{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T21:42:22Z","timestamp":1789508542224,"version":"build-2803163510"},"reference-count":32,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2023,5,25]],"date-time":"2023-05-25T00:00:00Z","timestamp":1684972800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951123001282_as1\"><jats:title>Objective:<\/jats:title><jats:p>The paediatric cardiac ICU presents unique challenges to optimal communication practices, which may impact participation in medical decision-making and long-term psychosocial outcomes for families. This study characterised parent perceptions of (1) team practices that impeded or facilitated communication and (2) preparation for family meetings with interprofessional care teams during extended cardiac ICU admissions.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001282_as2\"><jats:title>Methods:<\/jats:title><jats:p>A purposive sample of parents of children admitted to the cardiac ICU was selected to participate in interviews about their communication experiences. Data were analysed using a grounded theory approach.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001282_as3\"><jats:title>Results:<\/jats:title><jats:p>Twenty-three parents of 18 patients participated with an average length of stay of 55 days at the time of interview. Team practices that impeded communication included inaccurate\/incomplete communication, inconsistent within team communication\/coordination, and feeling overwhelmed by too many team members\/questions. Team practices that facilitated communication included valuing parent preferences, provider continuity, explaining jargon, and eliciting questions. Preparation for family meetings included team practices, parental preferences, and experiences when learning about family meetings (including apprehension about meetings). Family meetings were described as valued opportunities to improve communication.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001282_as4\"><jats:title>Conclusion:<\/jats:title><jats:p>Communication with medical teams represents a modifiable determinant of long-term outcomes for families of children in the cardiac ICU. When parents are included as valued members of their child\u2019s care team, they are more likely to feel a sense of control over their child\u2019s outcomes, even in the face of prognostic uncertainty. Family meetings represent an important opportunity to repair fractures in trust between families and care teams and overcome barriers to communication between parties.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951123001282","type":"journal-article","created":{"date-parts":[[2023,5,25]],"date-time":"2023-05-25T07:21:58Z","timestamp":1684999318000},"page":"113-119","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":10,"title":["Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study"],"prefix":"10.1017","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2644-936X","authenticated-orcid":false,"given":"Colette","family":"Gramszlo","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hannah","family":"Girgis","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Douglas","family":"Hill","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0723-2464","authenticated-orcid":false,"given":"Jennifer K.","family":"Walter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2023,5,25]]},"reference":[{"key":"S1047951123001282_ref25","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951121002912"},{"key":"S1047951123001282_ref29","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.120.018488"},{"key":"S1047951123001282_ref30","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsj054"},{"key":"S1047951123001282_ref12","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-022-02913-0"},{"key":"S1047951123001282_ref32","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2019.11.015"},{"key":"S1047951123001282_ref15","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2019.03.002"},{"key":"S1047951123001282_ref18","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2022.03.010"},{"key":"S1047951123001282_ref16","first-page":"358","article-title":"Using qualitative research methods to improve clinical care in pediatric psychology","volume":"4","author":"Alderfer","year":"2016","journal-title":"Clin Pract Pediatr Psychol"},{"key":"S1047951123001282_ref28","doi-asserted-by":"publisher","DOI":"10.1001\/archpediatrics.2011.1829"},{"key":"S1047951123001282_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.earlhumdev.2019.104837"},{"key":"S1047951123001282_ref1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hrtlng.2018.08.002"},{"key":"S1047951123001282_ref2","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951118001233"},{"key":"S1047951123001282_ref20","volume-title":"Constructing Grounded Theory: a practical guide through Qualitative Analysis","author":"Charmaz","year":"2006"},{"key":"S1047951123001282_ref27","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951120002139"},{"key":"S1047951123001282_ref6","doi-asserted-by":"publisher","DOI":"10.1097\/PCC.0000000000001985"},{"key":"S1047951123001282_ref13","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2019.04.009"},{"key":"S1047951123001282_ref8","doi-asserted-by":"publisher","DOI":"10.1097\/PCC.0000000000001528"},{"key":"S1047951123001282_ref11","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2017.0307"},{"key":"S1047951123001282_ref22","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.322.7294.1115"},{"key":"S1047951123001282_ref21","unstructured":"21. 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