{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,3]],"date-time":"2026-03-03T10:21:05Z","timestamp":1772533265254,"version":"3.50.1"},"reference-count":38,"publisher":"Hogrefe Publishing Group","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Zeitschrift f\u00fcr Kinder- und Jugendpsychiatrie und Psychotherapie"],"published-print":{"date-parts":[[2015,11]]},"abstract":"<jats:p>Zusammenfassung. Fragestellung: \u00dcber die gesundheitsbezogene Lebensqualit\u00e4t und Verhaltensauff\u00e4lligkeiten und -st\u00e4rken von kleinw\u00fcchsigen Kindern, Jugendlichen und jungen Erwachsenen mit der Diagnose Achondroplasie ist bisher wenig bekannt. Die Untersuchung dieser Konstrukte aus Sicht der Betroffenen und die Identifikation m\u00f6glicher Einflussfaktoren ist Ziel dieser Arbeit. Methodik: Auf Einladung einer Selbsthilfeorganisation nahmen 89 (junge) Menschen mit Kleinwuchs im Alter von 8 bis 28 Jahren und ihre Eltern an der Befragung teil. Die Lebensqualit\u00e4t (LQ) wurde im Querschnitt mit generischen und krankheitsbezogenen Instrumenten erfragt, Verhaltensauff\u00e4lligkeiten und -st\u00e4rken anhand des SDQ (Strengths and Difficulties Questionnaire). Neben deskriptiven Analysen erfolgte ein Vergleich mit repr\u00e4sentativen Norm- bzw. Referenzdaten. In eine hierarchische Regressionsanalyse zur Vorhersage der Lebensqualit\u00e4t wurden soziodemografische, klinische und psychologische Variablen aufgenommen. Ergebnisse: Die Betroffenen unterschieden sich in ihrer LQ und in Bezug auf ihre Verhaltensauff\u00e4lligkeiten und -st\u00e4rken nicht signifikant von den Normstichproben. Jedoch berichteten sie im Vergleich zu den von endokrinem Kleinwuchs Betroffenen \u00fcber st\u00e4rkere Verhaltensprobleme und Einschr\u00e4nkungen im physischen und sozialen Bereich der LQ. Die Hinzunahme psychologischer Variablen wie soziale Unterst\u00fctzung und Einstellung zur Gr\u00f6\u00dfe erbrachte die h\u00f6chste Varianzaufkl\u00e4rung der LQ. Schlussfolgerungen: Junge Menschen mit Achondroplasie beschreiben ihre LQ und Verhaltensauff\u00e4lligkeiten und -st\u00e4rken nicht anders als Nichtbetroffene. Merkmale wie die K\u00f6rpergr\u00f6\u00dfe erscheinen weniger bedeutsam f\u00fcr die LQ als Verhaltensauff\u00e4lligkeiten und -st\u00e4rken sowie protektive psychosoziale Faktoren.<\/jats:p>","DOI":"10.1024\/1422-4917\/a000385","type":"journal-article","created":{"date-parts":[[2015,11,25]],"date-time":"2015-11-25T09:39:04Z","timestamp":1448444344000},"page":"433-441","source":"Crossref","is-referenced-by-count":15,"title":["Leben mit Achondroplasie"],"prefix":"10.1024","volume":"43","author":[{"given":"Anja C.","family":"Rohenkohl","sequence":"first","affiliation":[{"name":"Institut und Poliklinik f\u00fcr Medizinische Psychologie, Universit\u00e4tsklinikum Hamburg-Eppendorf"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachel","family":"Sommer","sequence":"additional","affiliation":[{"name":"Institut und Poliklinik f\u00fcr Medizinische Psychologie, Universit\u00e4tsklinikum Hamburg-Eppendorf"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephanie","family":"Bestges","sequence":"additional","affiliation":[{"name":"Institut und Poliklinik f\u00fcr Medizinische Psychologie, Universit\u00e4tsklinikum Hamburg-Eppendorf"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sabine","family":"Kahrs","sequence":"additional","affiliation":[{"name":"Bundesverband Kleinw\u00fcchsige Menschen und ihre Familien e. 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