{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T01:10:24Z","timestamp":1789002624510,"version":"build-2803163510"},"reference-count":24,"publisher":"Cambridge University Press (CUP)","issue":"12","license":[{"start":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T00:00:00Z","timestamp":1728000000000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951124025915_as1\"><jats:title>Background:<\/jats:title><jats:p>Patients with univentricular hearts can only be palliated by a staged surgical procedure that carries a high morbidity and mortality risk. The aim of this study was to examine the emotional demands, psychosocial burden, and quality of life of parents with children with univentricular hearts compared to parents of children with a simple heart defect, those with no heart defect and children with chronic diseases.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124025915_as2\"><jats:title>Methods:<\/jats:title><jats:p>An anonymous questionnaire was created to interview parents about their quality of life, stressors, needs, strategies for coping with illness, and partnership satisfaction.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124025915_as3\"><jats:title>Results:<\/jats:title><jats:p>73 families participated in the study. Parents of children with univentricular hearts experience a significantly higher psychosocial burden, limitations in daily life, and distress in family interactions, as well as greater emotional distress compared to the other study groups. When comparing the families of children with other chronic diseases (e.g. cystic fibrosis, chronic arthritis and diabetes), these differences remained significant.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124025915_as4\"><jats:title>Conclusion:<\/jats:title><jats:p>The study confirms a higher psychosocial burden, restrictions in daily life and a lower quality of life of parents with children with univentricular hearts, compared to parents of children with simple heart defects and parents of heart-healthy children or those with other chronic diseases. Since this condition persists until adolescence and adulthood, the families are exposed to special challenges and stresses throughout their lives. This has yet to be adequately addressed in the management of these families.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951124025915","type":"journal-article","created":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T08:13:36Z","timestamp":1728029616000},"page":"2528-2535","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":3,"title":["Psychosocial burden and quality of life of parents with children with univentricular hearts compared to ASD parents and parents of heart-healthy children"],"prefix":"10.1017","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-6721-1971","authenticated-orcid":false,"given":"Monia","family":"Schonath","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leonie","family":"Arnold","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nikolaus A.","family":"Haas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcus","family":"Fischer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2024,10,4]]},"reference":[{"key":"S1047951124025915_ref5","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2022.826349"},{"key":"S1047951124025915_ref1","unstructured":"1. Hager, A , Ovroutski, S , Cesnjevar, R. Leitlinie P\u00e4diatrische Kardiologie: Univentrikul\u00e4res Herz. 2011."},{"key":"S1047951124025915_ref18","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951119001781"},{"key":"S1047951124025915_ref15","doi-asserted-by":"publisher","DOI":"10.1177\/21501351211044127"},{"key":"S1047951124025915_ref23","doi-asserted-by":"publisher","DOI":"10.1097\/00004703-198806000-00006"},{"key":"S1047951124025915_ref10","doi-asserted-by":"publisher","DOI":"10.1055\/s-2001-16899"},{"key":"S1047951124025915_ref22","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2001.02013.x"},{"key":"S1047951124025915_ref8","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.119.014172"},{"key":"S1047951124025915_ref7","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000000696"},{"key":"S1047951124025915_ref17","doi-asserted-by":"publisher","DOI":"10.1186\/s12884-017-1607-y"},{"key":"S1047951124025915_ref6","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.115.002302"},{"key":"S1047951124025915_ref9","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2012.06044.x"},{"key":"S1047951124025915_ref11","doi-asserted-by":"publisher","DOI":"10.1026\/0084-5345.31.1.31"},{"key":"S1047951124025915_ref2","first-page":"799","article-title":"Spezielle Probleme herzkranker Patienten. P\u00e4diatrische Kardiologie: erkrankungen des herzens bei neugeborenen, s\u00e4uglingen","author":"Hassberg","year":"2002","journal-title":"Kindern und Heranwachsenden"},{"key":"S1047951124025915_ref12","doi-asserted-by":"publisher","DOI":"10.1026\/\/0012-1924.47.3.132"},{"key":"S1047951124025915_ref3","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2005-0575"},{"key":"S1047951124025915_ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2022.11.027"},{"key":"S1047951124025915_ref13","doi-asserted-by":"publisher","DOI":"10.1007\/s00467-010-1540-z"},{"key":"S1047951124025915_ref16","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2008.01803.x"},{"key":"S1047951124025915_ref19","doi-asserted-by":"publisher","DOI":"10.21037\/cdt.2019.07.07"},{"key":"S1047951124025915_ref20","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-540-47632-0_4"},{"key":"S1047951124025915_ref21","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025114331419"},{"key":"S1047951124025915_ref24","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-018-1183-y"},{"key":"S1047951124025915_ref14","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2015.05.070"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951124025915","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,26]],"date-time":"2025-03-26T06:59:33Z","timestamp":1742972373000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951124025915\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,10,4]]},"references-count":24,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2024,12]]}},"alternative-id":["S1047951124025915"],"URL":"https:\/\/doi.org\/10.1017\/s1047951124025915","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,10,4]]},"assertion":[{"value":"\u00a9 The Author(s), 2024. 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