{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T12:11:28Z","timestamp":1785413488303,"version":"3.56.0"},"reference-count":0,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2025,9,29]],"date-time":"2025-09-29T00:00:00Z","timestamp":1759104000000},"content-version":"unspecified","delay-in-days":271,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J. Clin. Trans. Sci."],"published-print":{"date-parts":[[2025]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S2059866125101556_as1\">\n                    <jats:title>Introduction:<\/jats:title>\n                    <jats:p>Endometriosis and chronic pelvic pain (CPP) are complex conditions that significantly impact quality of life. Few tools systematically capture patient-reported outcomes in this population. This pilot study evaluated patients\u2019 experiences and the perceived usability of an electronic Patient-Reported Outcome (ePRO) tool to assess its feasibility in supporting a clinical data registry. Associations between demographic\/clinical characteristics and ePRO usability were also explored.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2059866125101556_as2\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>This prospective observational study included patients enrolled at a tertiary endometriosis and CPP clinic who completed a REDCap-based ePRO survey remotely. The survey included demographic items and 13 validated instruments assessing pain, psychological distress, sensory processing, and quality of life. Usability was evaluated through an Online Questionnaire-Experiences Survey (OQES), covering accessibility, completion experience, redundancy, and content relevance. Descriptive statistics, t-tests, and Hedges\u2019 g were used for analysis; open-ended responses were thematically reviewed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2059866125101556_as3\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Fourteen patients were invited; 11 (78.6%) completed the full ePRO. Most found it easy to access (90.9%) with stable internet (100%). While 63.6% reported some redundancy, none reported discomfort, and 90.9% agreed the survey captured relevant experiences. Participants with higher Central Sensitization Inventory (CSI) and Generalized Anxiety Disorder-7 (GAD-7) scores were more likely to complete all items (\n                      <jats:italic>P<\/jats:italic>\n                      = 0.042 and .047). Those who did not perceive redundancy scored significantly higher on the Pain Catastrophizing Scale (\n                      <jats:italic>P<\/jats:italic>\n                      = .048) and Endometriosis Health Profile-30 (\n                      <jats:italic>P<\/jats:italic>\n                      = .016).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2059866125101556_as4\">\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The ePRO tool showed high feasibility. Patients with higher symptom burden were more likely to find it useful. Future improvements should reduce redundancy and clarify survey instructions.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/cts.2025.10155","type":"journal-article","created":{"date-parts":[[2025,9,29]],"date-time":"2025-09-29T09:31:07Z","timestamp":1759138267000},"source":"Crossref","is-referenced-by-count":1,"title":["Establishing an electronic patient-reported outcome (ePRO) for patients with endometriosis and chronic pelvic pain: A pilot feasibility study"],"prefix":"10.1017","volume":"9","author":[{"given":"Elizabeth","family":"Randle","sequence":"first","affiliation":[{"name":"IWK Health"},{"name":"Dalhousie University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6347-4620","authenticated-orcid":false,"given":"Raquel","family":"da Luz Dias","sequence":"additional","affiliation":[{"name":"IWK Health"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allana","family":"Munro","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/0064zg438","id-type":"ROR","asserted-by":"publisher"}],"name":"IWK Health"},{"id":[{"id":"https:\/\/ror.org\/01e6qks80","id-type":"ROR","asserted-by":"publisher"}],"name":"Dalhousie University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2025,9,29]]},"container-title":["Journal of Clinical and Translational Science"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S2059866125101556","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,4]],"date-time":"2025-11-04T08:00:53Z","timestamp":1762243253000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S2059866125101556\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025]]},"references-count":0,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025]]}},"alternative-id":["S2059866125101556"],"URL":"https:\/\/doi.org\/10.1017\/cts.2025.10155","relation":{},"ISSN":["2059-8661"],"issn-type":[{"value":"2059-8661","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025]]},"article-number":"e246"}}