{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,21]],"date-time":"2025-05-21T04:18:15Z","timestamp":1747801095182,"version":"3.41.0"},"reference-count":29,"publisher":"Hogrefe Publishing Group","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pflege"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:p> Zusammenfassung: Hintergrund: Das Erwachsenwerden des Kindes mit Spina bifida (SB) erfordert die Transition von der kindzentrierten in die erwachsenenorientierte Gesundheitsversorgung. Der Transitionsprozess (TP) verlangt Anpassungen der elterlichen Rolle, wobei Gesundheitsfachpersonen in der Begleitung der Familien eine zentrale Rolle einnehmen. Unklar ist, wie die Eltern den TP in Zeiten komplexer Ver\u00e4nderungen erleben und welcher Unterst\u00fctzungsbedarf sich daraus ergibt. Ziel: Die Erfahrungen von Eltern in verschiedenen Phasen des TP zu verstehen und daraus Unterst\u00fctzungsma\u00dfnahmen abzuleiten. Methode: In dieser qualitativen Studie wurden mittels halbstrukturierten, leitfadengest\u00fctzten Interviews die Erfahrungen von Eltern mit Kind mit SB vor und w\u00e4hrend des TP sowie nach dem Transfer eruiert. Die Analyse der zehn Interviews erfolgte durch offene und axiale Kodierung in Anlehnung an die Grounded Theory nach Strauss &amp; Corbin (1996) . Ergebnisse: Der TP ist im Kontext der Gesundheit, der Schule und der Familie zu betrachten. Die Eltern erleben den TP als ein Kontinuum der Neuorientierung. Dieses ist von ambivalenten Gef\u00fchlen gepr\u00e4gt. So m\u00f6chten die Eltern zwar Verantwortung abgeben, ihr Kind aber gleichzeitig weiterhin umfassend sch\u00fctzen. Schlussfolgerungen: Gesundheitsfachpersonen sollten das Ausma\u00df der Ver\u00e4nderung durch den TP und die ambivalenten Gef\u00fchle der Eltern anerkennen und sie im Umgang damit unterst\u00fctzen. Kontinuierliche Begleitung, Koordination und Information durch Advanced Practice Fachpersonen st\u00e4rken Eltern im TP und sind f\u00fcr deren Sicherheitsgef\u00fchl von zentraler Bedeutung. <\/jats:p>","DOI":"10.1024\/1012-5302\/a000992","type":"journal-article","created":{"date-parts":[[2024,4,11]],"date-time":"2024-04-11T09:10:17Z","timestamp":1712826617000},"page":"123-131","source":"Crossref","is-referenced-by-count":0,"title":["Die Welt wird auf den Kopf gestellt: Wie Eltern von Kindern mit Spina Bifida die Transition erleben"],"prefix":"10.1024","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0644-701X","authenticated-orcid":true,"given":"Alexandra","family":"Wattinger","sequence":"first","affiliation":[{"name":"Spina Bifida Zentrum, Universit\u00e4tskinderspital                Z\u00fcrich, Schweiz"},{"name":"Careum Fachhochschule Gesundheit, Z\u00fcrich,                   Schweiz"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6580-6481","authenticated-orcid":true,"given":"Brigitte","family":"Seliner","sequence":"additional","affiliation":[{"name":"Spina Bifida Zentrum, Universit\u00e4tskinderspital                Z\u00fcrich, Schweiz"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"101","reference":[{"key":"c1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1014379"},{"key":"c2","doi-asserted-by":"publisher","DOI":"10.1016\/1054-139X(93)90143-D"},{"key":"c3","doi-asserted-by":"publisher","DOI":"10.3278\/6006364w"},{"key":"c4","doi-asserted-by":"publisher","DOI":"10.1080\/092970490911324"},{"key":"c5","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2023.0115"},{"key":"c6","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2015.7"},{"key":"c7","doi-asserted-by":"publisher","DOI":"10.1159\/000086559"},{"journal-title":"Handbuch Grounded Theory. 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