{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T23:09:16Z","timestamp":1790291356872,"version":"4.1.0"},"reference-count":45,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T00:00:00Z","timestamp":1774483200000},"content-version":"unspecified","delay-in-days":84,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951526102077_sec1a\">\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>In the Netherlands, around 750 children (0\u201321\u00a0year) die annually from potentially palliative conditions. The majority of these children reside at home, receiving care from hospital services and primary care. This study aims to examine general practice utilization for pediatric palliative care patients in the last 2\u00a0years of life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526102077_sec2b\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A retrospective cohort study was performed using the routine healthcare database of the Julius General Practitioners\u2019 Network. The main outcome for general practitioner (GP) utilization was the number of GP consultations for children in the last 3\u00a0months of life. Participants were included who were children (0\u201321\u00a0years), and deceased in the period 01-01-2013 to 31-12-2022 from an underlying chronic condition. Data were analyzed using descriptive statistics and tested for differences in provided care between children who died in hospital and who died at home.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526102077_sec3c\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Forty-eight children from 32 GP practices met inclusion criteria. Median age was 10.0\u00a0years (interquartile range [IQR] 1.5\u201317.1). Common diagnoses were oncological (29%), congenital (29%), and metabolic conditions (23%). Ninety-six percent of children had contact with their GP in the last 3 months (median 7 consultations, IQR 3.0\u201310.0), i.e.\u00a026 children who died in hospital had median 3.5 GP consultations compared to 20 children who died at home median 9.5 GP consultations (\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0&lt;\u00a00.001). Thirty-five percent of children were documented as being palliative, with 54% having some form of advance care planning discussions documented.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526102077_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>These results demonstrate that GPs are highly involved in providing pediatric palliative care. The palliative nature of these children and advance care planning discussions are not routinely documented and\/or performed by GPs. Further insights into guidance that supports GPs, in collaboration with other healthcare professionals, in providing palliative care for children at home and their families are needed.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951526102077","type":"journal-article","created":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T08:47:36Z","timestamp":1774514856000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":1,"title":["Palliative care provision for children in general practice: A retrospective cohort study"],"prefix":"10.1017","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3625-7839","authenticated-orcid":false,"given":"Marijanne","family":"Engel","sequence":"first","affiliation":[{"name":"University Medical Center Utrecht, Utrecht University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew P.","family":"Grant","sequence":"additional","affiliation":[{"name":"University Medical Center Utrecht, Utrecht University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Kleiboer","sequence":"additional","affiliation":[{"name":"Meander Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Everlien","family":"de Graaf","sequence":"additional","affiliation":[{"name":"University Medical Center Utrecht, Utrecht University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saskia C.C.M.","family":"Teunissen","sequence":"additional","affiliation":[{"name":"University Medical Center Utrecht, Utrecht University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marijke C.","family":"Kars","sequence":"additional","affiliation":[{"name":"University Medical Center Utrecht, Utrecht University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,3,26]]},"reference":[{"key":"S1478951526102077_ref7","unstructured":"Dutch Association for Pediatrics (NVK) (2022) \u201cDutch pediatric palliative care guideline (In Dutch: Richtlijn palliatieve zorg voor kinderen).\u201d https:\/\/palliaweb.nl\/richtlijnen-palliatieve-zorg\/richtlijn\/palliatieve-zorg-voor-kinderen and https:\/\/palliaweb.nl\/richtlijnen-palliatieve-zorg\/guidelines\/dutch-guideline-for-paediatric-palliative-care, accessed on 1 May 2025."},{"key":"S1478951526102077_ref34","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-018-3528-5"},{"key":"S1478951526102077_ref28","doi-asserted-by":"crossref","first-page":"2152","DOI":"10.36347\/sjams.2020.v08i09.034","article-title":"Piaget\u2019s theory and stages of cognitive development- An overview","volume":"8","author":"Rabindran","year":"2020","journal-title":"Scholars Journal of Applied Medical 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e88"}}