{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T05:07:55Z","timestamp":1777525675677,"version":"3.51.4"},"reference-count":32,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T00:00:00Z","timestamp":1760054400000},"content-version":"unspecified","delay-in-days":282,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-sa\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2025]]},"abstract":"<jats:title>Abstract<\/jats:title>\n\t  <jats:sec id=\"S1478951525100825_sec1a\">\n\t    <jats:title>Aims<\/jats:title>\n\t    <jats:p>While many siblings of children with cancer demonstrate resilient outcomes, they also face their own unique experiences that increase their risk for acute and long-term psychosocial difficulties. It is accepted that children undergoing cancer treatment experience suffering, the alleviation of which is a main goal of palliative care, yet research has not yet explored whether siblings experience their own suffering. This work aimed to determine whether parents perceive that their child(ren) without cancer suffered throughout the illness course and how that suffering would be described.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525100825_sec2b\">\n\t    <jats:title>Methods<\/jats:title>\n\t    <jats:p>Using literature and expert input, a survey was developed to elicit caregivers\u2019 perceptions of suffering in their children with and without cancer and was disseminated through the American Childhood Cancer Organization. Responses regarding sibling suffering were analyzed, considering differences in accounts between bereaved caregivers and those whose child with cancer remains living.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525100825_sec3c\">\n\t    <jats:title>Results<\/jats:title>\n\t    <jats:p>A total of 202 parents (81 bereaved, 121 whose child with cancer remains alive) responded. Themes of sibling suffering include disconnection and\/or displacement, lack of stability and certainty, emotional consequences, bearing witness, and lasting impact. One distinct theme, suffering as continued loss, emerged from bereaved parents\u2019 responses.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S1478951525100825_sec4d\">\n\t    <jats:title>Significance of results<\/jats:title>\n\t    <jats:p>Both parental groups described sibling suffering similarly despite different outcomes for their child with cancer. The idea of sibling suffering by bearing witness to what the child with cancer experienced is unique and worthy of further understanding. This work highlights the need for sibling and parent psychosocial assessment and palliative intervention throughout cancer treatment. Gaining longitudinal input from siblings and parents regarding the experience of suffering is a critical next step to develop tailored interventions.<\/jats:p>\n\t  <\/jats:sec>","DOI":"10.1017\/s1478951525100825","type":"journal-article","created":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T06:01:07Z","timestamp":1760076067000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["\u201cThey had to watch\u201d: How parents perceive the suffering of siblings of children with cancer"],"prefix":"10.1017","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0009-0009-8960-5826","authenticated-orcid":false,"given":"Paige","family":"Kube","sequence":"first","affiliation":[{"name":"The George Washington University"},{"name":"National Cancer Institute Center for Cancer Research"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ursula M.","family":"Sansom-Daly","sequence":"additional","affiliation":[{"name":"Behavioural Sciences Unit, School of Clinical Medicine, Discipline of Paediatrics & Child Health, UNSW Medicine and Health, UNSW Sydney"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Meaghann","family":"Weaver","sequence":"additional","affiliation":[{"name":"St Jude Children\u2019s Research Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anne-Sophie","family":"Darlington","sequence":"additional","affiliation":[{"name":"University of Southampton"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna Katharina","family":"Vokinger","sequence":"additional","affiliation":[{"name":"University of Lucerne"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Devon","family":"Ciampa","sequence":"additional","affiliation":[{"name":"National Cancer Institute Center for Cancer Research"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristin","family":"Long","sequence":"additional","affiliation":[{"name":"Boston University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9573-8870","authenticated-orcid":false,"given":"Lori","family":"Wiener","sequence":"additional","affiliation":[{"name":"National Cancer Institute Center for Cancer Research"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2025,10,10]]},"reference":[{"key":"S1478951525100825_ref2","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1638"},{"key":"S1478951525100825_ref7","doi-asserted-by":"publisher","DOI":"10.1177\/1043454205285870"},{"key":"S1478951525100825_ref26","doi-asserted-by":"publisher","DOI":"10.1177\/13674935211026113"},{"key":"S1478951525100825_ref32","first-page":"E12","article-title":"A systematic review of the experiences of siblings of children with 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suffering a useless concept?","volume":"25(8)","author":"Nelson","year":"2024","journal-title":"American Journal of Bioethics"},{"key":"S1478951525100825_ref29","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25675"},{"key":"S1478951525100825_ref19","doi-asserted-by":"publisher","DOI":"10.1177\/21694826251337133"},{"key":"S1478951525100825_ref4","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.29418"},{"key":"S1478951525100825_ref9","doi-asserted-by":"publisher","DOI":"10.1080\/08880010600692526"},{"key":"S1478951525100825_ref27","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2023-064426"},{"key":"S1478951525100825_ref6","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.30993"},{"key":"S1478951525100825_ref20","doi-asserted-by":"publisher","DOI":"10.1037\/fam0000615"},{"key":"S1478951525100825_ref14","doi-asserted-by":"publisher","DOI":"10.1002\/pon.6024"}],"container-title":["Palliative and Supportive 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike licence (http:\/\/creativecommons.org\/licenses\/by-nc-sa\/4.0), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the same Creative Commons licence is used to distribute the re-used or adapted article and the original article is properly cited. The written permission of Cambridge University Press must be obtained prior to any commercial use.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e184"}}