{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T22:54:28Z","timestamp":1783551268697,"version":"3.55.0"},"reference-count":44,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2024,12,6]],"date-time":"2024-12-06T00:00:00Z","timestamp":1733443200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951124026246_as1\"><jats:title>Objective(s):<\/jats:title><jats:p>To examine feasibility, acceptability, and preliminary effectiveness of a novel group-based telemedicine psychoeducation programme aimed at supporting psychological well-being among adolescents with Fontan-palliated CHD.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026246_as2\"><jats:title>Study design:<\/jats:title><jats:p>A 5-week telemedicine psychoeducation group-based programme (WE BEAT) was developed for adolescents (<jats:italic>N<\/jats:italic> = 20; 13\u201318 years) with Fontan-palliated CHD aimed at improving resiliency and psychological well-being. Outcome measures included surveys of resilience (Connor\u2013Davidson Resilience Scale), benefit finding (Benefit\/Burden Scale for Children), depression, anxiety, peer relationships, and life satisfaction (National Institutes of Health Patient-Reported Outcomes Measurement Information System scales). Within-subject changes in these outcomes were compared pre- to post-intervention using Cohen\u2019s <jats:italic>d<\/jats:italic> effect size. In addition, acceptability in the form of satisfaction measures and qualitative feedback was assessed.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026246_as3\"><jats:title>Results:<\/jats:title><jats:p>Among eligible patients reached, 68% expressed interest in study participation. Of those consented, 77% have been scheduled for a group programme to date with 87% programme completion. Twenty adolescents (<jats:italic>mean<\/jats:italic> age 16.1 \u00b1 SD 1.6 years) participated across five WE BEAT group cohorts (range: 3\u20136 participants per group). The majority (80%) attended 4\u20135 sessions in the 5-session programme, and the median programme rating was a 9 out of 10 (10 = most favourable rating). Following WE BEAT participation, resiliency (<jats:italic>d<\/jats:italic> = 0.44) and perceptions of purpose in life increased (<jats:italic>d<\/jats:italic> = 0.26), while depressive symptoms reduced (<jats:italic>d<\/jats:italic> = 0.36). No other changes in assessed outcome measures were noted.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951124026246_as4\"><jats:title>Conclusions:<\/jats:title><jats:p>These findings provide preliminary support that a group-based, telemedicine delivered psychoeducation programme to support psychological well-being among adolescents with CHD is feasible, acceptable, and effective. Future directions include examining intervention effects across diverse centres, populations, and implementation methods.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951124026246","type":"journal-article","created":{"date-parts":[[2024,12,6]],"date-time":"2024-12-06T10:00:27Z","timestamp":1733479227000},"page":"64-71","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":5,"title":["A pilot study of the WE BEAT Well-Being Education Programme to build resilience in adolescents with heart disease"],"prefix":"10.1017","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0041-0830","authenticated-orcid":false,"given":"Melissa K.","family":"Cousino","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly E.","family":"Rea","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-0009-6467","authenticated-orcid":false,"given":"Catherine R.","family":"Dusing","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thomas","family":"Glenn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Blake","family":"Armstrong","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sunkyung","family":"Yu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ray","family":"Lowery","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea S.","family":"Les","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caren S.","family":"Goldberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jesse E.","family":"Hansen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kurt R.","family":"Schumacher","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2024,12,6]]},"reference":[{"key":"S1047951124026246_ref29","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-19102-7"},{"key":"S1047951124026246_ref31","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2023.113411"},{"key":"S1047951124026246_ref37","volume-title":"Community-based participatory research for health: Advancing social and health equity","author":"Wallerstein","year":"2017"},{"key":"S1047951124026246_ref13","first-page":"3909","article-title":"Promoting resilience in adolescents and young adults with cancer: results from the PRISM randomized controlled trial","volume":"124","author":"Rosenberg","year":"2018","journal-title":"Ann Ny Acad Sci"},{"key":"S1047951124026246_ref28","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp004"},{"key":"S1047951124026246_ref8","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsw018"},{"key":"S1047951124026246_ref7","article-title":"Definitions of resilience and resilience resource use as described by adults with congenital heart disease","volume":"12","author":"Steiner","year":"2023","journal-title":"IJC Congenital Heart