{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,11]],"date-time":"2025-12-11T07:40:57Z","timestamp":1765438857902,"version":"3.40.5"},"reference-count":30,"publisher":"Cambridge University Press (CUP)","issue":"12","license":[{"start":{"date-parts":[[2023,4,3]],"date-time":"2023-04-03T00:00:00Z","timestamp":1680480000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2023,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951123000677_as1\"><jats:title>Aim:<\/jats:title><jats:p>To investigate the opinion and personal experience of parents of children born with Hypoplastic Left Heart Syndrome and what advice they would give to other parents who have to decide between treatment options.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123000677_as2\"><jats:title>Methods:<\/jats:title><jats:p>We conducted a qualitative, descriptive and retrospective study by means of a survey directed to parents of children born with Hypoplastic Left Heart Syndrome in a tertiary hospital in Buenos Aires (Argentina). Their answers and data regarding medical procedures were analysed.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123000677_as3\"><jats:title>Results:<\/jats:title><jats:p>Parents of thirteen out of sixteen patients with Hypoplastic Left Heart Syndrome were surveyed. Norwood surgery had been performed in all the patients, many had received other procedures, and five had died. In relation to the decision-making process, sixty-one percent of parents would recommend other parents to remain at peace after having done everything possible and 54% would suggest to not feel guilt despite the final result. None of the parents would recommend rejecting surgical treatment and choosing comfort care.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123000677_as4\"><jats:title>Conclusion:<\/jats:title><jats:p>The majority of parents of children with Hypoplastic Left Heart Syndrome would recommend continuing with the therapeutic effort in order to feel at peace and reduce feelings of guilt.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951123000677","type":"journal-article","created":{"date-parts":[[2023,4,3]],"date-time":"2023-04-03T09:06:05Z","timestamp":1680512765000},"page":"2553-2558","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":4,"title":["Experiences of parents of children with hypoplastic left heart syndrome during their treatment: a qualitative study"],"prefix":"10.1017","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4693-424X","authenticated-orcid":false,"given":"Agust\u00edn","family":"Silberberg","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Josefina","family":"Castro M\u00e9ndez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Silvio F.","family":"Torres","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rafael","family":"Fraire","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alejandro","family":"Siaba Serrate","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian","family":"Kreutzer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mariana","family":"L\u00f3pez Daneri","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas","family":"Iolster","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2023,4,3]]},"reference":[{"doi-asserted-by":"publisher","key":"S1047951123000677_ref27","DOI":"10.1542\/peds.2008-2061"},{"key":"S1047951123000677_ref8","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1034\/j.1600-0412.2001.080003224.x","article-title":"Prenatal diagnosis of six major cardiac malformations in Europe--a population based study","volume":"80","author":"Garne","year":"2001","journal-title":"Acta Obs Gynecol Scand"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref19","DOI":"10.2190\/G41E-RKTF-P0XD-LJLK"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref2","DOI":"10.1017\/S1047951114001590"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref25","DOI":"10.1016\/j.jtcvs.2015.08.107"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref1","DOI":"10.1017\/S1047951116001062"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref9","DOI":"10.1093\/pch\/17.8.e86"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref12","DOI":"10.1542\/peds.2016-1730"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref20","DOI":"10.1080\/15265161.2017.1314707"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref22","DOI":"10.1177\/1074840720987309"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref17","DOI":"10.1097\/TA.0000000000001836"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref28","DOI":"10.1016\/j.earlhumdev.2009.08.007"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref21","DOI":"10.1111\/jocn.13694"},{"doi-asserted-by":"publisher","key":"S1047951123000677_ref26","DOI":"10.1542\/peds.2019-1010"},{"unstructured":"29. 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