{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,3]],"date-time":"2025-11-03T13:41:47Z","timestamp":1762177307292,"version":"3.40.5"},"reference-count":46,"publisher":"Cambridge University Press (CUP)","issue":"1","license":[{"start":{"date-parts":[[2020,6,25]],"date-time":"2020-06-25T00:00:00Z","timestamp":1593043200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2021,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951520000413_sec_a1\"><jats:title>Objective<\/jats:title><jats:p>Palliative care (PC) aims to improve patients' and families' quality of life through an approach that relieves physical, psychosocial, and spiritual suffering, although the latter continues to be under-assessed and under-treated. This study aimed to describe the prevalence of physical, psychosocial, and hope assessments documented by a PC team in the first PC consultation.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951520000413_sec_a2\" sec-type=\"methods\"><jats:title>Method<\/jats:title><jats:p>The retrospective descriptive analysis of all first PC consultations registered in our anonymized database (December 2018\u2013January 2020), searching for written documentation regarding (1) Edmonton Symptom Assessment Scale (ESAS) physical subscale (pain, tiredness, nausea, drowsiness, appetite, shortness of breath, constipation, insomnia, and well-being), (2) the single question \u201cAre you depressed?\u201d (SQD), (3) the question \u201cDo you feel anxious?\u201d (SQA), (4) feeling a burden, (5) hope-related concerns, (6) the dignity question (DQ), and (7) will to live (WtL).<\/jats:p><\/jats:sec><jats:sec id=\"S1478951520000413_sec_a3\" sec-type=\"results\"><jats:title>Results<\/jats:title><jats:p>Of the 174 total of patients anonymously registered in our database, 141 PC home patients were considered for analysis; 63% were male, average age was 70 years, the majority had malignancies (82%), with a mean performance status of 52%. Evidence of written documentation was (1) ESAS pain (96%), tiredness (89%), nausea (89%), drowsiness (79%), appetite (89%), shortness of breath (82%), constipation (74%), insomnia (72%), and well-being (52%); (2) the SQD (39%); (3) the SQA (11%); (4) burden (26%); (5) hope (11%); (6) the DQ (33%); and (7) WtL (33%).<\/jats:p><jats:p>Significant differences were found between the frequencies of all documented items of the ESAS physical subscale (29%), and all documented psychosocial items (SQD + SQA + burden + DQ) (1%), hope (11%), and WtL (33%) (<jats:italic>p<\/jats:italic>= 0.0000;<jats:italic>p<\/jats:italic>= 0.0005;<jats:italic>p<\/jats:italic>= 0.0181, respectively).<\/jats:p><\/jats:sec><jats:sec id=\"S1478951520000413_sec_a4\"><jats:title>Significance of results<\/jats:title><jats:p>There were differences between documentation of psychosocial, hope, and physical assessments after the first PC consultation, with the latter being much more frequent. Further research using multicenter data is now required to help identify barriers in assessing and documenting non-physical domains of end-of-life experience.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951520000413","type":"journal-article","created":{"date-parts":[[2020,6,25]],"date-time":"2020-06-25T05:36:00Z","timestamp":1593063360000},"page":"69-74","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":7,"title":["\u201cTruly holistic?\u201d Differences in documenting physical and psychosocial needs and hope in Portuguese palliative patients"],"prefix":"10.1017","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9283-5045","authenticated-orcid":false,"given":"Miguel","family":"Juli\u00e3o","sequence":"first","affiliation":[]},{"given":"Maria Ana","family":"Sobral","sequence":"additional","affiliation":[]},{"given":"Paula","family":"Cal\u00e7ada","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1655-7391","authenticated-orcid":false,"given":"B\u00e1rbara","family":"Antunes","sequence":"additional","affiliation":[]},{"given":"Baltazar","family":"Nunes","sequence":"additional","affiliation":[]},{"given":"Ana","family":"Bragan\u00e7a","sequence":"additional","affiliation":[]},{"given":"Daniela","family":"Runa","sequence":"additional","affiliation":[]},{"given":"Paulo","family":"Faria de Sousa","sequence":"additional","affiliation":[]},{"given":"Harvey Max","family":"Chochinov","sequence":"additional","affiliation":[]},{"given":"Eduardo","family":"Bruera","sequence":"additional","affiliation":[]}],"member":"56","published-online":{"date-parts":[[2020,6,25]]},"reference":[{"key":"S1478951520000413_ref21","first-page":"4","article-title":"Management of distress in cancer patients","volume":"8","author":"Holland","year":"2010","journal-title":"Journal of Supportive Oncology"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref32","DOI":"10.1002\/(SICI)1099-1611(199909\/10)8:5<451::AID-PON422>3.0.CO;2-3"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref28","DOI":"10.1017\/S1478951516001140"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref12","DOI":"10.1016\/j.jpainsymman.2014.11.291"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref5","DOI":"10.1057\/ejis.2009.34"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref38","DOI":"10.1017\/S1478951504040088"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref44","DOI":"10.1001\/jama.284.19.2476"},{"doi-asserted-by":"publisher","key":"S1478951520000413_ref45","DOI":"10.1016\/j.parkreldis.2011.02.012"},{"unstructured":"Palliative Care Needs Assessment Guidance (2014) The National Clinical Programme for Palliative Care, HSE Clinical Strategy and Programmes Division [Internet] (13 p.). 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