{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,29]],"date-time":"2026-01-29T23:02:52Z","timestamp":1769727772010,"version":"3.49.0"},"reference-count":54,"publisher":"Cambridge University Press (CUP)","issue":"6","license":[{"start":{"date-parts":[[2015,6,11]],"date-time":"2015-06-11T00:00:00Z","timestamp":1433980800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2015,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec id=\"S1478951515000620_sec_a1\"><jats:title>Objective:<\/jats:title><jats:p>Motor Neurone Disease (MND) is a rare, devastating neurodegenerative disease of middle\/later life, usually presenting in the sixth and seventh decades (McDermot &amp; Shaw, 2008). People have to wait many months to receive a diagnosis of MND (Donaghy et al., 2008), and during this period they have already experienced the degenerative nature that characterizes MND (Bolmsj\u00f6, 2001). However, information on the meaning of life with MND through time is limited. The aim of the present research was to answer the research question \u201cWhat does it mean to be a person living through the illness trajectory of MND?\u201d and to research the phenomenon of existence when given a diagnosis of MND and in the context of receiving healthcare.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951515000620_sec_a2\"><jats:title>Method:<\/jats:title><jats:p>Hermeneutic phenomenology, inspired by the philosophers Heidegger and Gadamer, informed the methodological approach employed, which asked people to tell their story from when they first thought something untoward was happening to them. The hermeneutic analysis involved a five-stage process in order to understand (interpret) the lifeworld<jats:sup>1<\/jats:sup>of four people diagnosed with MND, and a lifeworld perspective helped to make sense of the meaning of existence when given a terminal diagnosis of MND.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951515000620_sec_a3\"><jats:title>Results:<\/jats:title><jats:p>The concept of \u201cexistential loss\u201d identified in relation to MND was the loss of past ways of being-in-the-world, and the loss of embodiment, spatiality, and the future.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951515000620_sec_a4\"><jats:title>Significance of results:<\/jats:title><jats:p>The concept of existential loss requires closer attention by healthcare professionals from the time of diagnosis and on through the illness trajectory. The study findings are conceptualized into a framework, which when used as a clinical tool may prompt healthcare professionals to focus on their patients' existential loss and existential concerns. This research adds to the existing literature calling for a lifeworld approach to healthcare.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951515000620","type":"journal-article","created":{"date-parts":[[2015,7,14]],"date-time":"2015-07-14T07:55:13Z","timestamp":1436860513000},"page":"1579-1594","source":"Crossref","is-referenced-by-count":18,"title":["Lived-through past, experienced present, anticipated future: Understanding \u201cexistential loss\u201d in the context of life-limiting illness"],"prefix":"10.1017","volume":"13","author":[{"given":"Denise A.","family":"Harris","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2015,6,11]]},"reference":[{"key":"S1478951515000620_ref30","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2524.2005.00530.x"},{"key":"S1478951515000620_ref22","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1800.2003.00163.x"},{"key":"S1478951515000620_ref19","article-title":"Patient wins the right to die \u2026 by blinking his eye","volume":"8","author":"Doughty","year":"2012","journal-title":"Daily Mail"},{"key":"S1478951515000620_ref9","doi-asserted-by":"publisher","DOI":"10.1089\/109662101753381647"},{"key":"S1478951515000620_ref25","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.1993.18091386.x"},{"key":"S1478951515000620_ref49","first-page":"189","volume-title":"Handbook of qualitative research","author":"Schwandt","year":"2000"},{"key":"S1478951515000620_ref18","first-page":"18","article-title":"Timeliness of diagnosis in motor neurone disease: A population-based study","volume":"77","author":"Donaghy","year":"2008","journal-title":"The Ulster Medical Journal"},{"key":"S1478951515000620_ref45","volume-title":"Qualitative evaluation and research methods","author":"Patton","year":"1990"},{"key":"S1478951515000620_ref14","doi-asserted-by":"publisher","DOI":"10.4135\/9781446279878"},{"key":"S1478951515000620_ref36","doi-asserted-by":"publisher","DOI":"10.1016\/j.jns.2007.03.001"},{"key":"S1478951515000620_ref23","volume-title":"Truth and method","author":"Gadamer","year":"1975"},{"key":"S1478951515000620_ref35","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.39493.511759.BE"},{"key":"S1478951515000620_ref31","volume-title":"Heidegger: A very short introduction","author":"Inwood","year":"1997"},{"key":"S1478951515000620_ref46","volume-title":"Heidegger: An introduction","author":"Polt","year":"1999"},{"key":"S1478951515000620_ref12","doi-asserted-by":"publisher","DOI":"10.12968\/bjnn.2005.1.5.20273"},{"key":"S1478951515000620_ref3","unstructured":"American Psychological Association (2014). 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