{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T21:46:15Z","timestamp":1747172775283,"version":"3.40.5"},"reference-count":19,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2024,10,29]],"date-time":"2024-10-29T00:00:00Z","timestamp":1730160000000},"content-version":"unspecified","delay-in-days":302,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J. Clin. Trans. Sci."],"published-print":{"date-parts":[[2024]]},"abstract":"<jats:title>Abstract<\/jats:title>\n\t  <jats:sec id=\"S2059866124006290_as1\">\n\t    <jats:title>Introduction:<\/jats:title>\n\t    <jats:p>Latinx populations are underrepresented in clinical research. Asking Latinx research participants about their research experiences, barriers, and facilitators could help to improve research participation for these populations.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2059866124006290_as2\">\n\t    <jats:title>Methods:<\/jats:title>\n\t    <jats:p>The Salud Estres y Resilencia (SER) Hispano cohort study is a longitudinal cohort study of young adult Latinx immigrants whose design and conduct were tailored for their study population. We administered the Research Participant Perception Survey (RPPS) to SER Hispano participants to assess their experiences in the study. We describe overall results from the RPPS and compare results of surveys administered to SER Hispano participants via email versus telephone.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2059866124006290_as3\">\n\t    <jats:title>Results:<\/jats:title>\n\t    <jats:p>Of 340 participants who were contacted with the RPPS, 142 (42%) responded. Among respondents, 53 (37%) responded by initial email contact; and 89 (63%) responded by subsequent phone contact. The majority of respondents were between 35 and 44 years of age (54%), female (76%), and of Cuban origin (50%). Overall, research participants expressed high satisfaction with their research experience; 84% stated that they would \u201cdefinitely\u201d recommend research participation to friends and family, with no significant difference by method of survey administration (<jats:italic>P<\/jats:italic> = 0.45). The most common factor that was chosen that would influence future research participation was having summary results of the research shared with them (72%).<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2059866124006290_as4\">\n\t    <jats:title>Conclusion:<\/jats:title>\n\t    <jats:p>We found that culturally tailored studies can be good experiences for Latinx research participants; and we found that use of the RPPS can be administered successfully, particularly when administered by more than one method, including telephone, to evaluate and to improve research experiences for this population.<\/jats:p>\n\t  <\/jats:sec>","DOI":"10.1017\/cts.2024.629","type":"journal-article","created":{"date-parts":[[2024,10,29]],"date-time":"2024-10-29T08:46:24Z","timestamp":1730191584000},"source":"Crossref","is-referenced-by-count":0,"title":["Fielding the research participant perception survey to evaluate a culturally tailored Latinx cohort study"],"prefix":"10.1017","volume":"8","author":[{"given":"Sierra","family":"Lindo","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jamie","family":"Roberts","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"James","family":"Goodrich","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alejandra","family":"Mella-Velazquez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael D.","family":"Musty","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1787-691X","authenticated-orcid":false,"given":"Alex C.","family":"Cheng","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5419-0589","authenticated-orcid":false,"given":"Rhonda G.","family":"Kost","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0220-5208","authenticated-orcid":false,"given":"Rosa M.","family":"Gonzalez-Guarda","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4294-8081","authenticated-orcid":false,"given":"Ranee","family":"Chatterjee","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2024,10,29]]},"reference":[{"key":"S2059866124006290_ref14","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2018.32"},{"key":"S2059866124006290_ref9","doi-asserted-by":"publisher","DOI":"10.1097\/NNR.0000000000000655"},{"key":"S2059866124006290_ref3","first-page":"1091","article-title":"Twenty years post-NIH revitalization act: enhancing minority participation in clinical trials (EMPaCT): laying the groundwork for improving minority clinical trial accrual: renewing the case for enhancing minority participation in cancer clinical trials","volume":"120","author":"Chen","year":"2014","journal-title":"Ann Ny Acad Sci"},{"key":"S2059866124006290_ref4","doi-asserted-by":"publisher","DOI":"10.1681\/ASN.0000000000000134"},{"key":"S2059866124006290_ref13","doi-asserted-by":"publisher","DOI":"10.1111\/cts.12167"},{"key":"S2059866124006290_ref16","doi-asserted-by":"publisher","DOI":"10.1002\/jclp.20584"},{"key":"S2059866124006290_ref17","unstructured":"17. Brown, A . Pew Research Center. The Unique Challenges of Surveying U.S. Latinos. https:\/\/www.pewresearch.org\/methods\/2015\/11\/12\/the-unique-challenges-of-surveying-u-s-latinos\/. November 12, 2025; Accessed March 30, 2024."},{"key":"S2059866124006290_ref18","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.0050091"},{"key":"S2059866124006290_ref8","doi-asserted-by":"publisher","DOI":"10.1002\/nur.22134"},{"key":"S2059866124006290_ref10","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2024.19"},{"key":"S2059866124006290_ref11","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2018.18"},{"key":"S2059866124006290_ref5","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2023.0026"},{"key":"S2059866124006290_ref6","doi-asserted-by":"publisher","DOI":"10.1111\/j.1752-8062.2011.00349.x"},{"key":"S2059866124006290_ref7","doi-asserted-by":"publisher","DOI":"10.1111\/j.1752-8062.2012.00443.x"},{"key":"S2059866124006290_ref15","doi-asserted-by":"publisher","DOI":"10.1080\/08964289.2019.1590799"},{"key":"S2059866124006290_ref19","first-page":"64981","article-title":"Clinical trials registration and results information submission","volume":"81","year":"2016","journal-title":"Fed Regist"},{"key":"S2059866124006290_ref1","unstructured":"1. The US Department of Health and Human Services, Office of Minority. Hispanic\/Latino Health. https:\/\/minorityhealth.hhs.gov\/hispaniclatino-health, 2024, Accessed March 30, 2024."},{"key":"S2059866124006290_ref2","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3182088260"},{"key":"S2059866124006290_ref12","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp1311461"}],"container-title":["Journal of Clinical and Translational Science"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S2059866124006290","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,10,29]],"date-time":"2024-10-29T08:46:27Z","timestamp":1730191587000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S2059866124006290\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024]]},"references-count":19,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024]]}},"alternative-id":["S2059866124006290"],"URL":"https:\/\/doi.org\/10.1017\/cts.2024.629","relation":{},"ISSN":["2059-8661"],"issn-type":[{"type":"electronic","value":"2059-8661"}],"subject":[],"published":{"date-parts":[[2024]]},"article-number":"e178"}}