{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T09:30:21Z","timestamp":1785403821549,"version":"3.56.0"},"reference-count":38,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T00:00:00Z","timestamp":1780531200000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Can. J. Aging"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S0714980826100725_sec01\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Receiving a dementia diagnosis is a complex experience that can provide clarity about symptoms but often creates uncertainty. Support during and after diagnosis is essential to help individuals navigate living with dementia. This qualitative descriptive study examined experiences during and after diagnosis among people with dementia and care partners in New Brunswick, Ontario, and Quebec.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0714980826100725_sec02\" sec-type=\"methods\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Interviews with 5 people with dementia and 15 care partners were conducted and then analysed using qualitative content analysis to identify barriers, facilitators, and contextual influences related to a positive experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0714980826100725_sec03\" sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Barriers included limited resources, poorly coordinated care, disorganized diagnostic pathways, and stigma. Facilitators included access to information, person-centred care, support networks, recognition of personhood, and structured care navigation. The COVID-19 pandemic further shaped experiences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S0714980826100725_sec04\" sec-type=\"conclusions\">\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Findings highlight the importance of compassionate care, accessible information, and coordinated services while underscoring systemic gaps, stigma, and the impact of the pandemic.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s0714980826100725","type":"journal-article","created":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T07:43:51Z","timestamp":1780559031000},"page":"1-10","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Exploring Diagnostic and Post-Diagnostic Care Experiences among People Living with Dementia and Care Partners in Canada: A Qualitative Study"],"prefix":"10.1017","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2616-7290","authenticated-orcid":false,"given":"Emma","family":"Conway","sequence":"first","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01aff2v68","id-type":"ROR","asserted-by":"publisher"}],"name":"University of Waterloo"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shelley","family":"Doucet","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/05nkf0n29","id-type":"ROR","asserted-by":"publisher"}],"name":"University of New Brunswick Saint John"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carrie","family":"McAiney","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01aff2v68","id-type":"ROR","asserted-by":"publisher"}],"name":"University of Waterloo"},{"id":[{"id":"https:\/\/ror.org\/04syzjx81","id-type":"ROR","asserted-by":"publisher"}],"name":"Schlegel-UW Research Institute for Aging"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabelle","family":"Vedel","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01pxwe438","id-type":"ROR","asserted-by":"publisher"}],"name":"McGill University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy E.","family":"Reid","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/05nkf0n29","id-type":"ROR","asserted-by":"publisher"}],"name":"University of New Brunswick Saint John"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alison","family":"Luke","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/05nkf0n29","id-type":"ROR","asserted-by":"publisher"}],"name":"University of New Brunswick Saint John"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,6,4]]},"reference":[{"key":"S0714980826100725_r4","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0260506"},{"key":"S0714980826100725_r9","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2013-004439"},{"key":"S0714980826100725_r39","unstructured":"World Health Organization. (2023). Dementia fact sheet. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"},{"key":"S0714980826100725_r31","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12036"},{"key":"S0714980826100725_r2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2024.1261113"},{"key":"S0714980826100725_r27","volume-title":"Qualitative data analysis: A methods sourcebook","author":"Miles","year":"2014"},{"key":"S0714980826100725_r3","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0983-0"},{"key":"S0714980826100725_r20","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-017-1474-0"},{"key":"S0714980826100725_r25","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-016-0506-z"},{"key":"S0714980826100725_r1","doi-asserted-by":"publisher","DOI":"10.5770\/cgj.15.42"},{"key":"S0714980826100725_r7","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1001331"},{"key":"S0714980826100725_r12","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-016-0280-8"},{"key":"S0714980826100725_r37","doi-asserted-by":"publisher","DOI":"10.1037\/14297-012"},{"key":"S0714980826100725_r17","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2025.17"},{"key":"S0714980826100725_r8","doi-asserted-by":"publisher","DOI":"10.5770\/cgj.28.776"},{"key":"S0714980826100725_r11","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph18020686"},{"key":"S0714980826100725_r22","doi-asserted-by":"publisher","DOI":"10.1016\/j.aggp.2025.100217"},{"key":"S0714980826100725_r38","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afab114"},{"key":"S0714980826100725_r5","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2022.769360"},{"key":"S0714980826100725_r26","doi-asserted-by":"publisher","DOI":"10.1017\/S0714980821000441"},{"key":"S0714980826100725_r6","doi-asserted-by":"publisher","DOI":"10.3928\/19404921-20090101-04"},{"key":"S0714980826100725_r10","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"S0714980826100725_r14","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.327.7425.1219"},{"key":"S0714980826100725_r19","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610212000841"},{"key":"S0714980826100725_r23","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"S0714980826100725_r24","first-page":"647","article-title":"Experiences and perceptions of spousal\/partner caregivers providing care for community-dwelling adults with dementia: A qualitative systematic review","volume":"18","author":"Macdonald","year":"2020","journal-title":"JBI Evidence Synthesis"},{"key":"S0714980826100725_r35","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0816-1"},{"key":"S0714980826100725_r36","doi-asserted-by":"publisher","DOI":"10.1177\/1471301216659213"},{"key":"S0714980826100725_r33","doi-asserted-by":"publisher","DOI":"10.1002\/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G"},{"key":"S0714980826100725_r32","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1159280"},{"key":"S0714980826100725_r18","doi-asserted-by":"publisher","DOI":"10.1186\/1745-6215-13-142"},{"key":"S0714980826100725_r16","doi-asserted-by":"publisher","DOI":"10.1002\/gps.5916"},{"key":"S0714980826100725_r28","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-024-04665-3"},{"key":"S0714980826100725_r21","doi-asserted-by":"publisher","DOI":"10.1080\/13607869757344"},{"key":"S0714980826100725_r30","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610219002229"},{"key":"S0714980826100725_r34","doi-asserted-by":"crossref","unstructured":"Shi, J. 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Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer\u2019s and Dementia Caregivers. arXiv preprint arXiv:2506.14196.","DOI":"10.1145\/3757555"},{"key":"S0714980826100725_r29","doi-asserted-by":"publisher","DOI":"10.1007\/s10488-013-0528-y"},{"key":"S0714980826100725_r13","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12949"}],"container-title":["Canadian Journal on Aging \/ La Revue canadienne du vieillissement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S0714980826100725","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T07:44:00Z","timestamp":1780559040000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S0714980826100725\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,4]]},"references-count":38,"alternative-id":["S0714980826100725"],"URL":"https:\/\/doi.org\/10.1017\/s0714980826100725","relation":{},"ISSN":["0714-9808","1710-1107"],"issn-type":[{"value":"0714-9808","type":"print"},{"value":"1710-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,4]]},"assertion":[{"value":"\u00a9 The Author(s), 2026. Published by Cambridge University Press on behalf of The Canadian Association on Gerontology","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}