(97)00080-X","article-title":"Evaluating minority recruitment into clinical studies: how good are the data?","volume":"7","author":"Ness","year":"1997","journal-title":"Ann. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib14","unstructured":"NIH Guidelines on the Inclusion of Women and Minorities as Subjects in Clinical Research: http:\/\/grants.nih.gov\/grants\/guide\/notice-files\/not94-100.html; 1994."},{"key":"10.1016\/j.ypmed.2005.04.001_bib4","series-title":"Profile of General Demographic Characteristics. United States Census 2000","year":"2000"},{"key":"10.1016\/j.ypmed.2005.04.001_bib40","unstructured":"Recent trends in mortality rates for four major cancers, by sex and race\/ethnicity\u2014United States, 1990\u20131998, 2002. MMWR Morb. Mortal. Wkly. Rep. 51, 49\u201353."},{"key":"10.1016\/j.ypmed.2005.04.001_bib22","doi-asserted-by":"crossref","first-page":"190","DOI":"10.1007\/BF02884960","article-title":"Recruitment for complementary\/alternative medicine trials: who participates after breast cancer","volume":"20","author":"Richardson","year":"1998","journal-title":"Ann. Behav. Med."},{"key":"10.1016\/j.ypmed.2005.04.001_bib24","doi-asserted-by":"crossref","first-page":"2348","DOI":"10.1002\/(SICI)1097-0142(19960601)77:11<2348::AID-CNCR25>3.0.CO;2-W","article-title":"Participation in a women's breast cancer risk counseling trial. Who participates? Who declines? High Risk Breast Cancer Consortium","volume":"77","author":"Rimer","year":"1996","journal-title":"Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib1","doi-asserted-by":"crossref","first-page":"2687","DOI":"10.1002\/1097-0142(19941101)74:9+<2687::AID-CNCR2820741817>3.0.CO;2-B","article-title":"Clinical trial participation. Viewpoints from racial\/ethnic groups","volume":"74","author":"Roberson","year":"1994","journal-title":"Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib44","doi-asserted-by":"crossref","first-page":"321","DOI":"10.1001\/jama.288.3.321","article-title":"Risks and benefits of estrogen plus progestin in healthy postmenopausal women: principal results From the Women's Health Initiative randomized controlled trial","volume":"288","author":"Rossouw","year":"2002","journal-title":"JAMA"},{"key":"10.1016\/j.ypmed.2005.04.001_bib45","series-title":"SEER Cancer Statistics Review, 1975\u20132000","year":"2003"},{"key":"10.1016\/j.ypmed.2005.04.001_bib13","first-page":"563","article-title":"Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies","volume":"92","author":"Shavers","year":"2000","journal-title":"J. Natl. Med. Assoc."},{"key":"10.1016\/j.ypmed.2005.04.001_bib11","doi-asserted-by":"crossref","first-page":"233","DOI":"10.1002\/1097-0142(20010101)91:1+<233::AID-CNCR10>3.0.CO;2-8","article-title":"Factors that influence African-Americans' willingness to participate in medical research studies","volume":"91","author":"Shavers","year":"2001","journal-title":"Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib8","doi-asserted-by":"crossref","first-page":"248","DOI":"10.1016\/S1047-2797(01)00265-4","article-title":"Racial differences in factors that influence the willingness to participate in medical research studies","volume":"12","author":"Shavers","year":"2002","journal-title":"Ann. Epidemiol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib9","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1080\/13557858.1997.9961813","article-title":"Why are African Americans under-represented in medical research studies? Impediments to participation","volume":"2","author":"Shavers-Hornaday","year":"1997","journal-title":"Ethn. Health"},{"key":"10.1016\/j.ypmed.2005.04.001_bib21","doi-asserted-by":"crossref","first-page":"526","DOI":"10.1016\/S0197-2456(01)00157-X","article-title":"Sociodemographic and clinical predictors of participation in two randomized trials: findings from the Collaborative Ocular Melanoma Study COMS report no. 7","volume":"22","year":"2001","journal-title":"Control Clin. Trials."},{"key":"10.1016\/j.ypmed.2005.04.001_bib34","series-title":"SPSS for Windows","year":"2001"},{"key":"10.1016\/j.ypmed.2005.04.001_bib42","first-page":"245","article-title":"Socio-demographic characteristics of postmenopausal estrogen users","volume":"26","author":"Strinic","year":"2002","journal-title":"Coll. Antropol."},{"key":"10.1016\/j.ypmed.2005.04.001_bib15","doi-asserted-by":"crossref","first-page":"812","DOI":"10.1093\/jnci\/88.12.812","article-title":"Representation of African-Americans, Hispanics, and whites in National Cancer Institute cancer treatment trials","volume":"88","author":"Tejeda","year":"1996","journal-title":"J. Natl. Cancer Inst."},{"key":"10.1016\/j.ypmed.2005.04.001_bib31","doi-asserted-by":"crossref","first-page":"153","DOI":"10.3816\/CBC.2002.n.020","article-title":"The study of tamoxifen and raloxifene: preliminary enrollment data from a randomized breast cancer risk reduction trial","volume":"3","author":"Vogel","year":"2002","journal-title":"Clin. Breast Cancer"},{"key":"10.1016\/j.ypmed.2005.04.001_bib23","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1093\/aje\/kwf185","article-title":"Characteristics of telephone survey respondents according to willingness to participate","volume":"157","author":"Voigt","year":"2003","journal-title":"Am. J. Epidemiol."}],"container-title":["Preventive Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0091743505000745?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0091743505000745?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2019,2,23]],"date-time":"2019-02-23T09:54:11Z","timestamp":1550915651000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0091743505000745"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2005,9]]},"references-count":45,"journal-issue":{"issue":"3-4","published-print":{"date-parts":[[2005,9]]}},"alternative-id":["S0091743505000745"],"URL":"https:\/\/doi.org\/10.1016\/j.ypmed.2005.04.001","relation":{},"ISSN":["0091-7435"],"issn-type":[{"value":"0091-7435","type":"print"}],"subject":[],"published":{"date-parts":[[2005,9]]}}}