{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T00:12:06Z","timestamp":1789603926759,"version":"build-2803163510"},"reference-count":40,"publisher":"Cambridge University Press (CUP)","issue":"6","license":[{"start":{"date-parts":[[2022,8,12]],"date-time":"2022-08-12T00:00:00Z","timestamp":1660262400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2023,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951522001043_sec_a1\"><jats:title>Objectives<\/jats:title><jats:p>Data regarding the palliative needs of pediatric patients with central nervous system (CNS) cancer are scarce. We aimed to describe the attention provided by a pediatric palliative care (PPC) team to patients with CNS cancer and the differences in care compared to patients who did not receive PPC.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001043_sec_a2\" sec-type=\"methods\"><jats:title>Method<\/jats:title><jats:p>This retrospective study was based on the clinical records of deceased patients with CNS cancer attended by a PPC team over 10 years, analyzing their trajectory and provision of PPC, including medical, psychological, social, and nursing interventions. Furthermore, we compared the last month of life care of deceased patients with CNS cancer in the same institution, based on whether they were attended by the PPC team.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001043_sec_a3\" sec-type=\"results\"><jats:title>Results<\/jats:title><jats:p>Of 71 patients, 59 received PPC, with a median of 1.6 months (Interquartile range: 0.6\u20135.2) from referral to death. Home hospitalization was provided to 84.8%, nursing interventions were registered in 89.8%, psychological characteristics in 84.7%, and social interventions in 88.1%. The most common symptoms were pain, dyspnea, and constipation. When comparing patients from the same hospital who received PPC (<jats:italic>n<\/jats:italic> = 36) with those who did not (<jats:italic>n<\/jats:italic> = 12), the former spent fewer days in the hospital in their last month and last week (<jats:italic>p<\/jats:italic> &lt; 0.01) and were more likely to die at home (50% vs. 0%; <jats:italic>p<\/jats:italic> &lt; 0.01).<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001043_sec_a4\"><jats:title>Significance of results<\/jats:title><jats:p>Patients with CNS cancer show various medical, social, and psychological needs during end-of-life care. Providing specific PPC interventions decreased the number of days spent at the hospital and increased the rate of death at home.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951522001043","type":"journal-article","created":{"date-parts":[[2022,8,12]],"date-time":"2022-08-12T06:11:07Z","timestamp":1660284667000},"page":"988-995","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Palliative care in pediatric patients with central nervous system cancer: Descriptive and comparative study"],"prefix":"10.1017","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8346-4756","authenticated-orcid":false,"given":"I\u00f1igo","family":"de Noriega","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ricardo","family":"Martino Alba","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Blanca","family":"Herrero Velasco","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luis","family":"Madero L\u00f3pez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00c1lvaro","family":"Lassaletta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2022,8,12]]},"reference":[{"key":"S1478951522001043_ref35","doi-asserted-by":"publisher","DOI":"10.1177\/0269216315583446"},{"key":"S1478951522001043_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.pcl.2007.10.011"},{"key":"S1478951522001043_ref34","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25160"},{"key":"S1478951522001043_ref21","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25848"},{"key":"S1478951522001043_ref18","doi-asserted-by":"publisher","DOI":"10.1177\/1043454204264386"},{"key":"S1478951522001043_ref38","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2014.59.1222"},{"key":"S1478951522001043_ref25","doi-asserted-by":"publisher","DOI":"10.1098\/rstb.2017.0267"},{"key":"S1478951522001043_ref9","doi-asserted-by":"publisher","DOI":"10.1097\/SPC.0b013e3283615ebe"},{"key":"S1478951522001043_ref16","doi-asserted-by":"publisher","DOI":"10.1055\/s-2008-1065347"},{"key":"S1478951522001043_ref2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2020.04.028"},{"key":"S1478951522001043_ref7","article-title":"Coverage of pediatric patients with palliative needs in the region of Madrid","author":"de Noriega","year":"2020","journal-title":"Anales De