{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,9]],"date-time":"2025-11-09T03:52:47Z","timestamp":1762660367502,"version":"3.40.5"},"reference-count":15,"publisher":"Cambridge University Press (CUP)","issue":"2","license":[{"start":{"date-parts":[[2023,7,12]],"date-time":"2023-07-12T00:00:00Z","timestamp":1689120000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951123001671_as1\"><jats:title>Background:<\/jats:title><jats:p>The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) lacks a rigorous enrollment audit process, unlike other collaborative networks. Most centers require individual families to consent to participate. It is unknown whether there is variation across centers or biases in enrollment.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001671_as2\"><jats:title>Methods:<\/jats:title><jats:p>We used the Pediatric Cardiac Critical Care Consortium (PC<jats:sup>4<\/jats:sup>) registry to assess enrollment rates in NPC-QIC for those centers participating in both registries using indirect identifiers (date of birth, date of admission, gender, and center) to match patient records. All infants born 1\/1\/2018\u201312\/31\/2020 and admitted 30 days of life were eligible. In PC<jats:sup>4<\/jats:sup>, all infants with a fundamental diagnosis of hypoplastic left heart or variant or who underwent a surgical or hybrid Norwood or variant were eligible. Standard descriptive statistics were used to describe the cohort and center match rates were plotted on a funnel chart.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001671_as3\"><jats:title>Results:<\/jats:title><jats:p>Of 898 eligible NPC-QIC patients, 841 were linked to 1,114 eligible PC<jats:sup>4<\/jats:sup> patients (match rate 75.5%) in 32 centers. Match rates were lower in patients of Hispanic\/Latino ethnicity (66.1%, p = 0.005), and those with any specified chromosomal abnormality (57.4%, p = 0.002), noncardiac abnormality (67.8%, p = 0.005), or any specified syndrome (66.5%, p = 0.001). Match rates were lower for patients who transferred to another hospital or died prior to discharge. Match rates varied from 0 to 100% across centers.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951123001671_as4\"><jats:title>Conclusions:<\/jats:title><jats:p>It is feasible to match patients between the NPC-QIC and PC<jats:sup>4<\/jats:sup> registries. Variation in match rates suggests opportunities for improvement in NPC-QIC patient enrollment.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951123001671","type":"journal-article","created":{"date-parts":[[2023,7,12]],"date-time":"2023-07-12T06:54:44Z","timestamp":1689144884000},"page":"373-379","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Assessing enrollment of eligible infants in the national pediatric cardiology quality improvement collaborative (NPC-QIC) through linkage to the pediatric cardiac critical care consortium (PC4) registry"],"prefix":"10.1017","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2844-7520","authenticated-orcid":false,"given":"Katherine 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