{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T20:46:14Z","timestamp":1786999574635,"version":"build-2736575974"},"reference-count":36,"publisher":"Cambridge University Press (CUP)","issue":"7","license":[{"start":{"date-parts":[[2017,6,6]],"date-time":"2017-06-06T00:00:00Z","timestamp":1496707200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["www.cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2017,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1047951117000270_abs1\" sec-type=\"general\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To evaluate the experiences of parenting a child with hypoplastic left heart syndrome after the child has been discharged home from hospital.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951117000270_abs2\" sec-type=\"general\">\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A study of the parents\u2019 experiences using face-to-face interviews and psychometric measures with parents whose child had survived stage surgery.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951117000270_abs3\" sec-type=\"general\">\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Parents were interviewed within the home environment or within the hospital if that was their choice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951117000270_abs4\" sec-type=\"subjects\">\n                    <jats:title>Subjects<\/jats:title>\n                    <jats:p>A total of 29 parents (16 mothers and 13 fathers) of surviving children.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951117000270_abs5\" sec-type=\"general\">\n                    <jats:title>Intervention<\/jats:title>\n                    <jats:p>A semi-structured face-to-face interview plus psychometric tests (parent demographics, Maslach Burnout Inventory, Impact on Family Scale, and the Psychological Check List \u2013 Civilian).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951117000270_abs6\" sec-type=\"general\">\n                    <jats:title>Measurements and main results<\/jats:title>\n                    <jats:p>The parents\u2019 experience in supporting a child with hypoplastic left heart syndrome is one of stress, of commitment, and of love. Although parents experienced joy in their child, they were also subjected to anxiety with four parents test positive to post-traumatic stress disorder and hypervigilance while monitoring their child\u2019s condition. Parents lived with many difficulties, and demands.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1047951117000270","type":"journal-article","created":{"date-parts":[[2017,6,6]],"date-time":"2017-06-06T03:39:27Z","timestamp":1496720367000},"page":"1341-1348","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":16,"title":["Parenting a child at home with hypoplastic left heart syndrome: experiences of commitment, of stress, and of love"],"prefix":"10.1017","volume":"27","author":[{"given":"Annie M.","family":"Cantwell-Bartl","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4433-004X","authenticated-orcid":false,"given":"James","family":"Tibballs","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2017,6,6]]},"reference":[{"key":"S1047951117000270_ref6","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-013-0679-3"},{"key":"S1047951117000270_ref21","first-page":"31","article-title":"Parental vigilance in caring for their children with hypoplastic left heart syndrome","volume":"41","author":"Meakins","year":"2015","journal-title":"Pediatr Nurs"},{"key":"S1047951117000270_ref18","unstructured":"Australian Psychological Society. Post Traumatic Stress Disorder. Australian Psychological Society, Melbourne, Victoria, Australia, 2015."},{"key":"S1047951117000270_ref24","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951109003485"},{"key":"S1047951117000270_ref27","doi-asserted-by":"publisher","DOI":"10.1177\/1367493509336684"},{"key":"S1047951117000270_ref5","first-page":"203","article-title":"Neuropsychological outcome in children with hypoplastic left heart syndrome","volume":"108","author":"Bordacova","year":"2007","journal-title":"Bratisl Lek Listy"},{"key":"S1047951117000270_ref31","unstructured":"Weathers FW , Litz BT , Herman DS , Huska JA , Keane TM . The PTSD checklist (PCL): reliability, validity, and diagnostic utility. 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Parenting a child with HLHS whose infant includes the Norwood surgical approach. Doctoral dissertation, University of Alberta, Edmonton, Canada, 2005."},{"key":"S1047951117000270_ref26","first-page":"714178","article-title":"Facets of parenting a child with hypoplastic left heart syndrome","volume":"2012","author":"Rempel","year":"2012","journal-title":"Nurs Res Pract"},{"key":"S1047951117000270_ref36","doi-asserted-by":"publisher","DOI":"10.1207\/s15327965pli1501_01"},{"key":"S1047951117000270_ref32","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq004"},{"key":"S1047951117000270_ref22","doi-asserted-by":"publisher","DOI":"10.1111\/j.1744-6155.2011.00289.x"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951117000270","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,10,9]],"date-time":"2020-10-09T10:16:35Z","timestamp":1602238595000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951117000270\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6,6]]},"references-count":36,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2017,9]]}},"alternative-id":["S1047951117000270"],"URL":"https:\/\/doi.org\/10.1017\/s1047951117000270","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,6,6]]},"assertion":[{"value":"\u00a9 Cambridge University Press 2017\u00a0","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}}]}}