{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T15:53:24Z","timestamp":1776095604748,"version":"3.50.1"},"reference-count":25,"publisher":"Springer Science and Business Media LLC","issue":"4","license":[{"start":{"date-parts":[[2002,6,1]],"date-time":"2002-06-01T00:00:00Z","timestamp":1022889600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2002,6,1]],"date-time":"2002-06-01T00:00:00Z","timestamp":1022889600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2002,6]]},"DOI":"10.1023\/a:1015511908710","type":"journal-article","created":{"date-parts":[[2002,12,29]],"date-time":"2002-12-29T14:13:07Z","timestamp":1041171187000},"page":"317-327","source":"Crossref","is-referenced-by-count":89,"title":["Quality of life of patients with Fabry disease"],"prefix":"10.1007","volume":"11","author":[{"given":"K.F.","family":"Gold","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"G.M.","family":"Pastores","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.F.","family":"Botteman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.M.","family":"Yeh","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Sweeney","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"W.","family":"Aliski","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.L.","family":"Pashos","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","reference":[{"issue":"21","key":"403140_CR1","doi-asserted-by":"crossref","first-page":"2771","DOI":"10.1001\/jama.284.21.2771","volume":"284","author":"RO Brady","year":"2000","unstructured":"Brady RO, Schiffmann R. Clinical features of and recent advances in therapy for Fabry disease. JAMA 2000; 284(21): 2771\u20132775.","journal-title":"JAMA"},{"issue":"21","key":"403140_CR2","doi-asserted-by":"crossref","first-page":"2743","DOI":"10.1001\/jama.285.21.2743","volume":"285","author":"R Schiffmann","year":"2001","unstructured":"Schiffmann R, Kopp JB, Austin HA III, et al. Enzyme replacement therapy in fabry disease: A randomized controlled trial. JAMA 2001; 285(21): 2743\u20132749.","journal-title":"JAMA"},{"issue":"7","key":"403140_CR3","doi-asserted-by":"crossref","first-page":"907","DOI":"10.1001\/jama.1989.03430070055030","volume":"262","author":"AL Stewart","year":"1989","unstructured":"Stewart AL, Greenfield S, Hayes RD. Functional status and well-being of patients with chronic conditions. Results from the Medical Outcomes Study. JAMA 1989; 262(7): 907\u2013913.","journal-title":"JAMA"},{"key":"403140_CR4","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1023\/A:1008859420641","volume":"8","author":"BJ Masek","year":"1999","unstructured":"Masek BJ, Sims KB, Bove CM, Korson MS, Short P, Norman DK. Quality of life assessment in adults with type 1 Gaucher disease. Qual Life Res 1999; 8: 263\u2013268.","journal-title":"Qual Life Res"},{"issue":"2","key":"403140_CR5","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1016\/S0272-6386(00)70339-8","volume":"35","author":"JA Diaz-Buxo","year":"2000","unstructured":"Diaz-Buxo JA, Lowrie EG, Lew NL, Zhang H, Lazarus JM. Quality-of-life evaluation using short form 36: Comparison of hemodialysis and peritoneal dialysis patients. Am J Kidney Dis 2000; 35(2): 293\u2013300.","journal-title":"Am J Kidney Dis"},{"issue":"1","key":"403140_CR6","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1002\/ana.410400105","volume":"40","author":"P Mitsias","year":"1996","unstructured":"Mitsias P, Levine SR. Cerebrovascular complications of Fabry's disease. Ann Neurol 1996; 40(1): 8\u201317.","journal-title":"Ann Neurol"},{"issue":"10","key":"403140_CR7","doi-asserted-by":"crossref","first-page":"456","DOI":"10.1080\/09638280050045938","volume":"22","author":"S McEwen","year":"2000","unstructured":"McEwen S, Mayo N, Wood-Dauphinee