{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T17:56:06Z","timestamp":1785434166900,"version":"3.56.0"},"reference-count":47,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,1,26]],"date-time":"2026-01-26T00:00:00Z","timestamp":1769385600000},"content-version":"unspecified","delay-in-days":25,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Prim Health Care Res Dev"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1463423626100838_as1\">\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>This exploratory project aimed to develop online learning materials with interactive narratives for supporting persons living with dementia, with particular focus on initial diagnosis and helping children to understand changes which may occur.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1463423626100838_as2\">\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Dementia is a range of neurological conditions that cause the ongoing decline in brain function, manifesting as loss of memory, language, and problem-solving abilities. Over 55 million people worldwide are living with dementia, straining health and social care resources in their ability to provide information, care, and support for the family. There is a need for easily accessible, high-quality, and nationally scalable resources for dementia support for this growing population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1463423626100838_as3\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>\n                      <jats:italic>Twine<\/jats:italic>\n                      was used to produce online digital storytelling media titled\n                      <jats:italic>\u2018Grandad Forgot My Name\u2019<\/jats:italic>\n                      , following the narrative of dementia care for family members. Design, theming, artwork, and story pathways reflected key aspects of dementia and dementia care to facilitate additional support for readers, and health and social care workers. Usage statistics were monitored and readers answered evaluative surveys with numerical scoring and descriptive free responses. Story pathways and information were continuously updated following survey responses.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1463423626100838_as4\">\n                    <jats:title>Findings:<\/jats:title>\n                    <jats:p>\n                      Twine and interactive storytelling had potential to reach a wide audience at minimal cost, bridging the gaps between initial concerns, diagnosis, and appointment. However, there were issues with stakeholder adoptability and uptake when sharing materials which must be resolved in full-scaled outputs\n                      <jats:italic>. Grandad Forgot My Name<\/jats:italic>\n                      successfully demonstrated key design and logistical considerations when creating support resources of national impact, with cross-generational communication and reader-centric design optimising engagement.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1463423626100838","type":"journal-article","created":{"date-parts":[[2026,1,26]],"date-time":"2026-01-26T10:03:32Z","timestamp":1769421812000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Grandad forgot my name: interactive narratives for dementia support"],"prefix":"10.1017","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3422-8591","authenticated-orcid":false,"given":"Rhys","family":"Williams","sequence":"first","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01by1wp65","id-type":"ROR","asserted-by":"publisher"}],"name":"Loyola University Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexandra","family":"Hoekstra","sequence":"additional","affiliation":[{"name":"Teesside University"},{"name":"National Horizons Centre"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Blake","sequence":"additional","affiliation":[{"name":"Teesside University"},{"name":"National Horizons Centre"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kamar","family":"Ameen-Ali","sequence":"additional","affiliation":[{"name":"Teesside University"},{"name":"National Horizons Centre"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,1,26]]},"reference":[{"key":"S1463423626100838_ref22","doi-asserted-by":"publisher","DOI":"10.1300\/J078v13n03_07"},{"key":"S1463423626100838_ref24","doi-asserted-by":"publisher","DOI":"10.1177\/1403494819863514"},{"key":"S1463423626100838_ref101","unstructured":"Klimas, C (2009) Twine\/An open-source tool for telling interactive, nonlinear stories."},{"key":"S1463423626100838_ref15","doi-asserted-by":"publisher","DOI":"10.2307\/jj.15136021.10"},{"key":"S1463423626100838_ref11","doi-asserted-by":"publisher","DOI":"10.1145\/3555858.3555917"},{"key":"S1463423626100838_ref23","doi-asserted-by":"publisher","DOI":"10.1016\/j.arr.2024.102193"},{"key":"S1463423626100838_ref27","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-61671-7_31"},{"key":"S1463423626100838_ref3","doi-asserted-by":"publisher","DOI":"10.1177\/0733464817723088"},{"key":"S1463423626100838_ref9","doi-asserted-by":"publisher","DOI":"10.3389\/feduc.2021.623793"},{"key":"S1463423626100838_ref7","first-page":"177","article-title":"Mental Jam- Video game co-creation for young people with lived experiences of depression and anxiety","volume":"1","author":"Chen","year":"2021","journal-title":"Games for Change Asia-Pacific Journal"},{"key":"S1463423626100838_ref20","doi-asserted-by":"publisher","DOI":"10.4108\/eetpht.9.3365"},{"key":"S1463423626100838_ref14","doi-asserted-by":"publisher","DOI":"10.1016\/j.daach.2023.e00267"},{"key":"S1463423626100838_ref38","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2020.103573"},{"key":"S1463423626100838_ref42","volume-title":"A Blueprint for Dementia Research","year":"2022"},{"key":"S1463423626100838_ref28","unstructured":"NHS (2023) RE: Dementia."