{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,13]],"date-time":"2026-01-13T14:57:31Z","timestamp":1768316251049,"version":"3.49.0"},"reference-count":43,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,1,13]],"date-time":"2026-01-13T00:00:00Z","timestamp":1768262400000},"content-version":"unspecified","delay-in-days":12,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951525101508_sec1a\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aims to adapt and validate a Spanish (Argentina) version of the Caregiver Indirect and Informal Care Cost Assessment Questionnaire (CIIQ) to enable the measurement of informal care-related costs in the Argentine context, addressing the current lack of Spanish-language tools for assessing indirect costs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101508_sec2b\">\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>\n                      The CIIQ was translated, cross-culturally adapted, and validated for the Spanish\u2013Argentine language and culture. Psychometric properties were evaluated in a purposive sample of relatives of patients with advanced chronic disease and limited life expectancy in Argentina. Missing data and internal consistency (Cronbach\u2019s\n                      <jats:italic>\u03b1<\/jats:italic>\n                      ) were assessed, along with discriminant capacity, content, and construct validity. Construct validity was examined through principal component analysis (PCA) and confirmatory factor analysis (CFA).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101508_sec3c\" sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The translation and cultural adaptation process was completed without major difficulties. A total of 154 caregivers completed the baseline questionnaire and 90 completed the follow-up assessment, with missing data remaining below 10% across items. Internal consistency was high for the overall instrument (\n                      <jats:italic>\u03b1<\/jats:italic>\n                      = 0.802) and for the unpaid care cost domain (\n                      <jats:italic>\u03b1<\/jats:italic>\n                      = 0.866). The productivity loss domain showed moderate reliability (\n                      <jats:italic>\u03b1<\/jats:italic>\n                      = 0.362). Low correlations with unrelated domains (\n                      <jats:italic>\u03c1<\/jats:italic>\n                      &lt; 0.2) supported adequate discriminant validity. PCA identified 2 components \u2013 informal care costs (51.5% of explained variance) and productivity loss costs (20.3%) \u2013 which were further supported by CFA.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951525101508_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>The Spanish\u2013Argentine version of the CIIQ is a reliable and culturally appropriate instrument for assessing the economic burden of informal care in Argentina. While the unpaid care items demonstrated strong psychometric performance, productivity-related items may require refinement to improve reliability in future applications.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951525101508","type":"journal-article","created":{"date-parts":[[2026,1,13]],"date-time":"2026-01-13T09:08:01Z","timestamp":1768295281000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Translation, cross-cultural adaptation, and validation of the Caregiver Indirect and Informal Care Cost Assessment Questionnaire for end-of-life care into Spanish"],"prefix":"10.1017","volume":"24","author":[{"given":"Laura S.","family":"Lamfre","sequence":"first","affiliation":[{"name":"National University of Comahue"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Coller","sequence":"additional","affiliation":[{"name":"Advanced Chronicity and Palliative Care, Ministry of Health of Rio Negro"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3273-7993","authenticated-orcid":false,"given":"Cl\u00e9ment","family":"Meier","sequence":"additional","affiliation":[{"name":"University of Lausanne, and Swiss Centre of Expertise in the Social Sciences (FORS), University of Lausanne (HEC)"},{"name":"Instituto Pallium Latinoam\u00e9rica"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pilar","family":"Barenstein-Fonseca","sequence":"additional","affiliation":[{"name":"Instituto Cudeca de Estudios e Investigaci\u00f3n en Cuidados Paliativos, Fundaci\u00f3n Cudeca"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claudia","family":"Fischer","sequence":"additional","affiliation":[{"name":"Medical University of Vienna"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judit","family":"Simon","sequence":"additional","affiliation":[{"name":"Medical University of Vienna"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2328-6032","authenticated-orcid":false,"given":"Vilma","family":"Tripodoro","sequence":"additional","affiliation":[{"name":"University of Navarra"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"56","published-online":{"date-parts":[[2026,1,13]]},"reference":[{"key":"S1478951525101508_ref21","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2013-000488"},{"key":"S1478951525101508_ref22","doi-asserted-by":"publisher","DOI":"10.1007\/BF02291575"},{"key":"S1478951525101508_ref26","doi-asserted-by":"publisher","DOI":"10.21037\/apm-23-240"},{"key":"S1478951525101508_ref8","unstructured":"Cepal NU (2020) La Pandemia Del COVID-19 Profundiza la Crisis de Los Cuidados En Am\u00e9rica Latina Y El Caribe."