{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,21]],"date-time":"2026-02-21T12:21:46Z","timestamp":1771676506576,"version":"3.50.1"},"reference-count":28,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2023,3,29]],"date-time":"2023-03-29T00:00:00Z","timestamp":1680048000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523000184_sec1a\"><jats:title>Objectives<\/jats:title><jats:p>Multiple studies have focused on severely ill patients in the role as parents of dependent children, yet few have explored the thoughts and feelings within this group during palliative home care.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000184_sec2b\"><jats:title>Methods<\/jats:title><jats:p>This qualitative study derives from a pilot intervention study, the Family Talk Intervention (FTI), in specialized palliative home care. The FTI is a support program with the main goal to increase family communication about illness-related topics. The study is based on field notes from 104 sessions with 20 parents taken by an interventionist during intervention delivery. The field notes were analyzed using the principles of qualitative content analysis.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000184_sec3c\"><jats:title>Results<\/jats:title><jats:p>The field notes revealed several challenging situations for parents with severe illness. A major issue was how to find ways to talk to their children about their illness and prognosis. The parents expressed guilt for being unable to fulfill their roles as parents and partners. Existing family conflicts had escalated with the illness, according to some parents. Despite being affected by illness, parents tried to have hope, if only for small things \u2013 such as a period of ordinary family life.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000184_sec4d\"><jats:title>Significance of results<\/jats:title><jats:p>Severely ill parents in specialized palliative home care seek support regarding how to communicate and stay connected to their roles in the family, which is a struggle when a parent is cared for at home, while it in contrast may promote normality and hope. Communication with children is vital and needs to be brought to the attention of health-care professionals. A family-centered focus, involving both parents and children, should be embraced.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523000184","type":"journal-article","created":{"date-parts":[[2023,3,29]],"date-time":"2023-03-29T09:27:41Z","timestamp":1680082061000},"page":"169-173","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Experiences of being a severely ill parent of dependent children receiving care at home: Hopes and challenges"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2074-5985","authenticated-orcid":false,"given":"Maja","family":"Holm","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Malin","family":"L\u00f6vgren","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2711-0245","authenticated-orcid":false,"given":"Anette","family":"Alvariza","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rakel","family":"Eklund","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8185-781X","authenticated-orcid":false,"given":"Ulrika","family":"Kreicbergs","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2023,3,29]]},"reference":[{"key":"S1478951523000184_ref19","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-021-06341-3"},{"key":"S1478951523000184_ref14","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2017.0058"},{"key":"S1478951523000184_ref17","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320967590"},{"key":"S1478951523000184_ref10","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2021.1947415"},{"key":"S1478951523000184_ref22","doi-asserted-by":"publisher","DOI":"10.1177\/0269216316661686"},{"key":"S1478951523000184_ref8","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-018-0290-8"},{"key":"S1478951523000184_ref12","doi-asserted-by":"publisher","DOI":"10.1177\/0269216310371411"},{"key":"S1478951523000184_ref5","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4164"},{"key":"S1478951523000184_ref16","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-018-4576-4"},{"key":"S1478951523000184_ref7","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-020-00551-y"},{"key":"S1478951523000184_ref24","doi-asserted-by":"publisher","DOI":"10.1200\/OP.21.00003"},{"key":"S1478951523000184_ref6","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(18)33202-1"},{"key":"S1478951523000184_ref13","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-017-3847-9"},{"key":"S1478951523000184_ref25","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4421"},{"key":"S1478951523000184_ref26","doi-asserted-by":"publisher","DOI":"10.1136\/ebnurs-2019-103192"},{"key":"S1478951523000184_ref2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951520000735"},{"key":"S1478951523000184_ref28","doi-asserted-by":"publisher","DOI":"10.1188\/15.ONF.337-344"},{"key":"S1478951523000184_ref11","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1177\/0269216316655736","article-title":"Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness: A systematic review","volume":"31","author":"Fearnley","year":"2017","journal-title":"Palliative Medicine"},{"key":"S1478951523000184_ref1","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/gbaa225"},{"key":"S1478951523000184_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.soncn.2021.151169"},{"key":"S1478951523000184_ref4","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2014.20.6.271"},{"key":"S1478951523000184_ref23","doi-asserted-by":"crossref","first-page":"942","DOI":"10.1002\/pon.3935","article-title":"Parenting concerns, quality of life, and psychological distress in patients with advanced cancer","volume":"25","author":"Park","year":"2016","journal-title":"Psycho-oncology"},{"key":"S1478951523000184_ref9","doi-asserted-by":"publisher","DOI":"10.1177\/1074840719898192"},{"key":"S1478951523000184_ref21","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.24002"},{"key":"S1478951523000184_ref15","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"S1478951523000184_ref20","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-016-3259-2"},{"key":"S1478951523000184_ref18","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221105564"},{"key":"S1478951523000184_ref27","doi-asserted-by":"publisher","DOI":"10.1080\/23311908.2019.1577593"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951523000184","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,4,30]],"date-time":"2024-04-30T03:38:01Z","timestamp":1714448281000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951523000184\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,3,29]]},"references-count":28,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2024,2]]}},"alternative-id":["S1478951523000184"],"URL":"https:\/\/doi.org\/10.1017\/s1478951523000184","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,3,29]]},"assertion":[{"value":"\u00a9 The Author(s), 2023. Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}}]}}