},{"key":"S1463423626100838_ref35","doi-asserted-by":"publisher","DOI":"10.1111\/jpm.12822"},{"key":"S1463423626100838_ref8","doi-asserted-by":"publisher","DOI":"10.1007\/s11920-023-01453-5"},{"key":"S1463423626100838_ref44","doi-asserted-by":"publisher","DOI":"10.1159\/000514838"},{"key":"S1463423626100838_ref13","first-page":"985","article-title":"Dementia: A brief review","volume":"73","author":"Grossman","year":"2006","journal-title":"The Mount Sinai Journal of Medicine, New York"},{"key":"S1463423626100838_ref45","doi-asserted-by":"publisher","DOI":"10.1504\/IJCRC.2013.056924"},{"key":"S1463423626100838_ref16","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2019.1690089"},{"key":"S1463423626100838_ref","first-page":"16","article-title":"The Spirited Project: Support for families and friends offering spiritual care to people living with dementia","volume":"152","author":"Jackson","year":"2021","journal-title":"Zadok Perspectives"},{"key":"S1463423626100838_ref6","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2021.1914755"},{"key":"S1463423626100838_ref19","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0237220"},{"key":"S1463423626100838_ref2","doi-asserted-by":"publisher","DOI":"10.1007\/s40692-022-00240-0"},{"key":"S1463423626100838_ref34","doi-asserted-by":"publisher","DOI":"10.1016\/j.dscb.2021.100008"},{"key":"S1463423626100838_ref36","doi-asserted-by":"publisher","DOI":"10.1177\/1471301216674559"},{"key":"S1463423626100838_ref32","doi-asserted-by":"publisher","DOI":"10.1109\/SeGAH.2016.7586272"},{"key":"S1463423626100838_ref17","doi-asserted-by":"publisher","DOI":"10.3390\/rel13050462"},{"key":"S1463423626100838_ref29","doi-asserted-by":"publisher","DOI":"10.2196\/14694"},{"key":"S1463423626100838_ref37","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.2005.086074"},{"key":"S1463423626100838_ref18","doi-asserted-by":"publisher","DOI":"10.1016\/j.cptl.2018.09.012"},{"key":"S1463423626100838_ref25","doi-asserted-by":"publisher","DOI":"10.1186\/s13063-018-3069-6"},{"key":"S1463423626100838_ref26","doi-asserted-by":"publisher","DOI":"10.1145\/3411764.3445764"},{"key":"S1463423626100838_ref30","volume-title":"R: A Language and Environment for Statistical Computing","year":"2025"},{"key":"S1463423626100838_ref5","doi-asserted-by":"publisher","DOI":"10.1007\/s10583-020-09405-w"},{"key":"S1463423626100838_ref33","doi-asserted-by":"publisher","DOI":"10.1021\/acs.jchemed.2c00481"},{"key":"S1463423626100838_ref41","doi-asserted-by":"publisher","DOI":"10.1002\/gps.5113"},{"key":"S1463423626100838_ref21","doi-asserted-by":"publisher","DOI":"10.14569\/IJACSA.2022.0130625"},{"key":"S1463423626100838_ref40","doi-asserted-by":"publisher","DOI":"10.1111\/opn.12514"},{"key":"S1463423626100838_ref39","first-page":"82","article-title":"Choose your own murder: Non-linear narratives enhance student understanding in forensic science education","volume":"2","author":"Thompson","year":"2020","journal-title":"Forensic Science International: Synergy"},{"key":"S1463423626100838_ref31","doi-asserted-by":"publisher","DOI":"10.1177\/07334648211015456"},{"key":"S1463423626100838_ref43","doi-asserted-by":"publisher","DOI":"10.1109\/LISAT.2013.6578252"},{"key":"S1463423626100838_ref1","unstructured":"Alzheimer\u2019s Society (2023) RE: How much does dementia care cost?"},{"key":"S1463423626100838_ref10","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13307"},{"key":"S1463423626100838_ref4","doi-asserted-by":"publisher","DOI":"10.32920\/ifmj.v2i4.1693"},{"key":"S1463423626100838_ref12","doi-asserted-by":"publisher","DOI":"10.26503\/dl.v2013i1.693"}],"container-title":["Primary Health Care Research &amp; Development"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1463423626100838","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,26]],"date-time":"2026-01-26T10:03:37Z","timestamp":1769421817000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1463423626100838\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":47,"alternative-id":["S1463423626100838"],"URL":"https:\/\/doi.org\/10.1017\/s1463423626100838","relation":{},"ISSN":["1463-4236","1477-1128"],"issn-type":[{"value":"1463-4236","type":"print"},{"value":"1477-1128","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026]]},"assertion":[{"value":"\u00a9 The Author(s), 2026. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided that no alterations are made and the original article is properly cited. The written permission of Cambridge University Press or the rights holder(s) must be obtained prior to any commercial use and\/or adaptation of the article.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e12"}}