},{"key":"S1478951525101508_ref18","doi-asserted-by":"publisher","DOI":"10.1177\/0269216313517284"},{"key":"S1478951525101508_ref34","first-page":"442","article-title":"Validez de constructo: el uso de an\u00e1lisis factorial exploratorio-confirmatorio para obtener evidencias de validez","volume":"12","author":"P\u00e9rez Gil","year":"2000","journal-title":"Psicothema"},{"key":"S1478951525101508_ref24","doi-asserted-by":"publisher","DOI":"10.1007\/s40273-014-0218-y"},{"key":"S1478951525101508_ref29","first-page":"1","article-title":"Construcci\u00f3n y validaci\u00f3n de escalas de medici\u00f3n en salud: revisi\u00f3n de propiedades psicom\u00e9tricas","volume":"11","author":"Luj\u00e1n-Tangarife","year":"2015","journal-title":"Archivos de Medicina"},{"key":"S1478951525101508_ref43","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-057229"},{"key":"S1478951525101508_ref5","doi-asserted-by":"publisher","DOI":"10.1097\/00007632-200012150-00014"},{"key":"S1478951525101508_ref33","first-page":"298","volume-title":"La Econom\u00eda Invisible Y Las Desigualdades de G\u00e9nero: La Importancia de Medir Y Valorar El Trabajo No Remunerado","author":"Organizaci\u00f3n Panamericana de la Salud","year":"2008"},{"key":"S1478951525101508_ref20","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2005.06.022"},{"key":"S1478951525101508_ref38","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2006.03.012"},{"key":"S1478951525101508_ref25","doi-asserted-by":"publisher","DOI":"10.1590\/0102-311xes081822"},{"key":"S1478951525101508_ref2","volume-title":"Global atlas of palliative care at the end of life","year":"2014"},{"key":"S1478951525101508_ref13","volume-title":"Methods for the Economic Evaluation of Health Care Programmes","author":"Drummond","year":"2015"},{"key":"S1478951525101508_ref40","doi-asserted-by":"publisher","DOI":"10.4324\/9781003070672"},{"key":"S1478951525101508_ref42","doi-asserted-by":"publisher","DOI":"10.1111\/j.1524-4733.2005.04054.x"},{"key":"S1478951525101508_ref12","unstructured":"D\u00edaz, X , Mauro, A and Medel, J (2006) Cuidadoras de la vida: Visibilizaci\u00f3n de los costos de la producci\u00f3n de salud en el hogar. Impacto sobre el trabajo total de las mujeres. In Santiago de Chile: Editora Centro de Estudios de La Mujer, pp. 1\u201373. https:\/\/cem.cl\/pdf\/cuidadorasvida.pdf."},{"key":"S1478951525101508_ref19","doi-asserted-by":"publisher","DOI":"10.1016\/j.jval.2017.12.006"},{"key":"S1478951525101508_ref36","first-page":"1","article-title":"Econom\u00eda feminista y econom\u00eda del cuidado: Aportes conceptuales para el estudio de la desigualdad","volume":"256","author":"Rodr\u00edguez Enr\u00edquez","year":"2015","journal-title":"Nueva Sociedad"},{"key":"S1478951525101508_ref37","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/j.jval.2018.05.010","article-title":"Overview, update, and lessons learned from the international EQ-5D-5L valuation work: Version 2 of the EQ-5D-5L valuation protocol","volume":"22","author":"Stolk","year":"2019","journal-title":"Value in Health"},{"key":"S1478951525101508_ref17","volume-title":"For Love or Money: Care Provision in the United States","author":"Folbre","year":"2012"},{"key":"S1478951525101508_ref39","doi-asserted-by":"publisher","DOI":"10.1177\/26323524241260425"},{"key":"S1478951525101508_ref32","doi-asserted-by":"publisher","DOI":"10.1007\/s40258-015-0161-x"},{"key":"S1478951525101508_ref7","first-page":"831","article-title":"Psychometric properties of a scale: Internal consistency","volume":"10","author":"Campo-Arias","year":"2008","journal-title":"Revista de Salud P\u00fablica"},{"key":"S1478951525101508_ref28","doi-asserted-by":"publisher","DOI":"10.1007\/s40258-018-0418-2"},{"key":"S1478951525101508_ref23","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare8020184"},{"key":"S1478951525101508_ref27","first-page":"107","article-title":"An\u00e1lisis de impacto presupuestario: servicios de cuidados paliativos en pacientes oncol\u00f3gicos del subsector p\u00fablico de R\u00edo Negro y Neuqu\u00e9n","volume":"15","author":"Lamfre","year":"2023b","journal-title":"Revista Argentina de Salud P\u00fablica"},{"key":"S1478951525101508_ref1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph18147232"},{"key":"S1478951525101508_ref6","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2021.1926425"},{"key":"S1478951525101508_ref41","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-017-0907-4"},{"key":"S1478951525101508_ref9","unstructured":"CEPAL NU (2022) Hacia la Construcci\u00f3n de Sistemas Integrales de Cuidados En Am\u00e9rica Latina Y El Caribe: Elementos Para Su Implementaci\u00f3n."},{"key":"S1478951525101508_ref14","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-022-14835-w"},{"key":"S1478951525101508_ref4","doi-asserted-by":"publisher","DOI":"10.1157\/13057542"},{"key":"S1478951525101508_ref15","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231214124"},{"key":"S1478951525101508_ref10","unstructured":"The CIIQ (n.d.). https:\/\/www.theciiq.com\/ (accessed 22 November 2024 )."},{"key":"S1478951525101508_ref16","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-035760"},{"key":"S1478951525101508_ref11","doi-asserted-by":"publisher","DOI":"10.1007\/s10198-003-0189-y"},{"key":"S1478951525101508_ref30","doi-asserted-by":"crossref","first-page":"1410","DOI":"10.1016\/j.jval.2019.07.011","article-title":"measuring productivity costs in patients with musculoskeletal disorders: Measurement properties of the institute for medical technology assessment productivity cost questionnaire","volume":"22","author":"Munk","year":"2019","journal-title":"Value in Health"},{"key":"S1478951525101508_ref31","unstructured":"OIT, UNICEF, PNUD and CIPPEC (2018) Las pol\u00edticas de cuidado en Argentina: avances y desaf\u00edos. Buenos Aires, OIT-UNICEF-PNUD-CIPPEC."},{"key":"S1478951525101508_ref35","doi-asserted-by":"publisher","DOI":"10.1007\/s40258-022-00780-7"},{"key":"S1478951525101508_ref3","doi-asserted-by":"publisher","DOI":"10.1111\/j.2517-6161.1954.tb00174.x"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951525101508","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,13]],"date-time":"2026-01-13T09:08:04Z","timestamp":1768295284000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951525101508\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":43,"alternative-id":["S1478951525101508"],"URL":"https:\/\/doi.org\/10.1017\/s1478951525101508","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026]]},"assertion":[{"value":"\u00a9 The Author(s), 2026. Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e24"}}