{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,14]],"date-time":"2026-01-14T23:55:42Z","timestamp":1768434942755,"version":"3.49.0"},"reference-count":18,"publisher":"Cambridge University Press (CUP)","issue":"2","license":[{"start":{"date-parts":[[2021,5,10]],"date-time":"2021-05-10T00:00:00Z","timestamp":1620604800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2022,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951121001736_as1\"><jats:title>Purpose:<\/jats:title><jats:p>The purpose of this study is to identify gaps in support for parents of children with Hypoplastic Left Heart Syndrome.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951121001736_as2\"><jats:title>Design and methods:<\/jats:title><jats:p>Using a mixed-methods approach, the researchers first studied the parental and care team experience through interviews of Hypoplastic Left Heart Syndrome mothers and members of the inter-professional care team and then conducted an international survey of 690 Hypoplastic Left Heart Syndrome primary caregivers to validate the qualitative findings.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951121001736_as3\"><jats:title>Results:<\/jats:title><jats:p>Parental and care team interviews revealed three main gaps in parental support, including lack of open communication, unrealistic parental expectations, and unclear inter-professional team roles. Survey results found that parents whose children were diagnosed with Hypoplastic Left Heart Syndrome after birth indicated significant dissatisfaction with the care team\u2019s open communication and welcoming of feedback (p = 0.008). As parents progress through the stages of surgical intervention, they also indicate significant dissatisfaction with the care team\u2019s anticipation of parental emotional needs and provision of coping resources (p = 0.003).<\/jats:p><\/jats:sec><jats:sec id=\"S1047951121001736_as4\"><jats:title>Conclusions:<\/jats:title><jats:p>Parental support interventions should focus on providing resources to help parents cope, helping the care team model open communication, and welcoming feedback on the parental experience.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951121001736_as5\"><jats:title>Practice implications:<\/jats:title><jats:p>Interventions should be piloted with parents who are in the later stages of the surgical intervention timeline or whose children were diagnosed after birth as they are the populations who perceived the least support within this study.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951121001736","type":"journal-article","created":{"date-parts":[[2021,5,10]],"date-time":"2021-05-10T06:26:31Z","timestamp":1620627991000},"page":"215-222","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":6,"title":["Identifying gaps in parental support for families of children with hypoplastic left heart syndrome"],"prefix":"10.1017","volume":"32","author":[{"given":"Meghan","family":"Landry","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Meghan","family":"Katers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erica","family":"Olson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lynn","family":"Cern","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Timothy J","family":"Nelson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4571-3149","authenticated-orcid":false,"given":"Katherine A","family":"Campbell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2021,5,10]]},"reference":[{"key":"S1047951121001736_ref16","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtcvs.2015.12.032"},{"key":"S1047951121001736_ref2","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-012-0455-9"},{"key":"S1047951121001736_ref17","unstructured":"17. Goldberg, D (2014, April 02). Hypoplastic Left Heart Syndrome (HLHS). Retrieved August 22, 2020, from https:\/\/www.chop.edu\/conditions-diseases\/hypoplastic-left-heart-syndrome-hlhs"},{"key":"S1047951121001736_ref14","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-017-1601-1"},{"key":"S1047951121001736_ref13","doi-asserted-by":"publisher","DOI":"10.1093\/pch\/5.4.219"},{"key":"S1047951121001736_ref12","doi-asserted-by":"publisher","DOI":"10.1097\/ANC.0000000000000679"},{"key":"S1047951121001736_ref8","doi-asserted-by":"publisher","DOI":"10.1111\/chd.12547"},{"key":"S1047951121001736_ref11","doi-asserted-by":"publisher","DOI":"10.1176\/appi.psy.50.2.131"},{"key":"S1047951121001736_ref15","unstructured":"15. Center for Disease Control and Prevention. (2016) Facts about Hypoplastic Left Heart Syndrome. Retrieved from https:\/\/www.cdc.gov\/ncbddd\/heartdefects\/hlhs.html"},{"key":"S1047951121001736_ref1","unstructured":"1. Mayo Clinic Staff. (2018, August 04). Hypoplastic left heart syndrome. Retrieved August 22, 2020, from https:\/\/www.mayoclinic.org\/diseases-conditions\/hypoplastic-left-heart-syndrome\/symptoms-causes\/syc-20350599"},{"key":"S1047951121001736_ref10","first-page":"60","article-title":"Launching a new strategy for multidisciplinary management of single-ventricle heart defects","volume":"38","author":"Davis","year":"2018","journal-title":"CCN"},{"key":"S1047951121001736_ref6","doi-asserted-by":"publisher","DOI":"10.1097\/ANC.0b013e3181fc7c5d"},{"key":"S1047951121001736_ref3","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.158.5.436"},{"key":"S1047951121001736_ref5","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-1678"},{"key":"S1047951121001736_ref9","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.116.004862"},{"key":"S1047951121001736_ref4","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12185"},{"key":"S1047951121001736_ref18","volume-title":"Waiting with Gabriel","author":"Kuebelbeck","year":"2003"},{"key":"S1047951121001736_ref7","doi-asserted-by":"publisher","DOI":"10.1155\/2012\/714178"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951121001736","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,2,9]],"date-time":"2022-02-09T12:10:08Z","timestamp":1644408608000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951121001736\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,5,10]]},"references-count":18,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2022,2]]}},"alternative-id":["S1047951121001736"],"URL":"https:\/\/doi.org\/10.1017\/s1047951121001736","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,5,10]]},"assertion":[{"value":"\u00a9 The Author(s), 2021. 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