{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T22:11:13Z","timestamp":1791670273777,"version":"4.3.4"},"reference-count":27,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2025,4,11]],"date-time":"2025-04-11T00:00:00Z","timestamp":1744329600000},"content-version":"unspecified","delay-in-days":100,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J. Clin. Trans. Sci."],"published-print":{"date-parts":[[2025]]},"abstract":"<jats:title>Abstract<\/jats:title>\n\t  <jats:p>Hidradenitis suppurativa (HS) is a chronic, painful inflammatory skin disease affecting 0.1% of the US population. Limited understanding of HS biology and ineffective treatments leave patients dissatisfied, facing misdiagnosis, and diagnostic delays. To address these challenges, the Rockefeller University Center for Clinical Translational Science, Clinical Directors Network, and the HS Foundation launched an initiative to foster engagement among stakeholders. Three full spectrum town halls (FSTH) were designed to engage patients, scientists, and clinicians bidirectionally. Topics spanned the translational research spectrum to amplify patient testimony, update the HS community on scientific and clinical research advances, and promote patient-centered research and care. The FSTH model aims to enhance empathy, foster trust, accelerate scientific discovery, and improve care. FSTH-2018 showcased patients\u2019 experiences living with HS, the scientific and clinical state of the art, and tailored a new HS study to patient preferences. FSTH-2021 shared results of the study, including new insights into HS biology. FSTH-2023 highlighted best practices for outpatient surgical care of HS. Participant feedback underscored FSTH\u2019s role in nurturing empathy and advancing discovery and patient engagement. FSTH serves as an effective model for uniting stakeholders, bridging gaps in knowledge and trust, and accelerating translational research to improve HS care.<\/jats:p>","DOI":"10.1017\/cts.2025.62","type":"journal-article","created":{"date-parts":[[2025,4,11]],"date-time":"2025-04-11T03:44:34Z","timestamp":1744343074000},"source":"Crossref","is-referenced-by-count":1,"title":["Full spectrum town halls for hidradenitis suppurativa: A model for advancing clinician\u2013patient\u2013researcher engagement in clinical and translational research"],"prefix":"10.1017","volume":"9","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3604-7869","authenticated-orcid":false,"given":"Anuradha","family":"Hashemi-Arend","sequence":"first","affiliation":[{"name":"The Rockefeller University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle A.","family":"Lowes","sequence":"additional","affiliation":[{"name":"The Hidradenitis Suppurativa (HS) Foundation"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John W.","family":"Frew","sequence":"additional","affiliation":[{"name":"Liverpool Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James","family":"Krueger","sequence":"additional","affiliation":[{"name":"The Rockefeller University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Athena","family":"Gierbolini","sequence":"additional","affiliation":[{"name":"The Hidradenitis Suppurativa (HS) Foundation"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monisa","family":"Nayim","sequence":"additional","affiliation":[{"name":"Clinical Directors Network (CDN)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Samanoglu","sequence":"additional","affiliation":[{"name":"Clinical Directors Network (CDN)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"PaMalick","family":"Mbye","sequence":"additional","affiliation":[{"name":"Clinical Directors Network (CDN)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fahim","family":"Shahriar","sequence":"additional","affiliation":[{"name":"Clinical Directors Network (CDN)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4722-539X","authenticated-orcid":false,"given":"Jonathan N.","family":"Tobin","sequence":"additional","affiliation":[{"name":"The Rockefeller University"},{"name":"Clinical Directors Network (CDN)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5419-0589","authenticated-orcid":false,"given":"Rhonda G.","family":"Kost","sequence":"additional","affiliation":[{"name":"The Rockefeller University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2025,4,11]]},"reference":[{"key":"S2059866125000627_ref17","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000001200"},{"key":"S2059866125000627_ref18","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2020.571"},{"key":"S2059866125000627_ref16","unstructured":"16. Centers for Primary Care Practice-Based Research and Learning. Agency for Healthcare Research and Quality; 2015, (https:\/\/www.ahrq.gov\/sites\/default\/files\/wysiwyg\/ncepcr\/resources\/pbrn-p30-overview.pdf) Accessed December 23, 2024."