{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,3,27]],"date-time":"2025-03-27T04:07:58Z","timestamp":1743048478251,"version":"3.40.3"},"reference-count":39,"publisher":"Cambridge University Press (CUP)","issue":"12","license":[{"start":{"date-parts":[[2024,10,14]],"date-time":"2024-10-14T00:00:00Z","timestamp":1728864000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951124026076_as1\"><jats:title>Background:<\/jats:title><jats:p>Emerging evidence suggests that routine physical activity may improve exercise capacity, long-term outcomes, and quality of life in individuals with Fontan circulation. Despite this, it is unclear how active these individuals are and what guidance they receive from medical providers regarding physical activity. The aim of this study was to survey Fontan patients on personal physical activity behaviours and their cardiologist-directed physical activity recommendations to set a\u00a0baseline for future targeted efforts to improve this.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026076_as2\"><jats:title>Methods:<\/jats:title><jats:p>An electronic survey assessing physical activity habits and cardiologist-directed guidance was developed in concert with content experts and patients\/parents and shared via a social media campaign with Fontan patients and their families.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026076_as3\"><jats:title>Results:<\/jats:title><jats:p>A total of 168 individuals completed the survey. The median age of respondents was 10 years, 51% identifying as male. Overall, 21% of respondents spend &gt; 5 hours per week engaged in low-exertion activity and only 7% spend &gt; 5 hours per week engaged in high-exertion activity. In all domains questioned, pre-adolescents reported higher participation rates than adolescents. Nearly half (43%) of respondents reported that they do not discuss activity recommendations with their cardiologist.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026076_as4\"><jats:title>Conclusions:<\/jats:title><jats:p>Despite increasing evidence over the last two decades demonstrating the benefit of exercise for individuals living with Fontan circulation, only a minority of patients report engaging in significant amounts of physical activity or discussing activity goals with their cardiologist. Specific, individualized, and actionable education needs to be provided to patients, families, and providers to promote and support regular physical activity in this patient population.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951124026076","type":"journal-article","created":{"date-parts":[[2024,10,14]],"date-time":"2024-10-14T10:08:21Z","timestamp":1728900501000},"page":"2619-2625","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Physical activity in the Fontan population: provider recommendations and patient actions"],"prefix":"10.1017","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6875-3621","authenticated-orcid":false,"given":"Alyson R.","family":"Pierick","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Darren","family":"Marshall","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sunkyung","family":"Yu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ray","family":"Lowery","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas","family":"Glenn","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jesse E.","family":"Hansen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-9248-7621","authenticated-orcid":false,"given":"Diane","family":"Pickles","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark D.","family":"Norris","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark W.","family":"Russell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kurt R.","family":"Schumacher","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2024,10,14]]},"reference":[{"key":"S1047951124026076_ref17","doi-asserted-by":"publisher","DOI":"10.1016\/j.ahj.2023.05.010"},{"key":"S1047951124026076_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.hlc.2019.09.010"},{"key":"S1047951124026076_ref2","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000000696"},{"key":"S1047951124026076_ref13","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.117.005750"},{"key":"S1047951124026076_ref8","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-021-02806-8"},{"key":"S1047951124026076_ref28","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951121003541"},{"key":"S1047951124026076_ref25","first-page":"1","article-title":"School health guidelines to promote healthy eating and physical activity","volume":"60","year":"2011","journal-title":"MMWR Recomm Rep"},{"key":"S1047951124026076_ref34","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2019.11.006"},{"key":"S1047951124026076_ref22","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2013-2966"},{"key":"S1047951124026076_ref26","doi-asserted-by":"publisher","DOI":"10.1136\/bjsports-2016-096933"},{"key":"S1047951124026076_ref1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hlc.2015.03.005"},{"key":"S1047951124026076_ref11","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951120002097"},{"key":"S1047951124026076_ref27","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-020-79100-9"},{"key":"S1047951124026076_ref4","doi-asserted-by":"publisher","DOI":"10.1007\/BF03085970"},{"key":"S1047951124026076_ref18","doi-asserted-by":"publisher","DOI":"10.1016\/j.ahj.2015.06.018"},{"key":"S1047951124026076_ref21","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951120004758"},{"key":"S1047951124026076_ref5","doi-asserted-by":"publisher","DOI":"10.1177\/2047487320942869"},{"key":"S1047951124026076_ref12","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-012-0618-8"},{"key":"S1047951124026076_ref20","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-023-03215-9"},{"key":"S1047951124026076_ref29","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehq356"},{"key":"S1047951124026076_ref9","doi-asserted-by":"publisher","DOI":"10.1111\/chd.12330"},{"key":"S1047951124026076_ref15","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtcvs.2017.10.047"},{"key":"S1047951124026076_ref23","unstructured":"23. 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[cited 2022 09\/28]; Available at: https:\/\/www.statista.com\/statistics\/988106\/gym-class-participation\/."},{"key":"S1047951124026076_ref19","article-title":"Exercise intolerance, benefits, and prescription for people living with a Fontan circulation: the Fontan fitness intervention trial (F-FIT)-rationale and design","volume":"9","author":"Tran","year":"2021","journal-title":"Front Pediatr"},{"key":"S1047951124026076_ref38","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0191940"},{"key":"S1047951124026076_ref36","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0228255"},{"key":"S1047951124026076_ref39","doi-asserted-by":"publisher","DOI":"10.1177\/2374373520948400"},{"key":"S1047951124026076_ref7","first-page":"171","article-title":"The effects of exercise training on cardiopulmonary exercise testing and cardiac biomarkers in adult patients with hypoplastic left heart syndrome and Fontan circulation","volume":"9","author":"Perrone","year":"2022","journal-title":"J Cardiovasc Dev Dis"},{"key":"S1047951124026076_ref35","doi-asserted-by":"publisher","DOI":"10.1016\/j.hlc.2021.01.004"},{"key":"S1047951124026076_ref10","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951117002360"},{"key":"S1047951124026076_ref14","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCHEARTFAILURE.121.008738"},{"key":"S1047951124026076_ref24","doi-asserted-by":"publisher","DOI":"10.1186\/s12966-015-0274-5"},{"key":"S1047951124026076_ref32","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2008.02.081"},{"key":"S1047951124026076_ref37","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-020-02465-1"},{"key":"S1047951124026076_ref16","doi-asserted-by":"publisher","DOI":"10.3389\/fcvm.2021.764273"},{"key":"S1047951124026076_ref33","doi-asserted-by":"publisher","DOI":"10.1161\/01.CIR.99.9.1173"},{"key":"S1047951124026076_ref6","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951118001166"},{"key":"S1047951124026076_ref31","doi-asserted-by":"publisher","DOI":"10.1111\/chd.12222"},{"key":"S1047951124026076_ref30","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2007.11.009"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951124026076","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,26]],"date-time":"2025-03-26T06:59:14Z","timestamp":1742972354000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951124026076\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,10,14]]},"references-count":39,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2024,12]]}},"alternative-id":["S1047951124026076"],"URL":"https:\/\/doi.org\/10.1017\/s1047951124026076","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"type":"print","value":"1047-9511"},{"type":"electronic","value":"1467-1107"}],"subject":[],"published":{"date-parts":[[2024,10,14]]},"assertion":[{"value":"\u00a9 The Author(s), 2024. 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