{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T02:52:50Z","timestamp":1761101570078},"reference-count":20,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[1997,3,1]],"date-time":"1997-03-01T00:00:00Z","timestamp":857174400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J of Inher Metab Disea"],"published-print":{"date-parts":[[1997,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>A Maternal PKU camp provided education and social support for 25 young women with phenylketonuria (PKU). Questionnaires were administered and blood samples were collected on the first and last days of camp to evaluate the psychological and medical impact of the programme. Long\u2010term outcome was assessed through telephone interviews 7 \u2010 14 months later. Knowledge of maternal PKU and the maternal PKU diet increased significantly. There was a significant increase in campers' ratings of the degree to which others supported the use of birth control to prevent late\u2010treated pregnancies, although campers' comfort with contraception did not change. Mean blood phenylalanine concentrations were significantly reduced by 37% during camp and by 20% at follow\u2010up. Ninety\u2010six per cent of campers remained in contact with other campers after the summer. At follow\u2010up, one pregnancy was reported, in which metabolic control was achieved prior to conception. Overall, attitudes about treatment and perceptions about ability to cope with PKU did not change to a significant degree. It is suggested that camps may be most successful in changing both behaviour and attitudes if they actively involve the campers in food preparation, address the psychological meaning of food in our culture, and provide social support.<\/jats:p>","DOI":"10.1023\/a:1005349204797","type":"journal-article","created":{"date-parts":[[2002,12,21]],"date-time":"2002-12-21T21:48:34Z","timestamp":1040507314000},"page":"21-27","source":"Crossref","is-referenced-by-count":23,"title":["Social factors and the meaning of food in adherence to medical diets: results of a maternal phenylketonuria summer camp"],"prefix":"10.1002","volume":"20","author":[{"given":"S. E.","family":"Waisbren","sequence":"first","affiliation":[{"name":"Clinical Genetics Program at the Children's Hospital  Boston"},{"name":"Department of Psychiatry, Division of Psychology Harvard Medical School and the Children's Hospital  Boston Massachusetts"},{"name":"Ida Smith Building Children's Hospital  300 Longwood Avenue Boston MA 02115 USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"H.","family":"Rokni","sequence":"additional","affiliation":[{"name":"Clinical Genetics Program at the Children's Hospital  Boston"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"I.","family":"Bailey","sequence":"additional","affiliation":[{"name":"Clinical Genetics Program at the Children's Hospital  Boston"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"F.","family":"Rohr","sequence":"additional","affiliation":[{"name":"Clinical Genetics Program at the Children's Hospital  Boston"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"T.","family":"Brown","sequence":"additional","affiliation":[{"name":"South Shore Center for Guidance and Counseling, Inc.  Canton Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Warner\u2010Rogers","sequence":"additional","affiliation":[{"name":"Medical Research Council, Child Psychiatry Unit Institute of Psychiatry  London"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[1997,3]]},"reference":[{"key":"e_1_2_1_2_1","first-page":"184","volume-title":"Psychology of Nutrition","author":"Booth DA","year":"1994"},{"key":"e_1_2_1_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(87)91418-8"},{"key":"e_1_2_1_4_1","volume-title":"Belief, Attitude, Intention and Behaviour: An Introduction to Theory and Research","author":"Fishbein M","year":"1975"},{"key":"e_1_2_1_5_1","first-page":"69","volume-title":"Nutrition and Anthropology in Action","author":"Fitzgerald TK","year":"1977"},{"key":"e_1_2_1_6_1","volume-title":"Guidelines for Training in Sexuality and the Mentally Handicapped","author":"Kempton W","year":"1976"},{"key":"e_1_2_1_7_1","volume-title":"Food and Culture in America: A Nutrition Handbook","author":"Kittler PG","year":"1989"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.1993.02160350098015"},{"key":"e_1_2_1_9_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM198011203032104"},{"key":"e_1_2_1_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/014572178901500609"},{"key":"e_1_2_1_11_1","first-page":"114","volume-title":"Completing the Food Chain","author":"Mintz S","year":"1989"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0002-9378(11)90601-2"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3476(87)80500-0"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/0265407587044007"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.74.5.501"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/0738-3991(90)90088-3"},{"key":"e_1_2_1_17_1","volume-title":"Society for Inherited Metabolic Disease Annual Meeting","author":"Singh RH","year":"1996"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/014572179101700110"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.81.3.299"},{"key":"e_1_2_1_20_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.85.12.1636"},{"key":"e_1_2_1_21_1","first-page":"199","volume-title":"The Hedonics of Taste","author":"Zellner DA","year":"1991"}],"container-title":["Journal of Inherited Metabolic Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1023%2FA%3A1005349204797","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1023\/A%3A1005349204797","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,15]],"date-time":"2023-09-15T02:38:02Z","timestamp":1694745482000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1023\/A%3A1005349204797"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[1997,3]]},"references-count":20,"journal-issue":{"issue":"1","published-print":{"date-parts":[[1997,3]]}},"alternative-id":["10.1023\/A:1005349204797"],"URL":"https:\/\/doi.org\/10.1023\/a:1005349204797","archive":["Portico"],"relation":{},"ISSN":["0141-8955","1573-2665"],"issn-type":[{"value":"0141-8955","type":"print"},{"value":"1573-2665","type":"electronic"}],"subject":[],"published":{"date-parts":[[1997,3]]}}}