Pediatria (Barcelona, Spain: 2003)"},{"key":"S1478951522001043_ref28","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2007-2681"},{"key":"S1478951522001043_ref40","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2008.0152"},{"key":"S1478951522001043_ref11","first-page":"1","article-title":"Better outcomes, lower costs: Palliative care program reduces stress, costs of care for children with life-threatening conditions","volume":"3","author":"Gans","year":"2012","journal-title":"Policy Brief (UCLA Center for Health Policy Research)"},{"key":"S1478951522001043_ref6","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.24673"},{"key":"S1478951522001043_ref12","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(13)70548-5"},{"key":"S1478951522001043_ref19","doi-asserted-by":"publisher","DOI":"10.1093\/nop\/npu038"},{"key":"S1478951522001043_ref14","doi-asserted-by":"crossref","first-page":"1588","DOI":"10.1089\/jpm.2013.0129","article-title":"Specialized pediatric palliative home care: A prospective evaluation","volume":"16","author":"Groh","year":"2013","journal-title":"Journal of Palliative Medicine"},{"key":"S1478951522001043_ref4","doi-asserted-by":"publisher","DOI":"10.1002\/cam4.1907"},{"key":"S1478951522001043_ref29","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2013.0014"},{"key":"S1478951522001043_ref39","doi-asserted-by":"crossref","first-page":"381","DOI":"10.1177\/0269216318818022","article-title":"Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period","volume":"33","author":"Zernikow","year":"2019","journal-title":"Palliative Medicine"},{"key":"S1478951522001043_ref27","doi-asserted-by":"publisher","DOI":"10.1080\/08880010701451079"},{"key":"S1478951522001043_ref1","unstructured":"American Society of Pediatric Hematology\/Oncology (ASPHO) (n.d.) Retrieved from. http:\/\/aspho.org\/membership\/special-interest-groups\/palliative-care"},{"key":"S1478951522001043_ref24","doi-asserted-by":"publisher","DOI":"10.1177\/1049909114543641"},{"key":"S1478951522001043_ref15","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.31265"},{"key":"S1478951522001043_ref13","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2005-0683"},{"key":"S1478951522001043_ref10","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2014.0285"},{"key":"S1478951522001043_ref5","doi-asserted-by":"publisher","DOI":"10.1007\/s00482-008-0690-4"},{"key":"S1478951522001043_ref26","unstructured":"Palliative Care Working Group. International Society of Paediatric Oncology (n.d.) Retrieved from. https:\/\/siop-online.org\/palliative-care-working-group\/"},{"key":"S1478951522001043_ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.soncn.2010.08.003"},{"key":"S1478951522001043_ref37","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM200002033420506"},{"key":"S1478951522001043_ref23","doi-asserted-by":"publisher","DOI":"10.1200\/JOP.2017.021451"},{"key":"S1478951522001043_ref31","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.18.02331"},{"key":"S1478951522001043_ref32","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1000678"},{"key":"S1478951522001043_ref30","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0000000000000573"},{"key":"S1478951522001043_ref36","unstructured":"WHO (n.d.) WHO definition of palliative care. Retrieved from http:\/\/www.who.int\/cancer\/palliative\/definition\/en\/ (acceso Noviembre 2017)."},{"key":"S1478951522001043_ref17","doi-asserted-by":"publisher","DOI":"10.1177\/1049909115609294"},{"key":"S1478951522001043_ref20","first-page":"315","article-title":"Pediatric palliative care in the community: Community pediatric palliative care","volume":"65","author":"Kaye","year":"2015","journal-title":"CA: A Cancer Journal for Clinicians"},{"key":"S1478951522001043_ref22","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejpn.2015.12.004"},{"key":"S1478951522001043_ref33","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.31639"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951522001043","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,12,5]],"date-time":"2023-12-05T01:36:55Z","timestamp":1701740215000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951522001043\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,8,12]]},"references-count":40,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2023,12]]}},"alternative-id":["S1478951522001043"],"URL":"https:\/\/doi.org\/10.1017\/s1478951522001043","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,8,12]]},"assertion":[{"value":"Copyright \u00a9 The Author(s), 2022. Published by Cambridge University Press","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}}]}}