{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T20:46:55Z","timestamp":1786999615139,"version":"build-2736575974"},"reference-count":38,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"unspecified","delay-in-days":7,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951525101223_sec1a\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Perinatal palliative care (PPC) offers holistic support to families of babies with life-limiting conditions, addressing emotional, psychological, and practical needs alongside ensuring dignity for the baby. While there is growing evidence to support its benefits, there remains inconsistent service provision, limited integration with maternity care, and regional disparities. This study explores parental experiences with perinatal hospice services to inform future care models.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101223_sec2b\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The study was undertaken in the Northwest of England. Fourteen semi-structured interviews were undertaken with 17 parents (three joint interviews) who had experienced perinatal loss and had engaged with PPC services. Semi-structured interviews were used to gather insights into their perceptions of care they received, focusing on issues such as communication, the timing of referrals, and the emotional and practical support provided. Data was analyzed using a thematic analysis approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101223_sec3c\">\n                    <jats:title>Ethical approval<\/jats:title>\n                    <jats:p>The obtained REC reference: 22\/YH\/0028 Results Five key themes were identified: the significance of language used by healthcare professionals when discussing the baby\u2019s condition; the importance of timely introduction to hospice care; recognition that grief is a personal and evolving process; the role of shared experiences in building relationships; and the importance of creating lasting memories.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101223_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>Findings highlight the importance of improving healthcare professionals\u2019 communication skills and integrating multidisciplinary palliative care services early in the care pathway. Parents expressed gratitude for the hospice support, particularly the opportunity to spend quality time with their baby and make lasting memories. However, a more consistent perinatal hospice care provision across the UK is needed.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951525101223","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T02:16:13Z","timestamp":1767838573000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":2,"title":["Parental experiences of perinatal loss, with a focus on hospice provision: A thematic analysis"],"prefix":"10.1017","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-2586-5157","authenticated-orcid":false,"given":"Rhiannon","family":"Latham","sequence":"first","affiliation":[{"name":"LJMU"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrina","family":"Williams","sequence":"additional","affiliation":[{"name":"Liverpool Women\u2019s Hospital NHS Foundation Trust, Claire House Children\u2019s Hospice"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keeley","family":"Guest","sequence":"additional","affiliation":[{"name":"LJMU"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fauzia","family":"Paize","sequence":"additional","affiliation":[{"name":"Liverpool Women\u2019s Hospital NHS Foundation Trust"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4305-0513","authenticated-orcid":false,"given":"Robyn","family":"Lotto","sequence":"additional","affiliation":[{"name":"LJMU"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,1,8]]},"reference":[{"key":"S1478951525101223_ref21","unstructured":"Mathews, T and Driscoll, AK (2017) Trends in infant mortality in the United States, 2005\u20132014, NCHS Data Brief, No. 279, Hyattsville, MD: National Center for Health Statistics. Available at https:\/\/www.cdc.gov\/nchs\/data\/databriefs\/db279.pdf (accessed 3 January 2025 )."