{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T15:14:45Z","timestamp":1790867685417,"version":"4.1.0"},"reference-count":31,"publisher":"Cambridge University Press (CUP)","issue":"4","license":[{"start":{"date-parts":[[2023,7,28]],"date-time":"2023-07-28T00:00:00Z","timestamp":1690502400000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523000846_sec1a\"><jats:title>Objectives<\/jats:title><jats:p>Palliative sedation (PS) consists of the use of drugs to alleviate the suffering of patients with refractory symptoms, through a reduction in consciousness. The aim of this study is to describe the incidence of and indications for PS in patients treated by pediatric palliative care teams (PPCT), and the relationship between PS, the place of death, and the characteristics of the care teams.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000846_sec2b\"><jats:title>Methods<\/jats:title><jats:p>Ambispective study with the participation of 14 PPCT working in Spain.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000846_sec3c\"><jats:title>Results<\/jats:title><jats:p>From January to December 2019, a total of 164 patients attended by these PPCT died. Of these, 83 (50.6%) received PS during their last 24\u00a0hours. The most frequent refractory symptoms were terminal suffering (<jats:italic>n<\/jats:italic>\u00a0=\u00a040, 48.2%), dyspnea (<jats:italic>n<\/jats:italic>\u00a0=\u00a09, 10.8%), pain (<jats:italic>n<\/jats:italic>\u00a0=\u00a08, 9.6%), and convulsive state (<jats:italic>n<\/jats:italic>\u00a0=\u00a07, 8.4%). Sedation in the last 24\u00a0hours of life was more likely if the patient died in hospital, rather than at home (62.9% vs. 33.3%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u00a00.01); if the parents had not expressed their preference regarding the place of death (69.2% vs. 45.2%, <jats:italic>p<\/jats:italic>\u00a0=\u00a00.009); and if the PPCT had less than 5 years\u2019 experience (66.7% vs. 45.5%, <jats:italic>p<\/jats:italic>\u00a0=\u00a00.018).<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523000846_sec4d\"><jats:title>Significance of results<\/jats:title><jats:p>PS is a real possibility in pediatric end-of-life care and relates to care planning and team expertise.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523000846","type":"journal-article","created":{"date-parts":[[2023,7,28]],"date-time":"2023-07-28T08:24:28Z","timestamp":1690532668000},"page":"644-648","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":4,"title":["Sedation in pediatric palliative care: The role of pediatric palliative care teams"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2794-4282","authenticated-orcid":false,"given":"Maria Jos\u00e9","family":"Pel\u00e1ez Cantero","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7911-7487","authenticated-orcid":false,"given":"Jose Miguel","family":"Morales Asencio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"F\u00e1tima","family":"Parra Plantagenet-Whyte","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mois\u00e9s","family":"Leyva Carmona","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mireille","family":"Rosique Antonelli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Teresa","family":"Gili Bigat\u00e1","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ricardo","family":"Martino Alba","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2023,7,28]]},"reference":[{"key":"S1478951523000846_ref23","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(15)00401-5"},{"key":"S1478951523000846_ref12","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-14-199"},{"key":"S1478951523000846_ref16","doi-asserted-by":"publisher","DOI":"10.1177\/1049909115609294"},{"key":"S1478951523000846_ref21","unstructured":"(2019) Libro-de-ponencias-y-comunicaciones-III-Congreso-PedPal.pdf. https:\/\/www.pedpal.es\/site\/wp-content\/uploads\/2019\/03\/Libro-de-ponencias-y-comunicaciones-III-Congreso-PedPal.pdf."},{"key":"S1478951523000846_ref17","volume-title":"IBM SPSS Statistics for Windows, Version 26.0","year":"2019"},{"key":"S1478951523000846_ref20","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2014.01.012"},{"key":"S1478951523000846_ref15","unstructured":"(2021) guia_sedaccion_paliativa.pdf. https:\/\/www.cgcom.es\/sites\/main\/files\/mig\/guia_sedaccion_paliativa.pdf."},{"key":"S1478951523000846_ref19","doi-asserted-by":"publisher","DOI":"10.1097\/SPC.0b013e3283492aba"},{"key":"S1478951523000846_ref5","doi-asserted-by":"publisher","DOI":"10.1177\/0269216309107024"},{"key":"S1478951523000846_ref8","doi-asserted-by":"publisher","DOI":"10.3390\/children9121887"},{"key":"S1478951523000846_ref10","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2006.0139"},{"key":"S1478951523000846_ref18","unstructured":"The jamovi Project (2021) jamovi (Version 1.6) [Computer Software]. https:\/\/www.jamovi.org (accessed 9 November 2022 )."},{"key":"S1478951523000846_ref1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2020.09.022"},{"key":"S1478951523000846_ref25","unstructured":"(2023) Palliative sedation - 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}