{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,20]],"date-time":"2026-04-20T14:00:10Z","timestamp":1776693610718,"version":"3.51.2"},"reference-count":35,"publisher":"Cambridge University Press (CUP)","issue":"5","license":[{"start":{"date-parts":[[2022,12,5]],"date-time":"2022-12-05T00:00:00Z","timestamp":1670198400000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2023,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951522001511_sec1a\"><jats:title>Background<\/jats:title><jats:p>There are few studies evaluating the role of spirituality and the role of spiritually integrated interventions in people with amyotrophic lateral sclerosis (PALS) and their caregivers.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001511_sec2b\"><jats:title>Objectives<\/jats:title><jats:p>A scoping review was conducted to examine the nature and breadth of peer-reviewed literature on the role of spirituality, interventions integrating spirituality, and outcomes for PALS and their caregivers.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001511_sec3c\"><jats:title>Methods<\/jats:title><jats:p>A literature review was performed, following the methods from the Joanna Briggs Institute Reviewers, based on all articles published between January 2006 and April 2022, identified in the CINAHL Complete, MEDLINE Complete, MedicLatina, Psychology and Behavioral Sciences Collection, and SPORTDiscus with full-text databases using key terms. Extracted data included research aims, study design, population and characteristics, theme description, and measures or type of intervention.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001511_sec4d\"><jats:title>Results<\/jats:title><jats:p>A total of 18 articles were included in this study: 14 qualitative, 3 quantitative, and 1 protocol of a quantitative study. Eight studies were based in Europe. The search identified different main themes related to spirituality for caregivers and patients, 2 spiritual measure scales, and one intervention. However, many studies were limited in sample size, generalizability, and transferability and used less sophisticated research designs.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951522001511_sec5e\"><jats:title>Significance of the results<\/jats:title><jats:p>This scoping review illustrates the importance given to spirituality by caregivers and PALS and reveals a very heterogeneous response. Thus, experimental studies in the area of spirituality are needed to systematically explore the impact of spiritual interventions, and the results of these studies could advance practice and policy by enhancing the quality of life for PALS and their caregivers.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951522001511","type":"journal-article","created":{"date-parts":[[2022,12,5]],"date-time":"2022-12-05T07:10:00Z","timestamp":1670224200000},"page":"914-924","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":8,"title":["The role of spirituality in people with amyotrophic lateral sclerosis and their caregivers: Scoping review"],"prefix":"10.1017","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4423-7443","authenticated-orcid":false,"given":"Filipe","family":"Gon\u00e7alves","sequence":"first","affiliation":[]},{"given":"Margarida 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Published by Cambridge University Press.","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}