{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T08:05:32Z","timestamp":1789977932912,"version":"4.0.1"},"reference-count":29,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T00:00:00Z","timestamp":1789948800000},"content-version":"unspecified","delay-in-days":263,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100001505","name":"Health Research Council of New Zealand","doi-asserted-by":"publisher","award":["25\/111"],"award-info":[{"award-number":["25\/111"]}],"id":[{"id":"10.13039\/501100001505","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951526103344_sec1a\">\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This study aimed to identify the enablers and barriers to accessing primary and specialist palliative care services for Cook Islands M\u0101ori in New Zealand, and to collaborate with community members to explore the practical application of a tailored palliative care model<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103344_sec2b\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Three focus group interviews were held with Cook Islands M\u0101ori community members (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a018). A culturally responsive research methodology, Tivaevae, was used to guide data collection and analysis. An advisory group was established to provide cultural and clinical oversight.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103344_sec3c\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>This study presents the findings from the first phase of model validation, exploring Cook Islands M\u0101ori peoples' use of palliative care services in New Zealand. The study identified key moments when families needed clear and accessible health information, during prognostic disclosure and during moments of responsibility transfer. These key moments provide opportunities for families to develop the tools to care and plan. This, in turn, enables family members to choose their preferred place of care and to develop family or community-guided care pathways based on Cook Islands M\u0101ori culture and faith.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103344_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>While improvements in cultural safety and cross-cultural communication have been made, there are still groups who experience barriers to accessing palliative care. Identifying key moments when care can be enhanced is key to developing systems that can deliver culturally responsive care for minority groups. Conceptual models show the beliefs, motivations, and values that guide care. However, models must be usable for both community members and clinicians, and critically, must support meaningful and positive outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951526103344","type":"journal-article","created":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T07:22:14Z","timestamp":1789975334000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["\u201cThe doctors will tell you things that they understand\u00a0\u2013 Not what we understand.\u201d Community voices on developing a palliative care model for Cook Islands M\u0101ori in New Zealand"],"prefix":"10.1017","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-9501-249X","authenticated-orcid":false,"given":"Amy Evelyn","family":"Henry","sequence":"first","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01zvqw119","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Auckland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mayor","family":"Pokino","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01zvqw119","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Auckland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"El-Shadan","family":"Tautolo","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01zvqw119","id-type":"ROR","asserted-by":"publisher"}],"name":"Auckland University of Technology"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jan","family":"Dewar","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/0040r6f76","id-type":"ROR","asserted-by":"publisher"}],"name":"Victoria University of Wellington"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josephine","family":"Herman","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01zvqw119","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Auckland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ioana","family":"Mulipola","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01zvqw119","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Auckland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,9,21]]},"reference":[{"key":"S1478951526103344_ref11","doi-asserted-by":"publisher","DOI":"10.15286\/jps.132.1-2.147-164"},{"key":"S1478951526103344_ref19","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951519000403"},{"key":"S1478951526103344_ref17","first-page":"127","article-title":"Cook Islander\u2019s transnational responses to health service access","volume":"40","author":"Masters","year":"2014","journal-title":"New Zealand Population Review"},{"key":"S1478951526103344_ref29","unstructured":"World Health Organization (2018) Declaration of Astana. https:\/\/iris.who.int\/server\/api\/core\/bitstreams\/2211376b-d04d-4da8-bd99-8c5ffa2f426c\/content (Accessed 20 June 2025 )."},{"key":"S1478951526103344_ref22","doi-asserted-by":"publisher","DOI":"10.1177\/10499091241273403"},{"key":"S1478951526103344_ref2","doi-asserted-by":"publisher","DOI":"10.1177\/082585971002600107"},{"key":"S1478951526103344_ref27","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1000678"},{"key":"S1478951526103344_ref13","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2019.01.002"},{"key":"S1478951526103344_ref12","doi-asserted-by":"publisher","DOI":"10.1007\/s11864-020-00810-3"},{"key":"S1478951526103344_ref18","unstructured":"Maua Hodges, T (2018) \u2018Aere \u2018Aere \u2018Opara Ki Mua Pursue Pursue and Push on: teaching Cook Islands M\u0101ori to adults in New Zealand: A critical review of the literature. Master of Professional Practice, Whitireia Community Polytechnic."},{"key":"S1478951526103344_ref7","first-page":"1421","article-title":"Determinants of patient-oncologist prognostic discordance in advanced cancer","volume":"2","author":"Gramling","year":"2016","journal-title":"JAMA Oncology"},{"key":"S1478951526103344_ref25","unstructured":"Statistics New Zealand (2025) Pacific Peoples ethnicities in Aotearoa New Zealand. In: NZ S (ed). 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Report of Transnational Health Research in the Cook Islands and New Zealand 2010-2012. Auckland, New Zealand: The University of Auckland."},{"key":"S1478951526103344_ref21","doi-asserted-by":"publisher","DOI":"10.1007\/s10823-020-09397-6"},{"key":"S1478951526103344_ref10","first-page":"1","article-title":"Constructing a theory of Cook Islands M\u0101ori palliative care in New Zealand","author":"Henry","year":"2025","journal-title":"Mortality"},{"key":"S1478951526103344_ref24","first-page":"388","article-title":"Pluralities of identity, belonging, home and place: An exploration of relationality during death and dying for ethnic minority migrants in Western countries","volume":"20","author":"Shah","year":"2025","journal-title":"Kotuitui: New Zealand Journal of Social Sciences Online"},{"key":"S1478951526103344_ref15","article-title":"Community inquiry, wellbeing and the T\u012bvaevae Method: Findings from Dunedin\u2019s Ora\u2019anga Meitaki \u2018Iri\u2019irik\u0101pua","volume":"9","author":"Kokaua-Balfour","year":"2025","journal-title":"Pacific Dynamics"},{"key":"S1478951526103344_ref28","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2024.10398"}],"container-title":["Palliative and Supportive Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1478951526103344","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T07:22:24Z","timestamp":1789975344000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1478951526103344\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":29,"alternative-id":["S1478951526103344"],"URL":"https:\/\/doi.org\/10.1017\/s1478951526103344","relation":{},"ISSN":["1478-9515","1478-9523"],"issn-type":[{"value":"1478-9515","type":"print"},{"value":"1478-9523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026]]},"assertion":[{"value":"\u00a9 The Author(s), 2026. Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e225"}}