Dis"},{"key":"S1047951124026246_ref21","doi-asserted-by":"publisher","DOI":"10.1002\/da.10113"},{"key":"S1047951124026246_ref1","doi-asserted-by":"publisher","DOI":"10.1161\/HCQ.0000000000000110"},{"key":"S1047951124026246_ref25","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jss038"},{"key":"S1047951124026246_ref43","first-page":"855","article-title":"Telomeres as therapeutic targets in heart disease","volume":"4","author":"Yeh","year":"2019","journal-title":"JACC: Basic Trans Sci"},{"key":"S1047951124026246_ref20","doi-asserted-by":"publisher","DOI":"10.1002\/jts.20271"},{"key":"S1047951124026246_ref6","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.123.029847"},{"key":"S1047951124026246_ref14","doi-asserted-by":"publisher","DOI":"10.1177\/1359105313509846"},{"key":"S1047951124026246_ref16","first-page":"151","article-title":"Psychological interventions for people affected by childhood-onset heart disease: a systematic review [press release]","volume":"38","author":"Tesson","year":"2019","journal-title":"Am Psychol Assoc"},{"key":"S1047951124026246_ref2","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951121002158"},{"key":"S1047951124026246_ref35","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaac.2016.11.007"},{"key":"S1047951124026246_ref5","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2016-2241"},{"key":"S1047951124026246_ref18","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.89.9.1322"},{"key":"S1047951124026246_ref22","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp021"},{"key":"S1047951124026246_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2018.02.023"},{"key":"S1047951124026246_ref12","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsv004"},{"key":"S1047951124026246_ref24","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-015-0953-3"},{"key":"S1047951124026246_ref27","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2012.01.015"},{"key":"S1047951124026246_ref32","doi-asserted-by":"publisher","DOI":"10.1200\/CCI.17.00138"},{"key":"S1047951124026246_ref34","doi-asserted-by":"publisher","DOI":"10.1007\/s10488-014-0563-3"},{"key":"S1047951124026246_ref38","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2012.300755"},{"key":"S1047951124026246_ref10","article-title":"Videoconference-delivered mind-body resiliency training in adults with congenital heart disease: a pilot feasibility trial","volume":"7","author":"Luberto","year":"2022","journal-title":"IJC Congenital Heart Dis"},{"key":"S1047951124026246_ref30","article-title":"Flattening the curve of mental ill-health: the importance of primary prevention in managing the mental health impacts of COVID-19","volume":"19","author":"Carbone","year":"2020","journal-title":"Men Health Prev"},{"key":"S1047951124026246_ref15","doi-asserted-by":"publisher","DOI":"10.1111\/petr.13559"},{"key":"S1047951124026246_ref17","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1017\/S1047951124026246","article-title":"Developing the WE BEAT well-being education programme to foster resilience and build connection in paediatric heart disease","author":"Cousino","year":"2024","journal-title":"Cardiol Young"},{"key":"S1047951124026246_ref19","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2013.301299"},{"key":"S1047951124026246_ref23","doi-asserted-by":"crossref","first-page":"585","DOI":"10.1007\/s11136-010-9618-4","article-title":"Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey","volume":"19","author":"rwin","year":"2010","journal-title":"Qual Life Res"},{"key":"S1047951124026246_ref36","doi-asserted-by":"publisher","DOI":"10.1007\/s12519-022-00666-7"},{"key":"S1047951124026246_ref41","doi-asserted-by":"publisher","DOI":"10.1016\/j.bbi.2013.05.008"},{"key":"S1047951124026246_ref4","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-1693"},{"key":"S1047951124026246_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2022.09.032"},{"key":"S1047951124026246_ref39","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0b013e3182408812"},{"key":"S1047951124026246_ref9","first-page":"419","article-title":"Relationship between depression and resilience in adolescents with congenital heart disease","volume":"38","author":"Moon","year":"2006","journal-title":"Am Heart Assoc"},{"key":"S1047951124026246_ref44","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afp256"},{"key":"S1047951124026246_ref40","doi-asserted-by":"publisher","DOI":"10.3389\/frhs.2022.1053496"},{"key":"S1047951124026246_ref33","doi-asserted-by":"publisher","DOI":"10.1111\/jcpp.12663"},{"key":"S1047951124026246_ref26","doi-asserted-by":"publisher","DOI":"10.4324\/9780203771587"},{"key":"S1047951124026246_ref42","doi-asserted-by":"publisher","DOI":"10.1161\/ATVBAHA.111.237271"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951124026246","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,2,4]],"date-time":"2025-02-04T05:10:37Z","timestamp":1738645837000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951124026246\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,12,6]]},"references-count":44,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2025,1]]}},"alternative-id":["S1047951124026246"],"URL":"https:\/\/doi.org\/10.1017\/s1047951124026246","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,12,6]]},"assertion":[{"value":"\u00a9 The Author(s), 2024. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}