{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,5]],"date-time":"2026-06-05T08:18:38Z","timestamp":1780647518690,"version":"3.54.1"},"reference-count":24,"publisher":"Cambridge University Press (CUP)","issue":"11","license":[{"start":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T00:00:00Z","timestamp":1731888000000},"content-version":"unspecified","delay-in-days":17,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Although medical advancements have improved the mortality of CHD, morbidity still exists, impacting patient quality of life. Returning to baseline in the early surgical recovery phase is an area of potential improvement. This preliminary project aims to qualitatively understand CHD family perspectives concerning the immediate postoperative recovery phase. The participating patients enrolled in the Enhanced Recovery After Surgery program, a postsurgical symptom management tool utilised in adult centres and broadening into pediatrics. Twenty-three of 27 contacted families answered open-ended questions 1 to 3 months postoperatively regarding difficulties experienced during their first week home. They reviewed a list of symptoms including: difficulties with pain, nausea, activity, sleep, appetite, bowel or urinary systems, and taking medications. A qualitative thematic analysis was performed with the open responses, as well as a quantitative assessment of the types of issues that made recovery challenging. Participants struggled most with sleep (78%), returning to activity (70%), and pain (57%). Open-ended responses suggested that an inability to do daily activities, sleep (frequently impacted by pain), and inadequate resources most negatively impacted recovery. Given these findings, investigating postoperative sleep regimens and effective pain plan components may prove useful, in addition to the further development of early mobility programs. The positive and negative experiences highlighting the desire for readily available medical guidance enforce the need for open communication between families and team members, potentially aided by digital tools. Ultimately, further data could support the development of a standardised protocol to better the immediate postoperative quality of life for CHD families.<\/jats:p>","DOI":"10.1017\/s104795112403600x","type":"journal-article","created":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T06:39:53Z","timestamp":1731911993000},"page":"2323-2328","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":1,"title":["A qualitative needs assessment of early participants in an Enhanced Recovery After Surgery program in CHD"],"prefix":"10.1017","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4816-6216","authenticated-orcid":false,"given":"Kristen L.","family":"Buehne","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4356-2957","authenticated-orcid":false,"given":"Melissa","family":"Winder","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Marietta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jamie","family":"Park","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Murphy","family":"Dwyer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6436-7504","authenticated-orcid":false,"given":"Aaron W.","family":"Eckhauser","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3947-3927","authenticated-orcid":false,"given":"Kevin","family":"Hummel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2024,11,18]]},"reference":[{"key":"S104795112403600X_ref14","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951121004480"},{"key":"S104795112403600X_ref9","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12185"},{"key":"S104795112403600X_ref5","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-028533"},{"key":"S104795112403600X_ref21","doi-asserted-by":"publisher","DOI":"10.1038\/s41436-020-0791-8"},{"key":"S104795112403600X_ref7","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-023-03312-9"},{"key":"S104795112403600X_ref6","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1017\/S1047951123000057","article-title":"Patient-reported outcome measures in congenital heart surgery: a systematic review","volume":"33","author":"Francis","year":"2023","journal-title":"Cardiol Young"},{"key":"S104795112403600X_ref17","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0284946"},{"key":"S104795112403600X_ref13","doi-asserted-by":"publisher","DOI":"10.1097\/PCC.0000000000002873"},{"key":"S104795112403600X_ref4","volume-title":"Health Services and Delivery Research. in: Early morbidities following paediatric cardiac surgery: a mixed-methods study","author":"Brown","year":"2020"},{"key":"S104795112403600X_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2018.03.491"},{"key":"S104795112403600X_ref19","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-023-03215-9"},{"key":"S104795112403600X_ref24","doi-asserted-by":"crossref","first-page":"695","DOI":"10.1007\/s00246-015-1121-9","article-title":"Familial impact and coping with child heart disease: a systematic review","volume":"36","author":"Jackson","year":"2015","journal-title":"Pediatr Cardiol"},{"key":"S104795112403600X_ref1","doi-asserted-by":"publisher","DOI":"10.14797\/mdcj-15-2-97"},{"key":"S104795112403600X_ref16","doi-asserted-by":"publisher","DOI":"10.1097\/01.hjr.0000176510.84165.eb"},{"key":"S104795112403600X_ref23","first-page":"1","article-title":"The family burden of paediatric heart disease during the chronic phase of illness","volume":"34","author":"Hummel","year":"2023","journal-title":"Cardiol Young"},{"key":"S104795112403600X_ref18","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2013.05.086"},{"key":"S104795112403600X_ref15","first-page":"2894","article-title":"Application of \u201cInternet+\u201d cognitive-behavioral intervention in caregivers of children with congenital heart disease undergoing elective surgery during the COVID-19 pandemic","volume":"15","author":"Jin","year":"2023","journal-title":"Am J Transl Res"},{"key":"S104795112403600X_ref11","unstructured":"11. Ehanced Recovery After Surgery: Considerations for Pathway Development and Implementation. Ammerican Association of Nurse Anesthesiology (AANA)., Published 2017. Accessed. 2024. Available at: https:\/\/issuu.com\/aanapublishing\/docs\/5_-_enhanced_recovery_after_surgery."},{"key":"S104795112403600X_ref22","doi-asserted-by":"publisher","DOI":"10.21037\/tp-21-297"},{"key":"S104795112403600X_ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2020.11.003"},{"key":"S104795112403600X_ref12","first-page":"2366","article-title":"The dillman total design survey method","volume":"32","author":"Hoddinott","year":"1986","journal-title":"Can Fam Physician"},{"key":"S104795112403600X_ref20","doi-asserted-by":"publisher","DOI":"10.1177\/2150135118755977"},{"key":"S104795112403600X_ref2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2008.05.059"},{"key":"S104795112403600X_ref10","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951122003559"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S104795112403600X","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,2,17]],"date-time":"2025-02-17T07:04:47Z","timestamp":1739775887000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S104795112403600X\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11]]},"references-count":24,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2024,11]]}},"alternative-id":["S104795112403600X"],"URL":"https:\/\/doi.org\/10.1017\/s104795112403600x","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,11]]},"assertion":[{"value":"\u00a9 The Author(s), 2024. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}