{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T20:46:15Z","timestamp":1786999575227,"version":"build-2736575974"},"reference-count":16,"publisher":"Cambridge University Press (CUP)","issue":"8","license":[{"start":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T00:00:00Z","timestamp":1728000000000},"content-version":"unspecified","delay-in-days":64,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,8]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>Surgical advancements in paediatric cardiovascular surgery have led to improved survival rates for those patients with the most complex CHDs leading to greater numbers of patients who are living well into adulthood. Despite this new era of long-term survival, our current reporting systems continue to focus largely on using short-term postoperative outcomes as the criteria to both rate and rank hospitals. Using such limited criteria to rate and rank hospitals may mislead the intended audiences: patients and families. The goal of this article is to describe the creation of a local benchmarking report which aims to retrospectively review long-term outcomes from our single centre. This report is updated annually and published on our cardiac surgery webpage in an effort to be as transparent as possible for our patient and family communities.<\/jats:p>","DOI":"10.1017\/s1047951124026325","type":"journal-article","created":{"date-parts":[[2024,10,4]],"date-time":"2024-10-04T04:13:35Z","timestamp":1728015215000},"page":"1619-1621","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["The Children\u2019s National Hospital Outcomes Registry: a plea for a benchmarking tool that provides longitudinal outcomes for patients and families"],"prefix":"10.1017","volume":"34","author":[{"given":"Alyssia","family":"Venna","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mitchell","family":"Haverty","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Kreutzer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rittal","family":"Mehta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alix","family":"Fetch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aybala","family":"Tongut","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Manan","family":"Desai","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Can","family":"Yerebakan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1851-7836","authenticated-orcid":false,"given":"Yves","family":"d\u2019Udekem","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2024,10,4]]},"reference":[{"key":"S1047951124026325_ref6","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2018.03.491"},{"key":"S1047951124026325_ref13","volume-title":"Humanity and Humility: 40 Years in Children\u2019s Heart Surgery","author":"de","year":"2020"},{"key":"S1047951124026325_ref1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1747-0803.2012.00706.x"},{"key":"S1047951124026325_ref3","first-page":"e446","article-title":"Meeting parents\u2019 needs for education and preparation following congenital heart disease diagnosis: recommendations from a crowdsourced study","volume":"12","author":"Gramszlo","year":"2022","journal-title":"Am J Perinatol"},{"key":"S1047951124026325_ref8","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-023-08167-7"},{"key":"S1047951124026325_ref7","unstructured":"7. US News & World Report. FAQ: How and Why We Rank and Rate Hospitals. Available at: https:\/\/health.usnews.com\/health-care\/best-hospitals\/articles\/faq-how-and-why-we-rank-and-rate-hospitals"},{"key":"S1047951124026325_ref11","doi-asserted-by":"publisher","DOI":"10.1177\/2150135118815028"},{"key":"S1047951124026325_ref12","doi-asserted-by":"publisher","DOI":"10.1097\/SLA.0000000000003432"},{"key":"S1047951124026325_ref4","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951123001634"},{"key":"S1047951124026325_ref5","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951122002505"},{"key":"S1047951124026325_ref14","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511751349.018"},{"key":"S1047951124026325_ref9","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2019.09.046"},{"key":"S1047951124026325_ref15","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2011.06.008"},{"key":"S1047951124026325_ref16","first-page":"ivae053","article-title":"Repair of the complete atrioventricular septal defect-impact of postoperative moderate or more regurgitation","volume":"38","author":"Ozturk","year":"2024","journal-title":"Interdiscip Cardiovasc Thorac Surg"},{"key":"S1047951124026325_ref2","doi-asserted-by":"publisher","DOI":"10.4094\/chnr.2020.26.1.107"},{"key":"S1047951124026325_ref10","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.120.046962"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951124026325","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,5]],"date-time":"2024-11-05T08:28:04Z","timestamp":1730795284000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951124026325\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8]]},"references-count":16,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2024,8]]}},"alternative-id":["S1047951124026325"],"URL":"https:\/\/doi.org\/10.1017\/s1047951124026325","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,8]]},"assertion":[{"value":"\u00a9 The Author(s), 2024. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}