{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,3]],"date-time":"2026-10-03T15:20:06Z","timestamp":1791040806182,"version":"4.1.0"},"reference-count":28,"publisher":"Cambridge University Press (CUP)","issue":"5","license":[{"start":{"date-parts":[[2020,4,14]],"date-time":"2020-04-14T00:00:00Z","timestamp":1586822400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2020,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951120000803_as1\" sec-type=\"other\"><jats:title>Background:<\/jats:title><jats:p>We evaluated a cohort of 35 children diagnosed with long QT syndrome, catecholaminergic polymorphic ventricular tachycardia, hypertrophic cardiomyopathy, or arrhythmogenic right ventricular cardiomyopathy with regard to physical and psychosocial well-being.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951120000803_as2\" sec-type=\"other\"><jats:title>Material and Methods:<\/jats:title><jats:p>Patients wore an accelerometer to record their time involved in moderate- to vigorous-intensity physical activity and completed the Pediatric Quality of Life Inventory and the Pediatric Cardiac Quality of Life Inventory. Parents were also asked to describe if their child had changed their physical activity because of their diagnosis and how difficult and upsetting it was for the child to adapt to the physical activity recommendations.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951120000803_as3\" sec-type=\"other\"><jats:title>Results:<\/jats:title><jats:p>Patients were involved in less moderate- to vigorous-intensity physical activity per day (35 min\/day versus 55 min\/day) and had lower Pediatric Quality of Life Inventory total health scores (79 versus 84) compared to normative data. Overall, 51% of the cohort modified their physical activity in some way because of their diagnosis and changing physical activity was associated with lower Pediatric Quality of Life Inventory and Pediatric Cardiac Quality of Life Inventory scores.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951120000803_as4\" sec-type=\"other\"><jats:title>Conclusion:<\/jats:title><jats:p>Our cohort was involved in less moderate- to vigorous-intensity physical activity and had lower Pediatric Quality of Life Inventory total health scores compared to normative paediatric data. Modifying one\u2019s physical activity was associated with worse health-related quality of life scores, highlighting a vulnerable sub-group of children. These findings are useful for families and healthcare professionals caring for children who are adjusting to a new cardiac diagnosis of an inherited arrhythmia or cardiomyopathy.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951120000803","type":"journal-article","created":{"date-parts":[[2020,4,14]],"date-time":"2020-04-14T13:00:02Z","timestamp":1586869202000},"page":"692-697","source":"Crossref","is-referenced-by-count":14,"title":["The impact of physical activity modification on the well-being of a cohort of children with an inherited arrhythmia or cardiomyopathy"],"prefix":"10.1017","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5248-3049","authenticated-orcid":false,"given":"Susan","family":"Christian","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Somerville","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sherry","family":"Taylor","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John C.","family":"Spence","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Giuffre","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Atallah","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2020,4,14]]},"reference":[{"key":"S1047951120000803_ref28","doi-asserted-by":"publisher","DOI":"10.1080\/02701367.2015.1129046"},{"key":"S1047951120000803_ref26","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-5-43"},{"key":"S1047951120000803_ref24","doi-asserted-by":"publisher","DOI":"10.1016\/j.ppedcard.2018.04.001"},{"key":"S1047951120000803_ref23","doi-asserted-by":"publisher","DOI":"10.1249\/JSR.0000000000000170"},{"key":"S1047951120000803_ref22","doi-asserted-by":"publisher","DOI":"10.1136\/openhrt-2016-000484"},{"key":"S1047951120000803_ref18","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-010-9731-4"},{"key":"S1047951120000803_ref17","unstructured":"17. Varni, J . Pediatric Quality of Life Inventory. http:\/\/www.pedsql.org\/. Published 2016."},{"key":"S1047951120000803_ref16","first-page":"359","article-title":"Assessment of leisure time exercise behavior by self-report: A concurrent validity study","volume":"77","author":"Godin","year":"1986","journal-title":"Can J Public Health"},{"key":"S1047951120000803_ref15","doi-asserted-by":"publisher","DOI":"10.1136\/openhrt-2016-000488"},{"key":"S1047951120000803_ref14","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2005.02.015"},{"key":"S1047951120000803_ref13","doi-asserted-by":"publisher","DOI":"10.1249\/01.mss.0000185657.86065.98"},{"key":"S1047951120000803_ref12","doi-asserted-by":"publisher","DOI":"10.1080\/02640410802334196"},{"key":"S1047951120000803_ref10","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehi325"},{"key":"S1047951120000803_ref2","doi-asserted-by":"publisher","DOI":"10.1097\/HJR.0b013e3282f55e09"},{"key":"S1047951120000803_ref1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jsams.2017.09.595"},{"key":"S1047951120000803_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.jelectrocard.2014.12.018"},{"key":"S1047951120000803_ref9","first-page":"e273","article-title":"Eligibility and disqualification recommendations for competitive athletes with cardiovascular abnormalities: Task force 3: Hypertrophic cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy and other cardiomyopathies, and myocarditis: A scientif","volume":"132","author":"Maron","year":"2015","journal-title":"Circulation"},{"key":"S1047951120000803_ref20","first-page":"3","article-title":"Parent-child association in physical activity and sedentary behaviour","volume":"28","author":"Garriguet","year":"2017","journal-title":"Heal Reports"},{"key":"S1047951120000803_ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcjd.2017.10.008"},{"key":"S1047951120000803_ref27","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-018-0218-8"},{"key":"S1047951120000803_ref19","first-page":"8","article-title":"Physical activity of Canadian children and youth, 2007 to 2015","volume":"28","author":"Colley","year":"2017","journal-title":"Heal Reports"},{"key":"S1047951120000803_ref7","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2013.06.033"},{"key":"S1047951120000803_ref21","doi-asserted-by":"publisher","DOI":"10.1367\/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2"},{"key":"S1047951120000803_ref8","doi-asserted-by":"publisher","DOI":"10.1002\/ejhf.181"},{"key":"S1047951120000803_ref6","unstructured":"6. Canadian Society for Exercise Physiology (CESP). Canadian Physical Activity Guidelines. http:\/\/csep.ca\/CMFiles\/Guidelines\/CSEP_PAGuidelines_0-65plus_en.pdf. Published 2019. Accessed June 11, 2019."},{"key":"S1047951120000803_ref5","doi-asserted-by":"publisher","DOI":"10.1136\/bjsports-2017-098391"},{"key":"S1047951120000803_ref25","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2015.11.051"},{"key":"S1047951120000803_ref3","doi-asserted-by":"publisher","DOI":"10.1097\/00001504-200503000-00013"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951120000803","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,5,19]],"date-time":"2020-05-19T11:40:25Z","timestamp":1589888425000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951120000803\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,4,14]]},"references-count":28,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2020,5]]}},"alternative-id":["S1047951120000803"],"URL":"https:\/\/doi.org\/10.1017\/s1047951120000803","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,4,14]]}}}