{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,19]],"date-time":"2026-02-19T05:45:05Z","timestamp":1771479905572,"version":"3.50.1"},"reference-count":33,"publisher":"Cambridge University Press (CUP)","issue":"2","license":[{"start":{"date-parts":[[2023,10,11]],"date-time":"2023-10-11T00:00:00Z","timestamp":1696982400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523001335_sec1a\"><jats:title>Objectives<\/jats:title><jats:p>Patients with metastatic upper gastrointestinal (GI) cancer may experience a large physical symptom burden. However, less is known about existential, social, and psychological symptoms. To provide the patient with palliative care, quality-of-life questionnaires are used for structured needs assessment. These are sporadically implemented, and there seems to be uncertainty to the efficiency of current practice. The aim of study was to explore the experienced assessment-process and treatment of palliative symptoms, as well as the experienced symptom burden, in patients with metastatic upper GI cancer.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001335_sec2b\"><jats:title>Methods<\/jats:title><jats:p>Qualitative, semi-structured interviews were conducted in 10 patients with metastatic upper GI cancer. Data were analyzed using content analysis.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001335_sec3c\"><jats:title>Results<\/jats:title><jats:p>The patients did not expect treatment for all physical symptoms. Existential symptoms revolved around death and dying, social issues were mainly related to family, and psychological issues were based in the continuous dealing with serious illness. Existential, social, and psychological symptoms were mostly not considered part of the expected care when admitted to hospital. Patients had only vague recollections of their experiences with structured needs assessment, and the process had been inconsequential in the treatment of symptoms.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001335_sec4d\"><jats:title>Significance of results<\/jats:title><jats:p>Patients with upper GI cancer experience symptoms related to all 4 areas of palliative care being physical, existential, social, and psychological, but these are differentiated in the way patients perceive their origins and treatability. Structured needs assessment was not routinely carried out, and in cases where this had been done, no follow-up was effectuated. This calls for increased focus and proper implementation for the process to be relevant in the treatment of palliative symptoms.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523001335","type":"journal-article","created":{"date-parts":[[2023,10,11]],"date-time":"2023-10-11T04:18:17Z","timestamp":1696997897000},"page":"367-373","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":1,"title":["The symptom burden and the assessment of palliative symptoms in patients with metastatic upper gastrointestinal cancer: A qualitative interview study"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8113-9984","authenticated-orcid":false,"given":"Maja","family":"S\u00f8nderup Tarp","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0063-1086","authenticated-orcid":false,"given":"Jacob","family":"Rosenberg","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2023,10,11]]},"reference":[{"key":"S1478951523001335_ref26","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-016-0132-5"},{"key":"S1478951523001335_ref2","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3887"},{"key":"S1478951523001335_ref29","first-page":"1","article-title":"Symptom burden and the illness trajectory in patients with metastatic upper gastrointestinal cancer","volume":"70","author":"Tarp","year":"2023","journal-title":"Danish Medical Journal"},{"key":"S1478951523001335_ref31","doi-asserted-by":"publisher","DOI":"10.1097\/SGA.0000000000000088"},{"key":"S1478951523001335_ref33","first-page":"1","volume-title":"Assessing the Development of Palliative Care Worldwide: A Set of Actionable Indicators","year":"2021"},{"key":"S1478951523001335_ref24","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317734954"},{"key":"S1478951523001335_ref32","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4775"},{"key":"S1478951523001335_ref19","volume-title":"Kvalitative Metoder I Medisinsk Forskning: en Innf\u00f8ring","author":"Malterud","year":"2011"},{"key":"S1478951523001335_ref18","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-031434"},{"key":"S1478951523001335_ref23","doi-asserted-by":"publisher","DOI":"10.1097\/CCO.0000000000000454"},{"key":"S1478951523001335_ref4","doi-asserted-by":"publisher","DOI":"10.1089\/109662101753381647"},{"key":"S1478951523001335_ref15","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-13-28"},{"key":"S1478951523001335_ref5","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2011.39.5509"},{"key":"S1478951523001335_ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2016.04.004"},{"key":"S1478951523001335_ref12","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.29970"},{"key":"S1478951523001335_ref20","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-019-07320-z"},{"key":"S1478951523001335_ref17","doi-asserted-by":"publisher","DOI":"10.1016\/j.cpr.2007.07.013"},{"key":"S1478951523001335_ref28","unstructured":"Sundhedsstyrelsen (2012) Notat Vedr. valg af redskab til den overordnede behovsvur- dering ved rehabilitering og palliation i forbindelse med kr\u00e6ftsygdomme. 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