S. Inferring quality of life from performance-based assessments. Disabil Rehabil 2000; 22(10): 456\u2013463.","journal-title":"Disabil Rehabil"},{"issue":"9","key":"403140_CR8","doi-asserted-by":"crossref","first-page":"755","DOI":"10.1016\/S0895-4356(98)00046-8","volume":"51","author":"JP Anderson","year":"1998","unstructured":"Anderson JP, Kaplan RM, Coons SJ, Schneiderman LJ. Comparison of the quality of well-being scale and the SF-36 results among two samples of ill adults: AIDS and other illnesses. J Clin Epidemiol 1998; 51(9): 755\u2013762.","journal-title":"J Clin Epidemiol"},{"key":"403140_CR9","volume-title":"SF-36 Health Survey: Manual and Interpretation Guide","author":"JE Ware Jr","year":"1993","unstructured":"Ware JE Jr. SF-36 Health Survey: Manual and Interpretation Guide. Boston, MA: The Health Institute, New England Medical Center, 1993."},{"issue":"6","key":"403140_CR10","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1097\/00005650-199206000-00002","volume":"30","author":"JE Ware Jr.","year":"1992","unstructured":"Ware JE Jr., Sherbourne CD. The MOS 36-item short-form health survey (SF-36). Conceptual framework and item selection. Med Care 1992; 30(6): 473\u2013483.","journal-title":"Med Care"},{"issue":"4","key":"403140_CR11","doi-asserted-by":"crossref","first-page":"351","DOI":"10.1023\/A:1008902728574","volume":"8","author":"A Jacoby","year":"1999","unstructured":"Jacoby A, Baker GA, Steen N, Buck D. The SF-36 as a health status measure for epilepsy: A psychometric assessment. Qual Life Res 1999; 8(4): 351\u2013364.","journal-title":"Qual Life Res"},{"issue":"4","key":"403140_CR12","doi-asserted-by":"crossref","first-page":"425","DOI":"10.1093\/rheumatology\/37.4.425","volume":"37","author":"DA Ruta","year":"1998","unstructured":"Ruta DA, Hurst NP, Kind P, Hunter M, Stubbings A. Measuring health status in British patients with rheumatoid arthritis: Reliability, validity and responsiveness of the short form 36-item health survey (SF-36). Brit J Rheumatol 1998; 37(4): 425\u2013436.","journal-title":"Brit J Rheumatol"},{"key":"403140_CR13","volume-title":"Statistical Power Analysis for Behavioral Sciences","author":"J Cohen","year":"1988","unstructured":"Cohen J. Statistical Power Analysis for Behavioral Sciences. 2nd ed. New Jersey: Lawrence Erlbaum Associates, Inc., 1988.","edition":"2nd ed."},{"issue":"1","key":"403140_CR14","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1023\/A:1008919227665","volume":"9","author":"EG Bing","year":"2000","unstructured":"Bing EG, Hays RD, Jacobson LP, et al. Health-related quality of life among people with HIV disease: Results from the Multicenter AIDS Cohort Study. Qual Life Res 2000; 9(1): 55\u201363.","journal-title":"Qual Life Res"},{"issue":"12","key":"403140_CR15","doi-asserted-by":"crossref","first-page":"2995","DOI":"10.1161\/01.STR.31.12.2995","volume":"31","author":"J Carod-Artal","year":"2000","unstructured":"Carod-Artal J, Egido JA, Gonzalez JL, Varela De Seijas E. Quality of life among stroke survivors evaluated 1 year after stroke: Experience of a stroke unit. Stroke 2000; 31(12): 2995\u20133000.","journal-title":"Stroke"},{"key":"403140_CR16","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1023\/A:1008814105603","volume":"7","author":"AM Damiano","year":"1998","unstructured":"Damiano AM, Pastores GM, Ware JE. The health-related quality of life of adults with Gaucher's disease receiving enzyme replacement therapy: Results from a retrospective study. Qual Life Res 1998; 7: 373\u2013386.","journal-title":"Qual Life Res"},{"issue":"6","key":"403140_CR17","doi-asserted-by":"crossref","first-page":"521","DOI":"10.1023\/A:1008878425167","volume":"7","author":"RP Hayes","year":"1998","unstructured":"Hayes