{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T15:23:22Z","timestamp":1791213802600,"version":"4.1.0"},"reference-count":37,"publisher":"Cambridge University Press (CUP)","issue":"7","license":[{"start":{"date-parts":[[2025,8,11]],"date-time":"2025-08-11T00:00:00Z","timestamp":1754870400000},"content-version":"unspecified","delay-in-days":41,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951125101297_as1\"><jats:title>Background:<\/jats:title><jats:p>Reports of paediatric cardiac neurodevelopmental programmes are predominately limited to high-volume surgical centres. Regional characterisation of neurodevelopmental care practices across multiple centres both with and without cardiac surgery programmes has not yet been described.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951125101297_as2\"><jats:title>Objective:<\/jats:title><jats:p>Assess cardiac neurodevelopmental infrastructure and approach across New England to describe regional support for children with CHD.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951125101297_as3\"><jats:title>Methods:<\/jats:title><jats:p>A 16-item survey assessing inpatient and outpatient neurodevelopmental care practices was sent electronically via REDCap to all member institutions of the New England Congenital Cardiology Association Health Disparities Working Group. Centres were characterised by surgical capability, annual volume, and academic affiliation. Descriptive statistics and Fisher\u2019s exact test were used for comparisons.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951125101297_as4\"><jats:title>Results:<\/jats:title><jats:p>The survey response rate was 90% (9\/10). Participating centres included non-surgical academic centres (55%), small surgical centres (22%) and medium-large surgical centres (22%). Surgical centres typically refer their patients to internal neurodevelopmental services (100%) and rely on automatic referral processes (100%). Non-surgical centres predominately refer to the institution where cardiac surgery was performed (80%) compared to engaging local teams (20%) and depend on family or physician-initiated referral (100%) to schedule neurodevelopmental services. While none of the non-surgical centres surveyed have cardiac-specific neurodevelopmental programmes, all have other developmental programmes that accommodate children with CHD.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951125101297_as5\"><jats:title>Conclusions:<\/jats:title><jats:p>Varying neurodevelopmental infrastructure and resources are reported across New England. Academic, non-surgical centres may have infrastructure for neurodevelopmental follow-up despite not having cardiac neurodevelopmental programmes. Collaboration between surgical and non-surgical cardiac centres in New England may be leveraged to promote neurodevelopmental care closer to home.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951125101297","type":"journal-article","created":{"date-parts":[[2025,8,11]],"date-time":"2025-08-11T07:51:53Z","timestamp":1754898713000},"page":"1350-1356","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Regional paediatric cardiac neurodevelopmental care: a survey of New England referral practices and institutional resources"],"prefix":"10.1017","volume":"35","author":[{"given":"Madeline E.","family":"Duncan","sequence":"first","affiliation":[{"name":"Boston Children\u2019s Hospital and Department of Pediatrics Harvard Medical 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