{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,2]],"date-time":"2026-06-02T07:51:14Z","timestamp":1780386674566,"version":"3.54.1"},"reference-count":31,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2021,3,29]],"date-time":"2021-03-29T00:00:00Z","timestamp":1616976000000},"content-version":"unspecified","delay-in-days":87,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Prim Health Care Res Dev"],"published-print":{"date-parts":[[2021]]},"abstract":"<jats:title>Abstract<\/jats:title>\n\t  <jats:sec id=\"S1463423620000651_as1\">\n\t    <jats:title>Aim:<\/jats:title>\n\t    <jats:p>To explore the lived experience of delivering or receiving news about an unborn or newborn child having a condition associated with a learning disability in order to inform the development of a training intervention for healthcare professionals. We refer to this news as different news.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1463423620000651_as2\">\n\t    <jats:title>Background:<\/jats:title>\n\t    <jats:p>How healthcare professionals deliver different news to parents affects the way they adjust to the situation, the wellbeing of their child and their ongoing engagement with services. This is the first study that examined the lived experience of delivering and receiving different news, in order to inform the development of training for healthcare professionals using the Theoretical Domains Framework version 2.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1463423620000651_as3\">\n\t    <jats:title>Method:<\/jats:title>\n\t    <jats:p>We conducted qualitative interviews with a purposive sample of 9 different parents with the lived experience of receiving different news and 12 healthcare professionals who delivered different news. It was through these descriptions of the lived experience that barriers and facilitators to effectively delivering different news were identified to inform the training programme. Data analysis was guided by Theoretical Domains Framework version 2 to identify these barriers and facilitators as well as the content of a training intervention.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1463423620000651_as4\">\n\t    <jats:title>Findings:<\/jats:title>\n\t    <jats:p>Receiving different news had a significant impact on parents\u2019 emotional and mental wellbeing. They remembered how professionals described their child, the quality of care and emotional support they received. The process had a significant impact on the parent\u2013child relationship and the relationship between the family and healthcare professionals.<\/jats:p>\n\t    <jats:p>Delivering different news was challenging for some healthcare professionals due to lack of training. Future training informed by parents\u2019 experiences should equip professionals to demonstrate empathy, compassion, provide a balanced description of conditions and make referrals for further care and support. This can minimise the negative psychological impact of the news, maximise psychological wellbeing of families and reduce the burden on primary care services.<\/jats:p>\n\t  <\/jats:sec>","DOI":"10.1017\/s1463423620000651","type":"journal-article","created":{"date-parts":[[2021,3,29]],"date-time":"2021-03-29T08:06:17Z","timestamp":1617005177000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":15,"title":["Improving the way healthcare professionals deliver different news to families during pregnancy or at birth: a qualitative study"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3292-3235","authenticated-orcid":false,"given":"Esther","family":"Mugweni","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samantha","family":"Goodliffe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabrena","family":"Jaswal","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melita","family":"Walker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela","family":"Emrys-Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cheryll","family":"Adams","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2507-0350","authenticated-orcid":false,"given":"Sally","family":"Kendall","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2021,3,29]]},"reference":[{"key":"S1463423620000651_ref13","doi-asserted-by":"publisher","DOI":"10.1037\/fsh0000195"},{"key":"S1463423620000651_ref24","doi-asserted-by":"publisher","DOI":"10.4324\/9780203413081_chapter_9"},{"key":"S1463423620000651_ref9","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2011.11.001"},{"key":"S1463423620000651_ref1","doi-asserted-by":"publisher","DOI":"10.1186\/s12978-018-0454-2"},{"key":"S1463423620000651_ref21","doi-asserted-by":"publisher","DOI":"10.1186\/1752-4458-8-46"},{"key":"S1463423620000651_ref30","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2013.0620"},{"key":"S1463423620000651_ref2","doi-asserted-by":"publisher","DOI":"10.1186\/s13012-017-0605-9"},{"key":"S1463423620000651_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2015.12.005"},{"key":"S1463423620000651_ref6","doi-asserted-by":"publisher","DOI":"10.1002\/icd.383"},{"key":"S1463423620000651_ref31","doi-asserted-by":"publisher","DOI":"10.1111\/j.1523-536X.2006.00148.x"},{"key":"S1463423620000651_ref14","doi-asserted-by":"publisher","DOI":"10.1080\/02646838.2016.1253052"},{"key":"S1463423620000651_ref26","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-011-9425-2"},{"key":"S1463423620000651_ref17","doi-asserted-by":"publisher","DOI":"10.1007\/s12160-013-9486-6"},{"key":"S1463423620000651_ref20","unstructured":"Mugweni, E , Walker, M , Goodliffe, S , Jaswal, S , Lowenhoffe, C and Kendall, S (2019) Improving the delivery of different news to families by healthcare professionals. NHS Benchmarking & Good Practice in Learning Disabilities Conference. London, UK, 5 March."},{"key":"S1463423620000651_ref22","unstructured":"NHS. (2019) The NHS Long Term Plan. Retrieved 11 August 2019 from https:\/\/www.longtermplan.nhs.uk\/wp-content\/uploads\/2019\/08\/nhs-long-term-plan-version-1.2.pdf"},{"key":"S1463423620000651_ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.srhc.2017.12.001"},{"key":"S1463423620000651_ref23","volume-title":"Fetal Anomaly Screening Programme Standards 2015-2016","year":"2017"},{"key":"S1463423620000651_ref19","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315576699"},{"key":"S1463423620000651_ref29","first-page":"e003","article-title":"Towards a taxonomy for integrated care: a mixed- methods study","volume":"15","author":"Valentin","year":"2015","journal-title":"International Journal of Integrated Care"},{"key":"S1463423620000651_ref27","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-0480"},{"key":"S1463423620000651_ref4","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-7-37"},{"key":"S1463423620000651_ref25","unstructured":"Royal College of Nursing [RCN] (2013) Breaking bad news: supporting parents when they are told of their child\u2019s diagnosis RCN guidance for nurses, midwives and health visitors."},{"key":"S1463423620000651_ref15","doi-asserted-by":"publisher","DOI":"10.1186\/s13012-017-0663-z"},{"key":"S1463423620000651_ref28","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(14)61277-0"},{"key":"S1463423620000651_ref16","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-6-42"},{"key":"S1463423620000651_ref18","doi-asserted-by":"publisher","DOI":"10.3310\/hta13300"},{"key":"S1463423620000651_ref5","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-023460"},{"key":"S1463423620000651_ref10","doi-asserted-by":"publisher","DOI":"10.1177\/1367493512473856"},{"key":"S1463423620000651_ref12","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2008.0251"},{"key":"S1463423620000651_ref11","doi-asserted-by":"publisher","DOI":"10.3109\/14767058.2016.1141888"},{"key":"S1463423620000651_ref7","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.30100"}],"container-title":["Primary Health Care Research &amp; Development"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1463423620000651","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,3,29]],"date-time":"2021-03-29T08:06:28Z","timestamp":1617005188000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1463423620000651\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021]]},"references-count":31,"alternative-id":["S1463423620000651"],"URL":"https:\/\/doi.org\/10.1017\/s1463423620000651","relation":{},"ISSN":["1463-4236","1477-1128"],"issn-type":[{"value":"1463-4236","type":"print"},{"value":"1477-1128","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021]]},"assertion":[{"value":"\u00a9 The Author(s) 2021","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e10"}}