RP, Grinzaid KA, Duffey EB, Elsas LJ. The impact of Gaucher disease and its treatment on quality of life. Qual Life Res 1998; 7(6): 521\u2013534.","journal-title":"Qual Life Res"},{"issue":"4","key":"403140_CR18","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1023\/A:1008927431300","volume":"8","author":"P Kim","year":"1999","unstructured":"Kim P, Warren S, Madill H, Hadley M. Quality of life of stroke survivors. Qual Life Res 1999; 8(4): 293\u2013301.","journal-title":"Qual Life Res"},{"issue":"9","key":"403140_CR19","doi-asserted-by":"crossref","first-page":"1467","DOI":"10.1161\/01.STR.27.9.1467","volume":"27","author":"RB King","year":"1996","unstructured":"King RB. Quality of life after stroke. Stroke 1996; 27(9): 1467\u20131472.","journal-title":"Stroke"},{"issue":"6","key":"403140_CR20","doi-asserted-by":"crossref","first-page":"1627","DOI":"10.1378\/chest.117.6.1627","volume":"117","author":"TY Martinez","year":"2000","unstructured":"Martinez TY, Pereira CA, dos Santos ML, Ciconelli RM, Guimaraes SM, Martinez JA. Evaluation of the short-form 36-item questionnaire to measure health-related quality of life in patients with idiopathic pulmonary fibrosis. Chest 2000; 117(6): 1627\u20131632.","journal-title":"Chest"},{"issue":"Suppl1","key":"403140_CR21","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1159\/000045703","volume":"85","author":"D Tsakiris","year":"2000","unstructured":"Tsakiris D. Morbidity and mortality reduction associated with the use of erythropoietin. Nephron 2000; 85(Suppl 1): 2\u20138.","journal-title":"Nephron"},{"issue":"13","key":"403140_CR22","doi-asserted-by":"crossref","first-page":"835","DOI":"10.1056\/NEJM199603283341306","volume":"334","author":"MA Testa","year":"1996","unstructured":"Testa MA, Simonson DC. Assessment of quality-of-life outcomes. New Engl J Med 1996; 334(13): 835\u2013840.","journal-title":"New Engl J Med"},{"issue":"8","key":"403140_CR23","doi-asserted-by":"crossref","first-page":"427","DOI":"10.1089\/108729100416641","volume":"14","author":"P Tsasis","year":"2000","unstructured":"Tsasis P. Health-related quality-of-life measurements in HIV\/AIDS care. AIDS Patient Care ST 2000; 14(8): 427\u2013438.","journal-title":"AIDS Patient Care ST"},{"issue":"4","key":"403140_CR24","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1002\/1099-1050(200006)9:4<337::AID-HEC518>3.0.CO;2-O","volume":"9","author":"L Vale","year":"2000","unstructured":"Vale L, Donaldson C, Daly C, et al. Evidence-based medicine and health economics: A case study of end stage renal disease. Health Econ 2000; 9(4): 337\u2013351.","journal-title":"Health Econ"},{"issue":"4","key":"403140_CR25","doi-asserted-by":"crossref","first-page":"404","DOI":"10.1097\/00005650-200004000-00007","volume":"38","author":"KP Weinfurt","year":"2000","unstructured":"Weinfurt KP, Willke RJ, Glick HA, Freimuth WW, Schulman KA. Relationship between CD4 count, viral burden, and quality of life over time in HIV-1-infected patients. Med Care 2000; 38(4): 404\u2013410.","journal-title":"Med Care"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1023\/A:1015511908710.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1023\/A:1015511908710\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1023\/A:1015511908710.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,6]],"date-time":"2025-08-06T04:25:44Z","timestamp":1754454344000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1023\/A:1015511908710"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2002,6]]},"references-count":25,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2002,6]]}},"alternative-id":["403140"],"URL":"https:\/\/doi.org\/10.1023\/a:1015511908710","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2002,6]]}}}