{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T02:11:20Z","timestamp":1792030280891,"version":"4.4.0"},"reference-count":28,"publisher":"Cambridge University Press (CUP)","issue":"5","license":[{"start":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T00:00:00Z","timestamp":1744761600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1047951125001489_as1\">\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>International organisations recommend that patients with CHD undergo a structured transition process to prepare for lifelong cardiac care. However, there is a limited understanding of current transition practices in the United States (U.S.) from the perspective of adult CHD programs. The purpose of this study was to characterise adult CHD transition practices across the U.S.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125001489_as2\">\n                    <jats:title>Method:<\/jats:title>\n                    <jats:p>We conducted a descriptive, cross-sectional survey of adult CHD programs in the U.S., inquiring about transition practices (preparation, transfer, and integration), resources, specialists, and barriers. We used descriptive statistics to analyse the data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125001489_as3\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>We analysed responses from 38 adult CHD programs (37% response rate). Among these, 25 (66%) of adult CHD programs reported formal transition programs and 26 (68%) reported having a transfer process to receive patients from paediatric cardiology. Reported transition program specialists were interdisciplinary. Few programs reported having psychologists or psychiatrists on their teams or offered support for patients with intellectual disability. The main barriers affecting transition were insurance and health care costs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125001489_as4\">\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Around two-thirds of respondent adult CHD programs reported the presence of formal transition programs. More resources may be needed within these programmes to support patient psychological well-being and those with intellectual disability and to address barriers related to insurance and health care costs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1047951125001489","type":"journal-article","created":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T04:22:22Z","timestamp":1744777342000},"page":"908-914","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":3,"title":["Congenital Heart Disease transition practices in the United States: a survey of adult Congenital Heart Disease programs"],"prefix":"10.1017","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0730-9516","authenticated-orcid":false,"given":"Debora","family":"Burger","sequence":"first","affiliation":[{"name":"Oregon Health & Science University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Reem","family":"Hasan","sequence":"additional","affiliation":[{"name":"Oregon Health & Science University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick D.","family":"Evers","sequence":"additional","affiliation":[{"name":"Oregon Health & Science University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew W.","family":"McHill","sequence":"additional","affiliation":[{"name":"Oregon Health & Science University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Corina","family":"Thomet","sequence":"additional","affiliation":[{"name":"University of Bern"},{"name":"University of Leuven"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8609-4516","authenticated-orcid":false,"given":"Philip","family":"Moons","sequence":"additional","affiliation":[{"name":"University of Leuven"},{"name":"University of Gothenburg"},{"name":"University of Cape Town"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Quin E.","family":"Denfeld","sequence":"additional","affiliation":[{"name":"Oregon Health & Science University"},{"name":"Knight Cardiovascular Institute"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2025,4,16]]},"reference":[{"key":"S1047951125001489_ref17","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2020.11.031"},{"key":"S1047951125001489_ref22","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2007.02.023"},{"key":"S1047951125001489_ref16","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951122000488"},{"key":"S1047951125001489_ref10","first-page":"1113","article-title":"Healthcare transition for youth with heart disease: a clinical trial","volume":"100","author":"Mackie","year":"2014","journal-title":"Heart (British Cardiac 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to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills, and correlates of a successful transition","volume":"9","author":"Ricci","year":"2023","journal-title":"Eur Heart J Qual care clin outcomes"},{"key":"S1047951125001489_ref2","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehab388"},{"key":"S1047951125001489_ref26","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2006.09.051"},{"key":"S1047951125001489_ref9","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2021.09.053"},{"key":"S1047951125001489_ref13","doi-asserted-by":"publisher","DOI":"10.1016\/j.acvd.2017.02.001"},{"key":"S1047951125001489_ref6","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2018.02.043"},{"key":"S1047951125001489_ref3","first-page":"e698","article-title":"AHA\/ACC guideline for the management of adults with congenital heart disease: a report of the American college of cardiology\/American heart association task force on clinical practice guidelines","volume":"139","author":"Stout","year":"2019","journal-title":"Circulation"},{"key":"S1047951125001489_ref24","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2004.11.036"},{"key":"S1047951125001489_ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2023.02.019"},{"key":"S1047951125001489_ref21","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.123.064705"},{"key":"S1047951125001489_ref15","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-009-9442-1"},{"key":"S1047951125001489_ref18","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2010.11.068"},{"key":"S1047951125001489_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2015.02.041"},{"key":"S1047951125001489_ref28","doi-asserted-by":"publisher","DOI":"10.1093\/eurjcn\/zvad030"}],"container-title":["Cardiology in the 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2025. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}