{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,1]],"date-time":"2026-11-01T07:15:30Z","timestamp":1793517330974,"version":"4.5.0"},"reference-count":37,"publisher":"Cambridge University Press (CUP)","issue":"2","license":[{"start":{"date-parts":[[2023,4,27]],"date-time":"2023-04-27T00:00:00Z","timestamp":1682553600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"funder":[{"DOI":"10.13039\/501100005275","name":"Region Hovedstaden","doi-asserted-by":"publisher","award":["N\/A"],"award-info":[{"award-number":["N\/A"]}],"id":[{"id":"10.13039\/501100005275","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523000469_sec1a\"><jats:title>Objectives<\/jats:title><jats:p>This study aimed at characterizing 3 populations of family\/friend caregivers of patients with different life-threatening organ failure regarding health-related quality of life, caregiver burden, and dyadic coping.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000469_sec2b\"><jats:title>Methods<\/jats:title><jats:p>Three cross-sectional (population) studies were conducted at a tertiary hospital in Denmark (2019\u20132020). Patients with renal failure (RF), cystic fibrosis (CF), and intestinal failure (IF) were asked to designate the closest person with \u226518\u00a0years old involved in the care (caregiver) to participate in this study. Number of caregivers included were RF\u00a0=\u00a078, CF\u00a0=\u00a0104, and IF\u00a0=\u00a073. Electronic questionnaires were filled in by caregivers to assess health-related quality of life and caregiver burden and by caregivers and respective patients to assess dyadic coping.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000469_sec3c\"><jats:title>Results<\/jats:title><jats:p>The 3 caregiver groups had self-perception of poor health and energy; however, caregivers of CF patients perceived their physical role functioning better than those caregiving for RF and IF patients (<jats:italic>p<\/jats:italic>\u00a0=\u00a00.002). The level of caregiver burden was reported as not high, but caregivers used in average 13\u00a0hours\/day for caring. Moreover, cleaning tasks (<jats:italic>p<\/jats:italic>\u00a0=\u00a00.005) and personal care (<jats:italic>p<\/jats:italic>\u00a0=\u00a00.009) were more demanding in RF and IF patients. Caregivers also did not differ regarding dyadic coping. When comparing patients and caregivers, stress communication by oneself and the partner differed (<jats:italic>p<\/jats:italic>\u00a0&lt;\u00a00.001).<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000469_sec4d\"><jats:title>Significance of results<\/jats:title><jats:p>Caregivers spent many hours in the care role, they reported poor health, and dyadic coping may be improved. Interventions in caregivers of patients with life-threatening organ failure could help to improve care management at home, caregiver\u2019s health, and dyadic coping between caregiver and patient and consequently reduce caregiver burden.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523000469","type":"journal-article","created":{"date-parts":[[2023,4,27]],"date-time":"2023-04-27T09:20:43Z","timestamp":1682587243000},"page":"331-337","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":4,"title":["The impact of caring on caregivers of patients with life-threatening organ failure"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5390-6963","authenticated-orcid":false,"given":"Geana Paula","family":"Kurita","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Inge","family":"Eidemak","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sille","family":"Larsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Palle Bekker","family":"Jeppesen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Louise Bangsgaard","family":"Antonsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stig","family":"Molsted","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ylian Serina","family":"Liem","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tania","family":"Pressler","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Per","family":"Sj\u00f8gren","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2023,4,27]]},"reference":[{"key":"S1478951523000469_ref21","unstructured":"National Cancer Institute (n.d.) 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