{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T14:13:41Z","timestamp":1788790421534,"version":"build-2803163510"},"reference-count":29,"publisher":"Cambridge University Press (CUP)","issue":"2","license":[{"start":{"date-parts":[[2014,9,23]],"date-time":"2014-09-23T00:00:00Z","timestamp":1411430400000},"content-version":"unspecified","delay-in-days":206,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Can. J. Neurol. Sci."],"published-print":{"date-parts":[[2014,3]]},"abstract":"<jats:sec id=\"S0317167100016656_abs1\">\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>This study describes the socio-demographic and clinical profile of persons with amyotrophic lateral sclerosis (ALS) in home care, nursing homes and complex continuing care settings in several Canadian jurisdictions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0317167100016656_abs2\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>A cross-sectional study was conducted using available Resident Assessment Instrument (RAI 2.0 and RAI Home Care) national databases from 1996- 2011. The profile of ALS patients was compared with patients without pre-specified neurological conditions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0317167100016656_abs3\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>There were 2,092 ALS patients identified in these settings. Persons with ALS were more likely than those in the comparison group to suffer from health instability (25.4%) and minor to major depressive symptoms (27.2%) , to experience falls (44.0%) and weight loss (22.9%), to require extensive assistance in activities of daily living (54.9%), and to receive rehabilitation services: physical (23.9%), speech language pathology (8.9%), and occupational therapy 43.3%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0317167100016656_abs4\">\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The ALS population in this study are greatly affected by a number of health issues. They are more likely than the comparison group to require therapies, medical interventions, and psychotropic drug use. While persons with ALS have a poor prognosis, a great deal could be done to enhance their quality of life and the quality of care they receive.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s0317167100016656","type":"journal-article","created":{"date-parts":[[2014,12,2]],"date-time":"2014-12-02T12:13:12Z","timestamp":1417522392000},"page":"246-252","source":"Crossref","is-referenced-by-count":13,"title":["Profile of Patients with Amyotrophic Lateral Sclerosis Across Continuum of Care"],"prefix":"10.1017","volume":"41","author":[{"given":"Vahe","family":"Kehyayan","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lawrence","family":"Korngut","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie","family":"Jett\u00e9","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John P.","family":"Hirdes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2014,9,23]]},"reference":[{"key":"S0317167100016656_ref016","doi-asserted-by":"publisher","DOI":"10.1034\/j.1601-5215.2002.51017.x"},{"key":"S0317167100016656_ref001","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(10)61156-7"},{"key":"S0317167100016656_ref019","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/41.2.173"},{"key":"S0317167100016656_ref010","unstructured":"Canadian Institute for Health Information. Home care reporting system. [cited 2013 Feb 12] Available from: http:\/\/www.cihi.ca\/cihi-ext-portal\/internet\/en\/document\/types+of+care\/community+care\/home+care\/hcrs_metadata."},{"key":"S0317167100016656_ref006","doi-asserted-by":"publisher","DOI":"10.2217\/nmt.11.54"},{"key":"S0317167100016656_ref014","doi-asserted-by":"publisher","DOI":"10.1093\/geronj\/49.4.M174"},{"key":"S0317167100016656_ref027","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000257093.53430.a8"},{"key":"S0317167100016656_ref012","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0b013e3181789471"},{"key":"S0317167100016656_ref003","volume-title":"Amyotrophic lateral sclerosis","author":"Miller","year":"2005"},{"key":"S0317167100016656_ref002","volume-title":"Amyotrophic lateral sclerosis","author":"Murray","year":"2006"},{"key":"S0317167100016656_ref020","doi-asserted-by":"publisher","DOI":"10.1017\/S071498080001391X"},{"key":"S0317167100016656_ref021","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-8-277"},{"key":"S0317167100016656_ref009","unstructured":"Canadian Institute for Health Information. 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