{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T12:59:45Z","timestamp":1790600385273,"version":"4.1.0"},"reference-count":31,"publisher":"Cambridge University Press (CUP)","license":[{"start":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T00:00:00Z","timestamp":1790553600000},"content-version":"unspecified","delay-in-days":270,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2026]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"S1478951526103678_sec1a\">\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The complexity of hope in serious childhood illness can be underestimated in clinical practice. We sought to explore the lived experience of hope among bereaved parents to help clinicians interpret and engage with parents\u2019 varied and changing expressions of hope over the course of their child\u2019s illness.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103678_sec2b\" sec-type=\"methods\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Semi-structured interviews were conducted with bereaved parents of children known to a statewide pediatric palliative care service who died aged 16\u00a0years or younger from any medical condition. A phenomenological framework underpinned the study, and reflexive thematic analysis was employed. Institutional ethics approval was obtained.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103678_sec3c\" sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Twenty bereaved parents, including 6 fathers, participated. Their children ranged in age from 1 day to 16\u00a0years. Overall, parents\u2019 hopes were personal, multidimensional, and changed over time. Four main themes emerged: (1) Objects of hope, including survival, experiences in life, day-to-day normality, memory-making, and experiences at end-of-life; (2) patterns of hope, including hope\u2019s dynamic nature, alignment between parents, and hope and prognostic awareness; (3) factors that influence hope, including hope\u2019s intrinsic nature, clinical information, and clinician communication; and (4) the value of hope, both positive and negative.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S1478951526103678_sec4d\">\n                    <jats:title>Significance of results<\/jats:title>\n                    <jats:p>The study\u2019s findings support existing research describing hope as multidimensional, dynamic, and potentially coexisting with prognostic awareness. We share new insights into how clinicians can work with parental hope in ways that can be both beneficial and detrimental. Additionally, we describe how some parents may perceive hope as potentially harmful.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1017\/s1478951526103678","type":"journal-article","created":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T12:19:05Z","timestamp":1790597945000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":0,"title":["Working with hope: Learning from bereaved parents"],"prefix":"10.1017","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8326-1895","authenticated-orcid":false,"given":"Naomi T.","family":"Katz","sequence":"first","affiliation":[{"id":[{"id":"https:\/\/ror.org\/02rktxt32","id-type":"ROR","asserted-by":"publisher"}],"name":"The Royal Children\u2019s Hospital Melbourne"},{"id":[{"id":"https:\/\/ror.org\/01ej9dk98","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Melbourne"},{"id":[{"id":"https:\/\/ror.org\/048fyec77","id-type":"ROR","asserted-by":"publisher"}],"name":"Murdoch Children\u2019s Research Institute"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenny L.","family":"Hynson","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/02rktxt32","id-type":"ROR","asserted-by":"publisher"}],"name":"The Royal Children\u2019s Hospital Melbourne"},{"id":[{"id":"https:\/\/ror.org\/01ej9dk98","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Melbourne"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lynn","family":"Gillam","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/01ej9dk98","id-type":"ROR","asserted-by":"publisher"}],"name":"The University of Melbourne"},{"name":"The Royal Children\u2019s Hospital Melbourne"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"56","published-online":{"date-parts":[[2026,9,28]]},"reference":[{"key":"S1478951526103678_ref30","first-page":"27","volume-title":"The Oxford Handbook of Hope","author":"Snyder","year":"2018"},{"key":"S1478951526103678_ref20","doi-asserted-by":"publisher","DOI":"10.1111\/jpc.15612"},{"key":"S1478951526103678_ref23","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2007.12.6110"},{"key":"S1478951526103678_ref7","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp0906516"},{"key":"S1478951526103678_ref21","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2019-2771"},{"key":"S1478951526103678_ref28","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26981"},{"key":"S1478951526103678_ref4","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0b013e318291ba7d"},{"key":"S1478951526103678_ref10","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-003780"},{"key":"S1478951526103678_ref14","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-13-9"},{"key":"S1478951526103678_ref22","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2024.102583"},{"key":"S1478951526103678_ref16","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.11.007"},{"key":"S1478951526103678_ref8","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12325"},{"key":"S1478951526103678_ref9","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.16274"},{"key":"S1478951526103678_ref24","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2024.102690"},{"key":"S1478951526103678_ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.copsyc.2022.101513"},{"key":"S1478951526103678_ref26","doi-asserted-by":"publisher","DOI":"10.1111\/apa.13510"},{"key":"S1478951526103678_ref19","first-page":"481","volume-title":"The Oxford Compendium of Hope","author":"Katz","year":"2025"},{"key":"S1478951526103678_ref3","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0b013e3182a453aa"},{"key":"S1478951526103678_ref31","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1080\/074811899201046","article-title":"The dual process model of coping with bereavement: Rationale and description","volume":"23","author":"Stroebe","year":"1999","journal-title":"Death Studies"},{"key":"S1478951526103678_ref12","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2019.04.018"},{"key":"S1478951526103678_ref1","volume-title":"Qualitative Research \u2013 A Practical Guide for Health and Social Care Researchers and Practitioners","author":"Ayton","year":"2023"},{"key":"S1478951526103678_ref15","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-3549"},{"key":"S1478951526103678_ref6","article-title":"Advancing prognostic communication: pediatric-informed strategies to strengthen oncology practice across the lifespan","author":"Christianson","year":"2025","journal-title":"JCO Oncology Practice"},{"key":"S1478951526103678_ref29","doi-asserted-by":"publisher","DOI":"10.1207\/S15327965PLI1304_01"},{"key":"S1478951526103678_ref17","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2017.0109"},{"key":"S1478951526103678_ref25","doi-asserted-by":"publisher","DOI":"10.1001\/archpediatrics.2009.87"},{"key":"S1478951526103678_ref2","first-page":"218","article-title":"Keeping hope possible toolkit: The development and evaluation of a psychosocial intervention for parents of infants, children and adolescents with life limiting and life threatening illnesses","volume":"8","author":"Bally","year":"2021","journal-title":"Children (Basel)"},{"key":"S1478951526103678_ref27","doi-asserted-by":"publisher","DOI":"10.1111\/1467-8519.00162"},{"key":"S1478951526103678_ref18","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-2855"},{"key":"S1478951526103678_ref13","first-page":"191","volume-title":"The 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e239"}}