{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T12:25:06Z","timestamp":1789734306298,"version":"4.0.1"},"reference-count":31,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2025,5,30]],"date-time":"2025-05-30T00:00:00Z","timestamp":1748563200000},"content-version":"unspecified","delay-in-days":149,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2025]]},"abstract":"<jats:title>Abstract<\/jats:title>\n\t  <jats:sec id=\"S1478951525000446_sec1a\">\n\t    <jats:title>Objective<\/jats:title>\n\t    <jats:p>This study aimed to explore what is important for hospice providers to know when a seriously ill parent has adolescent children.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525000446_sec2b\">\n\t    <jats:title>Methods<\/jats:title>\n\t    <jats:p>The sample included 18 young adults (18\u201328 years old) whose parents died in hospice or palliative care while they were adolescents (12\u201318 years old). Semi-structured interviews were conducted virtually via Microsoft Teams. The interviews were audiotaped, transcribed verbatim, and analyzed using a thematic analysis. Themes emerged from the data and were determined by consensus.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525000446_sec3c\">\n\t    <jats:title>Results<\/jats:title>\n\t    <jats:p>The participants described a variety of skills that are important for hospice providers to know. They provided specific suggestions for hospice providers who seek to help adolescents navigate this critical time when their parents are dying or have recently died.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525000446_sec4d\">\n\t    <jats:title>Significance of results<\/jats:title>\n\t    <jats:p>These results can also be used to inform the development of interventions that assist hospice providers with strategies tailored to an adolescent\u2019s specific needs. Future research should investigate these topics with a larger, more diverse sample.<\/jats:p>\n\t  <\/jats:sec>","DOI":"10.1017\/s1478951525000446","type":"journal-article","created":{"date-parts":[[2025,5,30]],"date-time":"2025-05-30T07:25:52Z","timestamp":1748589952000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Strategies to prepare hospice providers to interact with adolescents with a parent in hospice"],"prefix":"10.1017","volume":"23","author":[{"given":"William","family":"Grayson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7515-3832","authenticated-orcid":false,"given":"Denice Kopchak","family":"Sheehan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela S.","family":"Stephenson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristen","family":"DeBois","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caitlin","family":"Sheehan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2025,5,30]]},"reference":[{"key":"S1478951525000446_ref5","doi-asserted-by":"publisher","DOI":"10.1177\/00302228211033661"},{"key":"S1478951525000446_ref7","doi-asserted-by":"publisher","DOI":"10.1177\/0269216318803494"},{"key":"S1478951525000446_ref24","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000000506"},{"key":"S1478951525000446_ref9","first-page":"331","article-title":"Providing care to parents dying from cancer with dependent children","volume":"30","author":"Hanna","year":"2021","journal-title":"Health and social care professionals\u2019 experience. Psycho-Oncology"},{"key":"S1478951525000446_ref1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951516000730"},{"key":"S1478951525000446_ref30","doi-asserted-by":"publisher","DOI":"10.1089\/pmr.2022.0024"},{"key":"S1478951525000446_ref2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-022-01055-7"},{"key":"S1478951525000446_ref28","first-page":"757","article-title":"Dying well-informed: The need for better clinical education surrounding facilitating end-of-life conversations","volume":"92","author":"Sutherland","year":"2019","journal-title":"Yale Journal of Biology and Medicine"},{"key":"S1478951525000446_ref21","volume-title":"National Survey of Children\u2019s Health Data Briefs [Internet]","author":"Sappenfield","year":"2024"},{"key":"S1478951525000446_ref17","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000000247"},{"key":"S1478951525000446_ref18","unstructured":"NHPCO Compliance tools and resources Medicare Hospice Conditions of Participation - Bereavement. National Hospice and Palliative Care Organization. (2022, June). https:\/\/www.nhpco.org\/wp-content\/uploads\/Bereavement_CoP_Tip_Sheet.pdf (accessed April 24, 2025)."},{"key":"S1478951525000446_ref22","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211001719"},{"key":"S1478951525000446_ref16","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000001049"},{"key":"S1478951525000446_ref26","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951515000735"},{"key":"S1478951525000446_ref14","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnsa.2024.100210"},{"key":"S1478951525000446_ref15","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-156-3-201202070-00008"},{"key":"S1478951525000446_ref25","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2013.0344"},{"key":"S1478951525000446_ref4","volume-title":"Constructing Grounded Theory","author":"Charmaz","year":"2014"},{"key":"S1478951525000446_ref27","doi-asserted-by":"publisher","DOI":"10.1016\/j.soncn.2023.151474"},{"key":"S1478951525000446_ref20","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000000360"},{"key":"S1478951525000446_ref29","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951515001054"},{"key":"S1478951525000446_ref10","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319857622"},{"key":"S1478951525000446_ref31","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2024.102602"},{"key":"S1478951525000446_ref23","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2021.06.032"},{"key":"S1478951525000446_ref19","unstructured":"NHPCO facts and figures | 2023 edition. National Hospice and Palliative Care Organization. (2023, December). https:\/\/www.nhpco.org\/wp-content\/uploads\/NHPCO-Facts-Figures-2023.pdf (accessed April 24, 2025)."},{"key":"S1478951525000446_ref11","doi-asserted-by":"publisher","DOI":"10.1002\/pon.6374"},{"key":"S1478951525000446_ref12","volume-title":"Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life","year":"2015"},{"key":"S1478951525000446_ref3","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"S1478951525000446_ref6","article-title":"Parental life-limiting illness: What do we tell the children?","volume":"7","author":"Fearnley","year":"2019","journal-title":"Healthcare (Basel, Switzerland)"},{"key":"S1478951525000446_ref13","doi-asserted-by":"publisher","DOI":"10.6004\/jnccn.2014.0136"},{"key":"S1478951525000446_ref8","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2017.75.2311"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951525000446","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,30]],"date-time":"2025-05-30T07:25:55Z","timestamp":1748589955000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951525000446\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025]]},"references-count":31,"alternative-id":["S1478951525000446"],"URL":"https:\/\/doi.org\/10.1017\/s1478951525000446","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025]]},"assertion":[{"value":"\u00a9 The Author(s), 2025. Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e113"}}