},{"key":"S2059866125000627_ref7","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-021-07008-9"},{"key":"S2059866125000627_ref12","first-page":"613","article-title":"Racial disparities of delay in diagnosis and dermatologic care for hidradenitis suppurativa","volume":"114","author":"Serrano","year":"2022","journal-title":"J Natl Med Assoc"},{"key":"S2059866125000627_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.jdin.2021.01.007"},{"key":"S2059866125000627_ref4","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.20749"},{"key":"S2059866125000627_ref13","first-page":"e41190","article-title":"Unmasking racial disparity in the diagnosis and treatment of hidradenitis suppurativa","volume":"15","author":"Anthony","year":"2023","journal-title":"Cureus"},{"key":"S2059866125000627_ref15","unstructured":"15. Clinical Directors Network, Inc. (CDN) | Practice-Based Research Network. Clinical Directors Network, Inc., (https:\/\/www.cdnetwork.org\/) Accessed December 23, 2024."},{"key":"S2059866125000627_ref19","doi-asserted-by":"publisher","DOI":"10.1016\/j.numecd.2022.05.018"},{"key":"S2059866125000627_ref6","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2019.06.1301"},{"key":"S2059866125000627_ref20","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2020.574"},{"key":"S2059866125000627_ref9","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp13X660814"},{"key":"S2059866125000627_ref23","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000000794"},{"key":"S2059866125000627_ref22","doi-asserted-by":"publisher","DOI":"10.1111\/exd.13336"},{"key":"S2059866125000627_ref24","doi-asserted-by":"publisher","DOI":"10.1001\/jamadermatol.2022.6266"},{"key":"S2059866125000627_ref8","doi-asserted-by":"publisher","DOI":"10.5116\/ijme.4d00.b701"},{"key":"S2059866125000627_ref10","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.18818"},{"key":"S2059866125000627_ref2","doi-asserted-by":"publisher","DOI":"10.1001\/jamadermatol.2017.0201"},{"key":"S2059866125000627_ref21","doi-asserted-by":"publisher","DOI":"10.4049\/jimmunol.1800013"},{"key":"S2059866125000627_ref25","unstructured":"25. Translational Science Spectrum. National Center for Advancing Translational Sciences. March 12, 2015, (https:\/\/ncats.nih.gov\/translation\/spectrum) Accessed September 20, 2023."},{"key":"S2059866125000627_ref14","doi-asserted-by":"publisher","DOI":"10.1007\/s00403-022-02510-4"},{"key":"S2059866125000627_ref3","doi-asserted-by":"publisher","DOI":"10.1001\/jamadermatol.2023.2217"},{"key":"S2059866125000627_ref1","doi-asserted-by":"publisher","DOI":"10.1001\/jamadermatol.2023.0486"},{"key":"S2059866125000627_ref26","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2020.05.007"},{"key":"S2059866125000627_ref27","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaci.2020.12.651"},{"key":"S2059866125000627_ref5","unstructured":"5. FDA Approves Bimekizumab for Adults with Moderate to Severe HS. Dermatology Times. November 20, 2024, (https:\/\/www.dermatologytimes.com\/view\/fda-approves-bimekizumab-for-adults-with-moderate-to-severe-hs) Accessed November 26, 2024."}],"container-title":["Journal of Clinical and Translational Science"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S2059866125000627","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,7]],"date-time":"2025-10-07T15:48:28Z","timestamp":1759852108000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S2059866125000627\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025]]},"references-count":27,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025]]}},"alternative-id":["S2059866125000627"],"URL":"https:\/\/doi.org\/10.1017\/cts.2025.62","relation":{},"ISSN":["2059-8661"],"issn-type":[{"value":"2059-8661","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025]]},"article-number":"e96"}}