{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,3]],"date-time":"2026-10-03T03:35:29Z","timestamp":1790998529913,"version":"4.1.0"},"reference-count":45,"publisher":"Cambridge University Press (CUP)","issue":"5","license":[{"start":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T00:00:00Z","timestamp":1660694400000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["KL2TR002648"],"award-info":[{"award-number":["KL2TR002648"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2023,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951522001110_sec_a1\"><jats:title>Objective<\/jats:title><jats:p>Caregivers of patients with primary brain tumor (PBT) describe feeling preoccupied with the inevitability of their loved one's death. However, there are currently no validated instruments to assess death anxiety in caregivers. This study sought to examine (1) the psychometric properties of the Death and Dying Distress Scale (DADDS), adapted for caregivers (DADDS-CG), and (2) the prevalence and correlates of death anxiety in caregivers of patients with PBT.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001110_sec_a2\" sec-type=\"methods\"><jats:title>Methods<\/jats:title><jats:p>Caregivers (<jats:italic>N<\/jats:italic> = 67) of patients with PBT completed the DADDS-CG, Patient Health Questionnaire (PHQ-9), Generalized Anxiety Disorder (GAD-7), Fear of Cancer Recurrence (FCR-7), and God Locus of Health Control (GLHC). Caregivers\u2019 sociodemographic information and patients\u2019 medical characteristics were also collected. Preliminary examination of the psychometric properties of the DADDS-CG was conducted using exploratory factor analysis, Cronbach's alpha, and correlations. The prevalence and risk factors of death anxiety were assessed using frequencies, pair-wise comparisons, and correlations.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001110_sec_a3\" sec-type=\"results\"><jats:title>Results<\/jats:title><jats:p>Factor analysis of the DADDS-CG revealed a two-factor structure consistent with the original DADDS. The DADDS-CG demonstrated excellent internal consistency, convergent validity with the PHQ-9, GAD-7, and FCR-7, and discriminant validity with the GLHC. Over two-thirds of caregivers reported moderate-to-severe symptoms of death anxiety. Death anxiety was highest in women and caregivers of patients with high-grade PBT.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001110_sec_a4\"><jats:title>Significance of results<\/jats:title><jats:p>The DADDS-CG demonstrates sound psychometric properties in caregivers of patients with PBT, who report high levels of death anxiety. Further research is needed to support the measure's value in clinical care and research \u2014 both in this population and other caregivers \u2014 in order to address this unmet, psychosocial need.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951522001110","type":"journal-article","created":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T06:00:14Z","timestamp":1660716014000},"page":"812-819","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":19,"title":["Measuring and understanding death anxiety in caregivers of patients with primary brain tumor"],"prefix":"10.1017","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3974-634X","authenticated-orcid":false,"given":"Kelcie","family":"Willis","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Scott 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