{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,22]],"date-time":"2026-05-22T05:10:19Z","timestamp":1779426619436,"version":"3.53.1"},"reference-count":13,"publisher":"Cambridge University Press (CUP)","issue":"10","license":[{"start":{"date-parts":[[2025,9,11]],"date-time":"2025-09-11T00:00:00Z","timestamp":1757548800000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2025,10]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1047951125109396_as1\">\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Advancements in healthcare have significantly improved the prospect of patients with CHD, with over 97% now surviving adulthood. This growing population requires lifelong care and support to manage their condition. Digital health innovations, such as the \u201cAsk Me Anything\u201d (AMA) tool, aim to empower patients and improve collaboration with clinicians.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125109396_as2\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>In this pilot study, 70 patients were invited to participate, and 58 completed the questionnaire (response rate: 82.9%). Patients completed a digital question prompt list (QPL) prior to their consultations to select key topics from a predefined list of questions. Permission from the institution was obtained before conducting the pilot study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125109396_as3\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Patients frequently selected questions related to prognosis, ageing, emotional well-being, lifestyle, and potential future interventions. The tool allowed for more personalised consultations and promoted active patient participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951125109396_as4\">\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The AMA tool demonstrates feasibility in engaging ACHD patients and supporting shared decision-making. Further research is needed to optimise system integration and evaluate long-term outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1047951125109396","type":"journal-article","created":{"date-parts":[[2025,9,11]],"date-time":"2025-09-11T07:59:26Z","timestamp":1757577566000},"page":"2126-2130","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":1,"title":["Empowering Patients with Congenital Heart Disease: Development of a Digital Question Prompt List for Shared Decision-Making: A Pilot Study"],"prefix":"10.1017","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-7665-1824","authenticated-orcid":false,"given":"Hajar","family":"Habibi","sequence":"first","affiliation":[{"name":"Royal Brompton and Harefield Hospital"},{"name":"National Heart and Lung Institute, Imperial College"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Tulloh","sequence":"additional","affiliation":[{"name":"Brunel University London"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael A.","family":"Gatzoulis","sequence":"additional","affiliation":[{"name":"Royal Brompton and Harefield Hospital"},{"name":"National Heart and Lung Institute, Imperial College"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2025,9,11]]},"reference":[{"key":"S1047951125109396_ref10","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2024.39629"},{"key":"S1047951125109396_ref6","doi-asserted-by":"publisher","DOI":"10.1136\/bmjqs-2023-016196"},{"key":"S1047951125109396_ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsa.2021.02.001"},{"key":"S1047951125109396_ref3","doi-asserted-by":"crossref","first-page":"1","DOI":"10.12968\/bjca.2023.0068","article-title":"A nurse-led model: developing a one-stop clinic for patients with congenital heart disease","volume":"18","author":"Habibi","year":"2023","journal-title":"Br J Card Nurs"},{"key":"S1047951125109396_ref2","doi-asserted-by":"publisher","DOI":"10.1016\/j.heliyon.2024.e33186"},{"key":"S1047951125109396_ref5","doi-asserted-by":"publisher","DOI":"10.1136\/bmjinnov-2020-000428"},{"key":"S1047951125109396_ref9","doi-asserted-by":"publisher","DOI":"10.1097\/JAC.0b013e318249e0fd"},{"key":"S1047951125109396_ref12","doi-asserted-by":"publisher","DOI":"10.2196\/43086"},{"key":"S1047951125109396_ref1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.122.060834"},{"key":"S1047951125109396_ref8","doi-asserted-by":"publisher","DOI":"10.31478\/202202c"},{"key":"S1047951125109396_ref13","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0234926"},{"key":"S1047951125109396_ref11","first-page":"284","article-title":"Engaging patients in decision-making and behavior change to promote prevention","volume":"240","author":"Krist","year":"2017","journal-title":"Stud Health Technol Inform"},{"key":"S1047951125109396_ref7","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2022.05.002"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951125109396","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,22]],"date-time":"2026-05-22T04:58:55Z","timestamp":1779425935000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951125109396\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,9,11]]},"references-count":13,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2025,10]]}},"alternative-id":["S1047951125109396"],"URL":"https:\/\/doi.org\/10.1017\/s1047951125109396","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,9,11]]},"assertion":[{"value":"\u00a9 The Author(s), 2025. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided that no alterations are made and the original article is properly cited. The written permission of Cambridge University Press or the rights holder(s) must be obtained prior to any commercial use and\/or adaptation of the article.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}