{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,14]],"date-time":"2026-04-14T05:58:57Z","timestamp":1776146337073,"version":"3.50.1"},"reference-count":47,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,4,14]],"date-time":"2026-04-14T00:00:00Z","timestamp":1776124800000},"content-version":"unspecified","delay-in-days":103,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951526101837_sec1a\">\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Despite the urgent need for support interventions for families facing parental life-threatening illness, research is limited \u2013 particularly in progressive neurological diseases. This scoping review aimed to systematically map existing interventions to inform the development of tailored support in the neurological context.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526101837_sec2b\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A scoping review was conducted, including articles published between 2013 and 2025, identified through searches in PubMed, CINAHL, PsycINFO, and Web of Science, along with manual screening of reference lists. Extracted data were systematically charted and descriptively summarized.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526101837_sec3c\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Of 5172 articles, 15 were included, describing 6 unique interventions aimed at supporting children (0\u201325\u00a0years) and\/or parents in families where a parent had a life-threatening illness. While cancer was the predominant diagnosis among ill parents, progressive neurological diseases, such as amyotrophic lateral sclerosis (ALS) and Huntington\u2019s disease, were represented to a limited extent. The interventions targeted children (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a04), parents in their parenting role (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a04), or the entire family (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a07) and were primarily based on psychosocial, psychoeducational, or peer support. Overall, the interventions were positively received by both children and parents and perceived as helpful in navigating their challenging life situations in various ways.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526101837_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>This review confirms a particular lack of knowledge and tailored support for families affected by progressive neurological diseases. While support interventions for other life-threatening illnesses are also limited, those that exist may offer valuable insights to inform the development of support within neurological care contexts. The findings underscore the need for early, proactive, and accessible approaches that address both individual and family needs across the disease trajectory, aligning with core principles of high-quality palliative care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951526101837","type":"journal-article","created":{"date-parts":[[2026,4,14]],"date-time":"2026-04-14T05:16:38Z","timestamp":1776143798000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Support interventions for families facing parental life-threatening illness \u2013 A scoping review"],"prefix":"10.1017","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6878-3011","authenticated-orcid":false,"given":"Nina","family":"Malmstr\u00f6m","sequence":"first","affiliation":[{"name":"Sahlgrenska Academy, University of Gothenburg"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1737-3359","authenticated-orcid":false,"given":"Anneli","family":"Ozanne","sequence":"additional","affiliation":[{"name":"Sahlgrenska Academy, University of Gothenburg"},{"name":"Sahlgrenska University Hospital, Department of Neurology"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stefan","family":"Nilsson","sequence":"additional","affiliation":[{"name":"Sahlgrenska Academy, University of Gothenburg"},{"name":"University of Gothenburg"},{"name":"Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joakim","family":"\u00d6hl\u00e9n","sequence":"additional","affiliation":[{"name":"Sahlgrenska Academy, University of Gothenburg"},{"name":"University of Gothenburg"},{"name":"Sahlgrenska University Hospital, Palliative 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