{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T14:07:19Z","timestamp":1774879639257,"version":"3.50.1"},"reference-count":41,"publisher":"Cambridge University Press (CUP)","issue":"3","license":[{"start":{"date-parts":[[2024,1,5]],"date-time":"2024-01-05T00:00:00Z","timestamp":1704412800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/www.cambridge.org\/core\/terms"}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["Pall Supp Care"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec id=\"S1478951523001864_sec1a\"><jats:title>Objectives<\/jats:title><jats:p>Advancements in medicine and science have enabled more and more people to live longer with a chronic medical condition, namely cancer. Nevertheless, the palliative care (PC) approach continues to be introduced and incorporated later in the lives of patients and families dealing with such conditions. Thus, the need for individuals to care for this population in our society is increasing, giving rise to the so-called \u201cinformal caregivers.\u201d The present study intends to examine the main obstacles faced by informal caregivers taking care of a cancer patient receiving PC based on what health professionals working in these settings perceive and write down. To achieve this goal, the written files of 2 Portuguese palliative care institutions were analyzed.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001864_sec2b\"><jats:title>Methods<\/jats:title><jats:p>An inductive thematic analysis was conducted, focusing on the contact between health professionals and family caregivers and based on the notes taken by health professionals.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001864_sec3c\"><jats:title>Results<\/jats:title><jats:p>Three main overarching themes were identified: (1) burden, (2) intra-family impact of the illness, and (3) network vulnerabilities. Included in this are the emphasis on the role of the family and social support, the high levels of psychological morbidity and caregiver burden present over this period, and a great need for information about the illness.<\/jats:p><\/jats:sec><jats:sec id=\"S1478951523001864_sec4d\"><jats:title>Significance of results<\/jats:title><jats:p>This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between \u201croles.\u201d It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one\u2019s illness, given how important it is to address the family\u2019s needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people\u2019s needs.<\/jats:p><\/jats:sec>","DOI":"10.1017\/s1478951523001864","type":"journal-article","created":{"date-parts":[[2024,1,5]],"date-time":"2024-01-05T04:35:59Z","timestamp":1704429359000},"page":"499-510","update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":8,"title":["Caregivers\u2019 concerns through health professionals\u2019 eyes"],"prefix":"10.1017","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3450-0244","authenticated-orcid":false,"given":"Carolina","family":"Oliveira","sequence":"first","affiliation":[]},{"given":"Daniela","family":"Louren\u00e7o","sequence":"additional","affiliation":[]},{"given":"Luciana","family":"Sotero","sequence":"additional","affiliation":[]},{"given":"Ana Paula","family":"Relvas","sequence":"additional","affiliation":[]}],"member":"56","published-online":{"date-parts":[[2024,1,5]]},"reference":[{"key":"S1478951523001864_ref3","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951518000044"},{"key":"S1478951523001864_ref13","first-page":"213","article-title":"Family support in advanced cancer","volume":"51","author":"Given","year":"2001","journal-title":"CA: A Cancer Journal for Clinicians"},{"key":"S1478951523001864_ref14","doi-asserted-by":"publisher","DOI":"10.1590\/S0104-07072012000200007"},{"key":"S1478951523001864_ref8","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"S1478951523001864_ref16","doi-asserted-by":"publisher","DOI":"10.1177\/1359105319893019"},{"key":"S1478951523001864_ref17","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2020.04.006"},{"key":"S1478951523001864_ref20","doi-asserted-by":"publisher","DOI":"10.1098\/rstb.2017.0273"},{"key":"S1478951523001864_ref22","volume-title":"Cancer Statistics","year":"2020"},{"key":"S1478951523001864_ref24","volume-title":"Cuidados Paliativos. 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