{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,7]],"date-time":"2026-02-07T16:00:42Z","timestamp":1770480042261,"version":"3.49.0"},"reference-count":21,"publisher":"Cambridge University Press (CUP)","issue":"6","license":[{"start":{"date-parts":[[2011,6,8]],"date-time":"2011-06-08T00:00:00Z","timestamp":1307491200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cardiol Young"],"published-print":{"date-parts":[[2011,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1047951111000576_abs1\" sec-type=\"general\"><jats:title>Objectives<\/jats:title><jats:p>To assess the perception of the quality of life of adolescents and young adults with congenital heart disease and to examine the variables that have a negative impact on it and that add a resilience effect.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951111000576_abs2\" sec-type=\"methods\"><jats:title>Methods<\/jats:title><jats:p>A total of 22 male and 18 female patients, aged 12\u201326 years, of whom 27 were admitted to surgery and 13 were not, participated in this study. All patients had complete medical records and were interviewed once; demographic and clinical data were collected, and patients filled a questionnaire on quality of life, the WHOQOL-BREF, and underwent an interview on social support, educational style, self-image, functional limitations, and emotional adjustment.<\/jats:p><\/jats:sec><jats:sec id=\"S1047951111000576_abs3\" sec-type=\"general\"><jats:title>Results\/Conclusions<\/jats:title><jats:p>Our patients showed a better perception of quality of life than did the general population, on the basis of psychological, social relationship and environment scales. Older patients hold a better perception of quality of life on the psychological scale. Cyanosis did not show any significant impact over perception of quality of life decay; however, the number of surgical procedures and the persistence of moderate-to-severe residual injuries had considerable detrimental effect. Social support had an impact on increasing resilience, promoting adjustment to illness. Several factors may play a role in adjustment to congenital heart disease, either improving the perception of quality of life or worsening it. We may conclude that some buffer variables on congenital heart disease may play roles in increasing the perception of quality of life of patients during their lifetime, social support probably explaining why the perception of quality of life is better than in the normal population. The number of surgeries and the moderate-to-severe residual injuries, however, reverted that effect.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1047951111000576","type":"journal-article","created":{"date-parts":[[2011,6,8]],"date-time":"2011-06-08T05:35:48Z","timestamp":1307511348000},"page":"670-676","source":"Crossref","is-referenced-by-count":48,"title":["Quality of life of patients with congenital heart diseases"],"prefix":"10.1017","volume":"21","author":[{"given":"Ana M.","family":"Silva","sequence":"first","affiliation":[]},{"given":"Cl\u00e1udia","family":"Vaz","sequence":"additional","affiliation":[]},{"given":"Maria E. G.","family":"Areias","sequence":"additional","affiliation":[]},{"given":"Daniela","family":"Vieira","sequence":"additional","affiliation":[]},{"given":"Cid\u00e1lia","family":"Proen\u00e7a","sequence":"additional","affiliation":[]},{"given":"Victor","family":"Viana","sequence":"additional","affiliation":[]},{"given":"Cl\u00e1udia","family":"Moura","sequence":"additional","affiliation":[]},{"given":"Jos\u00e9 C.","family":"Areias","sequence":"additional","affiliation":[]}],"member":"56","published-online":{"date-parts":[[2011,6,8]]},"reference":[{"key":"S1047951111000576_ref17","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951106000096"},{"key":"S1047951111000576_ref19","doi-asserted-by":"publisher","DOI":"10.1007\/s002460010178"},{"key":"S1047951111000576_ref15","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2007.07.010"},{"key":"S1047951111000576_ref6","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025114331419"},{"key":"S1047951111000576_ref16","first-page":"79","article-title":"Influ\u00eancia do suporte social e do coping sobre a percep\u00e7\u00e3o subjectiva de bem-estar em mulheres submetidas a cirurgia card\u00edaca","volume":"1","author":"Coelho","year":"2000","journal-title":"Psicologia Sa\u00fade and Doen\u00e7a"},{"key":"S1047951111000576_ref14","first-page":"41","article-title":"Estudos psicom\u00e9tricos do instrumento de avalia\u00e7\u00e3o da Qualidade de Vida da Organiza\u00e7\u00e3o Mundial de Sa\u00fade (WHOQOL-Bref) para Portugu\u00eas de Portugal","volume":"27","author":"Vaz Serra","year":"2006","journal-title":"Psiquiatria Cl\u00ednica"},{"key":"S1047951111000576_ref2","first-page":"1","article-title":"Insufici\u00eancia card\u00edaca nas cardiopatias cong\u00e9nitas do adulto (CCA)","volume":"3","author":"Horowitz","year":"2004","journal-title":"Revista da Sociedade de Cardiologia do Rio Grande do Sul"},{"key":"S1047951111000576_ref1","unstructured":"1. Almeida JP . Impacto dos factores psicol\u00f3gicos associados \u00e0 ades\u00e3o terap\u00eautica, ao controlo metab\u00f3lico e \u00e0 qualidade de vida em adolescentes com diabetes tipo 1. Tese de Doutoramento. Universidade do Minho, 2003."},{"key":"S1047951111000576_ref3","unstructured":"3. Vaz DD , Silva CH , Gomes LF (s\/d). Qualidade de vida em crian\u00e7as e adolescentes com cardiopatia cong\u00e9nita por meio do CHQ-PF 50-Child Health Questionnaire. Recuperado em 18 Mar\u00e7o, 2009, de http:\/\/www.propp.ufu.br\/revistaeletronica\/...\/vida2005\/qualidade"},{"key":"S1047951111000576_ref8","doi-asserted-by":"publisher","DOI":"10.1136\/heart.87.4.356"},{"key":"S1047951111000576_ref9","doi-asserted-by":"publisher","DOI":"10.1080\/0887044021000058076"},{"key":"S1047951111000576_ref10","doi-asserted-by":"publisher","DOI":"10.1136\/heart.88.1.71"},{"key":"S1047951111000576_ref21","doi-asserted-by":"publisher","DOI":"10.1136\/hrt.2004.057273"},{"key":"S1047951111000576_ref18","doi-asserted-by":"publisher","DOI":"10.1136\/heart.86.1.69"},{"key":"S1047951111000576_ref11","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-005-3692-z"},{"key":"S1047951111000576_ref12","doi-asserted-by":"publisher","DOI":"10.1080\/08870440108405502"},{"key":"S1047951111000576_ref13","first-page":"209","article-title":"Qualiy of life in adults with congenital heart disease: better than expected?","volume":"34","author":"Moons","year":"2006","journal-title":"Gedrag and Gezondheid: Tijdschrift voor Psychologie en Gezondheid"},{"key":"S1047951111000576_ref20","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2006-3778"},{"key":"S1047951111000576_ref7","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-005-4327-0"},{"key":"S1047951111000576_ref5","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-9-6"},{"key":"S1047951111000576_ref4","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehi054"}],"container-title":["Cardiology in the Young"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S1047951111000576","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,4,26]],"date-time":"2019-04-26T21:11:14Z","timestamp":1556313074000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S1047951111000576\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2011,6,8]]},"references-count":21,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2011,10,28]]}},"alternative-id":["S1047951111000576"],"URL":"https:\/\/doi.org\/10.1017\/s1047951111000576","relation":{},"ISSN":["1047-9511","1467-1107"],"issn-type":[{"value":"1047-9511","type":"print"},{"value":"1467-1107","type":"electronic"}],"subject":[],"published":{"date-parts":[[2011,6,8]]}}}