},{"key":"S1478951525101223_ref12","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2011.0165"},{"key":"S1478951525101223_ref14","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17103421"},{"key":"S1478951525101223_ref24","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2020.26.2.55"},{"key":"S1478951525101223_ref35","doi-asserted-by":"publisher","DOI":"10.21037\/apm.2018.11.03"},{"key":"S1478951525101223_ref36","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1605566"},{"key":"S1478951525101223_ref6","doi-asserted-by":"publisher","DOI":"10.1177\/1049909120965949"},{"key":"S1478951525101223_ref25","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2018.0102"},{"key":"S1478951525101223_ref16","doi-asserted-by":"publisher","DOI":"10.1016\/j.radi.2020.09.015"},{"key":"S1478951525101223_ref34","doi-asserted-by":"publisher","DOI":"10.1097\/ANS.0000000000000147"},{"key":"S1478951525101223_ref2","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2019.102537"},{"key":"S1478951525101223_ref32","doi-asserted-by":"publisher","DOI":"10.1111\/j.1552-6909.2012.01432.x"},{"key":"S1478951525101223_ref18","doi-asserted-by":"publisher","DOI":"10.3390\/children9101555"},{"key":"S1478951525101223_ref28","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-023-01324-z"},{"key":"S1478951525101223_ref5","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-12-25"},{"key":"S1478951525101223_ref19","doi-asserted-by":"publisher","DOI":"10.1002\/pd.6311"},{"key":"S1478951525101223_ref38","doi-asserted-by":"publisher","DOI":"10.1016\/j.wombi.2023.03.007"},{"key":"S1478951525101223_ref17","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15022"},{"key":"S1478951525101223_ref3","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-024-05879-8"},{"key":"S1478951525101223_ref1","doi-asserted-by":"publisher","DOI":"10.1097\/AOG.0000000000003425"},{"key":"S1478951525101223_ref13","first-page":"482","article-title":"Components of perinatal palliative care: an integrative review","volume":"10","author":"Dombrecht","year":"2023","journal-title":"Children (Basel)"},{"key":"S1478951525101223_ref22","doi-asserted-by":"publisher","DOI":"10.1016\/j.jnn.2020.08.005"},{"key":"S1478951525101223_ref26","unstructured":"Perinatal Hospice and Palliative Care (2021) Perinatal hospice and palliative care: continuing with your pregnancy when your baby\u2019s life is expected to be brief. Available at https:\/\/www.perinatalhospice.org\/ (accessed August 1, 2024 )."},{"key":"S1478951525101223_ref8","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-023-01302-5"},{"key":"S1478951525101223_ref20","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-025-06210-9"},{"key":"S1478951525101223_ref29","doi-asserted-by":"publisher","DOI":"10.1111\/jnu.12866"},{"key":"S1478951525101223_ref31","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2024-327662"},{"key":"S1478951525101223_ref4","first-page":"249","article-title":"Psychological aspects of perinatal loss","volume":"21","author":"Badenhorst","year":"2007","journal-title":"Best Practice and Research: Clinical Obstetrics and Gynaecology"},{"key":"S1478951525101223_ref23","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2020-320189"},{"key":"S1478951525101223_ref30","unstructured":"Together for Short Lives (2017) A perinatal pathway for babies with palliative care needs. Available at https:\/\/www.togetherforshortlives.org.uk\/app\/uploads\/2018\/01\/ProRes-Perinatal-Pathway-for-Babies-With-Palliative-Care-Needs.pdf (accessed July 29, 2024 )."},{"key":"S1478951525101223_ref15","first-page":"e080102","article-title":"Perinatal palliative care following prenatal diagnosis of severe fetal anomaly: a new family-centered approach in a level III Portuguese hospital","volume":"8","author":"Gomes Guimar\u00e3es","year":"2018","journal-title":"Journal of Pediatric and Neonatal Individualized Medicine (JPNIM)"},{"key":"S1478951525101223_ref33","unstructured":"World Health Organization (2016) Making every baby count: audit and review of stillbirths and neonatal deaths. Geneva: World Health Organization. Available at https:\/\/www.who.int\/publications\/i\/item\/9789241511223 (accessed 3 January 2025)."},{"key":"S1478951525101223_ref37","doi-asserted-by":"publisher","DOI":"10.1186\/s12884-024-06986-y"},{"key":"S1478951525101223_ref9","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2021.673545"},{"key":"S1478951525101223_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2016.09.097"},{"key":"S1478951525101223_ref7","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2020.590616"},{"key":"S1478951525101223_ref10","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"S1478951525101223_ref27","doi-asserted-by":"publisher","DOI":"10.21037\/apm-22-525"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951525101223","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T02:16:16Z","timestamp":1767838576000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951525101223\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":38,"alternative-id":["S1478951525101223"],"URL":"https:\/\/doi.org\/10.1017\/s1478951525101223","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026]]},"assertion":[{"value":"\u00a9 The Author(s), 2026. Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e22"}}