{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T12:46:23Z","timestamp":1785415583368,"version":"3.56.0"},"reference-count":22,"publisher":"Cambridge University Press (CUP)","issue":"5","license":[{"start":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T00:00:00Z","timestamp":1779148800000},"content-version":"unspecified","delay-in-days":18,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2026,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1047951126113018_as1\">\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Paediatric mechanical circulatory support with Berlin Heart\u2014EXCOR\u00ae Paediatric is predominantly used as a bridge to transplant or recovery, specifically in children up to 30 kg. While survival with ventricular assist devices has improved, insights into morbidity and quality of life remain limited. Safely discharging children, particularly with the new driving unit EXCOR\u00ae Active (BH-EA), is now of clinical interest. Multidisciplinary and caregiver perspectives are needed to inform practice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951126113018_as2\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Through semi-structured interviews with 22 professionals (physicians, nurses, psychologists, engineers, physiotherapists, social workers, child education specialists, chaplains) and three caregivers of hospitalised children on BH-EA, we explored: (1) device safety and daily care; (2) hospital environmental factors; (3) requirements for transitioning home with EXCOR\u00ae Active.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951126113018_as3\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Qualitative analysis yielded three main themes; of which two are explored in this publication: alarm management and home-discharge requirements for paediatric BH-EA patients. Participants described frequent low-priority alarms contributing to alarm fatigue. They called for clearer procedures, shared responsibilities, and enhanced caregiver training and identified prerequisites for safe discharge, including a 24\/7 emergency hotline, remote monitoring, comprehensive system-wide support, caregiver training, and strong healthcare networks.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1047951126113018_as4\">\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The interviews highlight that the BH-EA alarm management is conceptualised for in-hospital care, which leads to reservations concerning reliable home monitoring during medical events, such as blood clot formation. Multidisciplinary efforts are essential to enhance device safety, empower caregivers, and develop effective discharge programmes for children on BH-EA. Furthermore, organ allocation systems should be adjusted to avoid disadvantages in organ waiting times following home discharge.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1047951126113018","type":"journal-article","created":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T05:57:15Z","timestamp":1779170235000},"page":"943-949","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["\u201cReady for home?\u201d Multidisciplinary and caregiver views on children with Berlin Heart EXCOR active: a qualitative study"],"prefix":"10.1017","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7957-655X","authenticated-orcid":false,"given":"Franziska","family":"Markel","sequence":"first","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01mmady97","id-type":"ROR","asserted-by":"publisher"}],"name":"Deutsches Herzzentrum der Charit\u00e9 - Charit\u00e9 Campus Virchow-Klinikum"},{"id":[{"id":"https:\/\/ror.org\/01mmady97","id-type":"ROR","asserted-by":"publisher"}],"name":"Deutsches Herzzentrum der Charit\u00e9 - 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Berlin Heart GmbH. Excor Active-Driving System\/EXCOR VAD-Ventricular Assist Device. Instructions for Clinical Use. Edition 1.0: 1-212. 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Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}