{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,27]],"date-time":"2026-03-27T08:23:15Z","timestamp":1774599795856,"version":"3.50.1"},"reference-count":31,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2023,6,29]],"date-time":"2023-06-29T00:00:00Z","timestamp":1687996800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523000573_sec1a\"><jats:title>Background<\/jats:title><jats:p>Alzheimer\u2019s disease is a chronic neurodegenerative disorder that results in total cognitive impairment and functional decline. Family members are the most usual caregivers worldwide, resulting in an increasing total burden and a subsequent degradation of their quality of life.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000573_sec2b\"><jats:title>Objectives<\/jats:title><jats:p>To evaluate the burden of care and quality of life among informal caregivers to Alzheimer patients in Egypt.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000573_sec3c\"><jats:title>Methods<\/jats:title><jats:p>A descriptive research design was used. The study was conducted at outpatient clinics of El-Abbasya Mental Hospital in Cairo, Egypt. This study included 550 informal caregivers of Alzheimer patients. Data were gathered through questionnaires using the Sociodemographic Profile of Family Caregivers, an adopted version of the Montgomery Borgatta Caregiver Burden scale, and Health-Related Quality of Life Scale.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000573_sec4d\"><jats:title>Results<\/jats:title><jats:p>Nearly three quarters (73.5%) of the informal caregivers were female. Additionally, the physical burden among the informal caregivers was the highest (21.58 \u00b1 8.13), while the psychological burden was the lowest (7.48 \u00b1 25.35). Besides, around one-third (30%) of the informal caregivers had a total poor quality of life.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000573_sec5e\"><jats:title>Significance of results<\/jats:title><jats:p>Total burden among informal caregivers of Alzheimer patients was relatively high (64.71 \u00b1 26.86). Moreover, less than one-tenth (8%) of the informal caregivers for Alzheimer\u2019s patients had a good quality of life, whereas more than half (62%) of them had an average quality of life. In the Egyptian context, ongoing health education initiatives for those who care for Alzheimer patients are essential, and additional research employing large study sample sizes in varied contexts is strongly advised.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523000573","type":"journal-article","created":{"date-parts":[[2023,6,29]],"date-time":"2023-06-29T07:03:37Z","timestamp":1688022217000},"page":"182-189","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":8,"title":["Burden of care and quality of life among informal caregivers to Alzheimer patients in Egypt"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8192-0017","authenticated-orcid":false,"given":"Ateya Megahed","family":"Ibrahim","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mahmoud Metwally","family":"Ibrahim","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Donia Elsaid Fathi","family":"Zaghamir","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2023,6,29]]},"reference":[{"key":"S1478951523000573_ref5","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2019.4782"},{"key":"S1478951523000573_ref10","doi-asserted-by":"publisher","DOI":"10.2147\/NDT.S127605"},{"key":"S1478951523000573_ref3","unstructured":"Al Abdulmohsin, SA , Coons, S , Draugalis, JR , et\u00a0al. (1997). Translation of the RAND 36-item health survey 1.0 (aka SF-36) into Arabic."},{"key":"S1478951523000573_ref18","article-title":"Assessing the burden of family caregivers of people with dementia living in the community of a Greek Island","volume":"4","author":"Margelaki","year":"2021","journal-title":"International Journal of Nursing and Health Care Research"},{"key":"S1478951523000573_ref21","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0831-2"},{"key":"S1478951523000573_ref7","first-page":"61","article-title":"Profile and burden of care in caregivers of patients with dementia included in the ALOIS Program","volume":"33","author":"Babarro","year":"2019","journal-title":"Atencion primaria"},{"key":"S1478951523000573_ref26","doi-asserted-by":"publisher","DOI":"10.1186\/s40359-019-0350-8"},{"key":"S1478951523000573_ref28","article-title":"Impact of an educational programme on Alzheimer\u2019s disease patients\u2019 quality of life: Results of the randomized controlled trial THERAD","volume":"13","author":"Villars","year":"2021","journal-title":"Alzheimer\u2019s Research and Therapy"},{"key":"S1478951523000573_ref13","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-022-02787-0"},{"key":"S1478951523000573_ref15","doi-asserted-by":"publisher","DOI":"10.36348\/sjnhc.2020.v03i06.002"},{"key":"S1478951523000573_ref4","article-title":"Assessment of health-related quality of life for caregivers of Alzheimer\u2019s disease patients","volume":"2016","author":"Andreakou","year":"2016","journal-title":"International Journal of Alzheimer\u2019s Disease"},{"key":"S1478951523000573_ref27","first-page":"2","article-title":"Predictors of caregiver burden in aged caregivers of demented older patients","volume":"21","author":"Tsai","year":"2020","journal-title":"BMC Geriatrics"},{"key":"S1478951523000573_ref29","volume-title":"Alzheimer\u2019s Disease 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vulnerability towards psychopathology in caregivers of patients with dementia\/Alzheimer\u2019s disease","volume":"26","author":"Dawood","year":"2016","journal-title":"Journal of the College of Physicians and Surgeons Pakistan: JCPSP"},{"key":"S1478951523000573_ref12","first-page":"37","article-title":"in the caregiver burden of Alzheimer\u2019s patients: An evolutionary concept analysis","volume":"15","author":"Ghezeljeh","year":"2020","journal-title":"Revista Latinoamericana de Hipertensi\u00f3n"},{"key":"S1478951523000573_ref16","doi-asserted-by":"publisher","DOI":"10.5152\/TurkThoracJ.2022.21002"},{"key":"S1478951523000573_ref17","first-page":"508","article-title":"Health-related quality of life in caregivers of patients with Alzheimer 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}}]}}